1 / 7

Perceptions of Unmet Need in School-Aged Children with Autism Spectrum Disorders

By: Hilary Brown. Who falls into the gap?. Perceptions of Unmet Need in School-Aged Children with Autism Spectrum Disorders. TITLE. PURPOSE. BACKGROUND. METHODOLOGY. PARTICIPANT RECRUITMENT. IMPLICATION. Purpose.

marin
Download Presentation

Perceptions of Unmet Need in School-Aged Children with Autism Spectrum Disorders

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. By: Hilary Brown Who falls into the gap? Perceptions of Unmet Need in School-Aged Children with Autism Spectrum Disorders TITLE PURPOSE BACKGROUND METHODOLOGY PARTICIPANT RECRUITMENT IMPLICATION

  2. Purpose • Investigate areas of unmet need identified by parents of children with an autism spectrum disorder (ASD) aged 6 through 14 • Determine the profile of children with high unmet need in terms of: • Demographic characteristics • Symptom severity • Support needs as described by formal measures Hilary Brown Hilary is in her first year of an M.Sc. in Community Health & Epidemiology at Queen’s University TITLE PURPOSE BACKGROUND METHODOLOGY PARTICIPANT RECRUITMENT IMPLICATION

  3. Background • Reported service utilization patterns: • Average of 7 ASD-related services at one time • Speech/language therapy at school most frequently used • Problems with access to services and information • Demographic characteristics linked to limited access • There is a need to explore the clinical profile of children who fall into the service gap • Severity of autistic symptomatology • Maladaptive behaviours • Adaptive behaviours Szatmari et al., 1995; Thomas et al., 2007a; Thomas et al., 2007b Hilary Brown Hilary is in her first year of an M.Sc. in Community Health & Epidemiology at Queen’s University TITLE PURPOSE BACKGROUND METHODOLOGY PARTICIPANT RECRUITMENT IMPLICATION

  4. Methodology • Survey instruments: • Perceived Needs Scale (Quine & Pahl, 1989) • Autism Diagnostic Inventory-Revised (Lord et al., 1994) • Scales of Independent Behaviour-Revised (Bruininks et al., 1996) • Ways of Coping Scale (Folkman & Lazarus, 1980) • Family Resources Scale (Dunst & Leet, 1985) Hilary is in her first year of an M.Sc. in Community Health & Epidemiology at Queen’s University TITLE PURPOSE BACKGROUND METHODOLOGY PARTICIPANT RECRUITMENT IMPLICATION

  5. Participant Recruitment • Participants: • ~100 needed • Ages 6 through 14 years • Diagnosis of autistic disorder, Asperger’s disorder, PDD-NOS, or autism spectrum disorder • Recruitment: • National Epidemiologic Database for the Study of Autism in Canada (NEDSAC) • 300 potential participants in Manitoba, Southeastern Ontario, Prince Edward Island, and Newfoundland & Labrador Hilary Brown Hilary is in her first year of an M.Sc. in Community Health & Epidemiology at Queen’s University TITLE PURPOSE BACKGROUND METHODOLOGY PARTICIPANT RECRUITMENT IMPLICATION

  6. Implications • Basic descriptive utilization information for policymakers and service providers • Insight into planning appropriate service coverage and eligibility criteria Hilary Brown Hilary is in her first year of an M.Sc. in Community Health & Epidemiology at Queen’s University TITLE PURPOSE BACKGROUND METHODOLOGY PARTICIPANT RECRUITMENT IMPLICATION

  7. References Bruininks, R. H., Woodcock, R. W., Weatherman, R. F., & Hill, B. K. (1996). Scales of Independent Behaviour-Revised. Chicago: Riverside. Dunst, C. J., & Leet, H. E. (1985). Family resource scale. Morgantown, NC: Western Carolina Center. Folkman, S., & Lazarus, R. S. (1980). An analysis of coping in a middle-aged community sample. Journal of Health and Social Behaviour, 21(3), 219-239. Lord, C. Rutter, M, & Couteur, A. (1994). Autism Diagnostic Interview Revised : A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24(5), 659-685. Quine, L., & Pahl, J. (1989). Stress and coping in families caring for a child with a severe mental handicap: A longitudinal study. Institute of Social and Applied Psychology and Centre for Health Services Studies, University of Kent, Canterbury. Szatmari, P., Archer, L., Fisman, S., Streiner, D. L., & Wilson, F. (1995) Asperger’s Syndrome and Autism: Differences in behaviour, cognition, and adaptive functioning. Journal of the American Academy of Child and Adolescent Psychiatry, 34(12), 1662-1671. Thomas, K. C., Morrissey, J. P., & McLaurin, C. (2007a). Use of autism-related services by families and children. Journal of Autism and Developmental Disorders, 37, 818-829. Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007b). Access to care for autism-related services. Journal of Autism and Developmental Disorders, 37, 1902-1912. Hilary Brown Hilary is in her first year of an M.Sc. in Community Health & Epidemiology at Queen’s University TITLE PURPOSE BACKGROUND METHODOLOGY PARTICIPANT RECRUITMENT IMPLICATION

More Related