NHS Lanarkshire Carers Information Strategy

1. NHS Lanarkshire Carers Information Strategy Princess Royal Trust Lanarkshire Carers Centre

2. Strategic Context NHS Lanarkshire Information Strategy approved by NHS Lanarkshire Board – March 2007. NHS Lanarkshire Carers Information Strategy & Action Plan Approved by Scottish Government – November 2008. Partnership Working – Carers Information Strategy Group, comprising: NHS Lanarkshire (Acute & Community). North Lanarkshire Carers Together. South Lanarkshire Carers Network. Princess Royal Trust. South Lanarkshire Council. North Lanarkshire Council

3. Action Plan Developed Through CISG inclusive of all Partners Updated each year. Monitored on a monthly basis. Strong linkages in relation to Carers strategy groups. Funding Sub Group with transparent application process Carers Support Team

4. NHS Lanarkshire Carers Information Strategy Working with Carers A Partnership Approach

5. NHS Lanarkshire Carers Information Strategy Carer Development Officer’s Post is funded by NHS Lanarkshire as part of the NHS Carers Information Strategy. Core Functions Develop links with Carer Co-ordinator Posts in Acute to ensure Carer Support Develop links with GP/Liaison Personnel within Practices to ensure identification of Carers. Develop links through Community Health Partnership process to Locality Management process. Identify and develop Good Practice in relation to Carers within Locality settings. Outcomes Carer Support Team; 7 personnel team to achieve Carer awareness in: Acute/Primary Care This ensured early understandings of the Development Officer’s remit. Representation on Public Partnership Forums and South Public Partnership Forum. Contacts were also made with Local NHS Managers. Enable Joint Services to roll out good practice throughout South Lanarkshire

6. Core Functions To identify and develop support process for Carers in Primary Care setting. To identify and develop Carer Awareness Training needs in Primary Care Staff. To provide data on Carers issues which will inform Community Health Partnership Locality Management and Joint Services protocols of Carers support needs. NHS Lanarkshire Carers Information Strategy Outcomes Carers supported at all stages in Primary Care. Task - Develop Carers Health Needs Database More Carers informed and supported Carers resourced with condition specific information and training Better knowledge of Carer needs. Robust approach to Carer Awareness Localised strategic approach to Carer issues which will inform and enhance Local Improvement Targets.

7. NHS Lanarkshire Carers Information Strategy • Aims • Raise awareness of the Carer Support Team in NHS Lanarkshire • Increase Carer awareness with NHS Lanarkshire wide service providers • Identify Hidden Carers • Develop Carer awareness training for NHSL colleagues • Link with co-ordinators in acute hospitals • Develop partnership working with statutory and voluntary organisations to raise awareness and support carers • Work with GP practices to develop their Carers Register • Ensure Carer issues are raised at a strategic planning level • Carry out Carers Health Needs Survey • Research study exploring the health needs of carers including young carers

8. NHS Lanarkshire Carers Information Strategy • Task • How to make effective use of notice boards in GP practices • Other work within GP practices • Work with professional staff – training • Overall impact of raising awareness of Carer issues – good and challenging Outcomes Produce good quality information for Carers and Professionals Provide good quality support for Carers Offer GP practices Carer awareness sessions training, good signposting and protocols Working with practice staff in order to increase Carer Register Share good practice Good outcomes Carer positive outcome Being part of the annual NHS Health Review Carer Support Team Event Future Challenges Continuing the Service Removing barriers at GP Practice level

9. NHS Lanarkshire Carers Information Strategy SUPPORTING CARERS • How the GP practices can assist Carers support Highlight the Carers Support Team at staff meetings Facilitate awareness sessions for staff Ensure Carers are on the agenda Mechanisms to identify Carers / Young Carers Signpost Carers to Carer Assessment Referral & Signposting Publicity

10. NHS Lanarkshire Carers Information Strategy • Working with addiction services • Partnership board for addictions multi agency group meets monthly. Representation from social services, health, housing, service users, voluntary sector etc... My colleague participates in this meeting representing carers and young carers and ensure their issues and involvement in caring for someone with an addiction is raised. • Hep C immunisation group – discusses immunisation of “at risk” clients many of whom abuse substances. Highlighted the need to consider carers and young carers in this as close / household contacts. • Carers Affected by substance misuse – My colleague represent health & NLCT on this multi agency group looking at information available for those who care for or affected by substance misuse. Currently looking at producing a generic leaflet which will inform all. • Have carried out a number of awareness and training sessions to North community addiction teams in relation to recognising carers and young carers. Have emphasised the importance of recognising young people who may have a caring role (hidden carers) and assessing and communicating effectively in order that their needs are recognised and addressed/met.

11. NHS Lanarkshire Carers Information Strategy • Equality & Diversity • Update on BBV Support worker • Additional funding secured to provide bi lingual Support worker (English & Urdu) for carers affected by Blood borne Virus i.e. this can be their own health condition or they care for someone with BBV. Carers affected by BBV, high prevalence in South Asian communities therefore need for bi lingual worker • Currently recruiting for this post • Main remit: • Engage with BME communities • Actively encourage people to be screened • Inform people of the high risks involved • Provide one to one support • Information – translated where required • Form filling • Access to services • Access to grants/benefits • Written/oral translations in Urdu, Punjabi, & English • BME Carer support worker post • Bi –lingual post as majority of known BME carers are from Pakistan or India. Full time post since Aug 09. • Provides • Identify BME carers, One to one support, facilitates International women’s Group, Information, Access to services, training, translated material where required, etc. Access to and involvement in planning suitable Centre services • Address cultural and language barriers

12. NHS Lanarkshire Carers Information Strategy Carer Review with BME carers Carer Review – 21 BME participants 21 agreed contact with Centre had helped them take more control. 95% accredited information; 48% accredited training and 81% said because they were helped to access services 21 agreed that contact with Centre had helped them take care of their own health & wellbeing: 57% accredited training; 57% said they were less stressed; 63% benefitted from the pampering and 90% felt better because they had opportunity to get together with other BME carers 21 agreed contact with the Centre helped them feel less alone: 76% said this was because they had someone to talk to; 81% benefitted from a BME and a local CSW and 38% enjoyed the social activities and opportunities 21 agreed contact with the Centre helped them to carry on with caring role: 71% said they felt a relief from isolation; 76% had made new friends; 71% had enjoyed the social events and 76% said they felt better able to carry on because they knew information and support was always available from the Centre.

13. NHS Lanarkshire Carer Information Strategy Contact Information Hairmyres Hospital Elaine Harrow 01355 585522 Monklands District General Hospital Lesley Callan 01236 712566 Wishaw General Hospital Elizabeth MacDonald 01698 366118 North Lanarkshire Carers Together Marion McParland, Agnes Hadden, Pauline McIntosh 01698 404055 South Lanarkshire Carers Network Linda Craig 01698 285163

14. CO ORDINATOR FOR CARERSACUTE 1 Co ordinator for each Hospital Elaine Harrow – Hairmyres Hospital Lesley Callan – Monklands Hospital Elizabeth McDonald – Wishaw General Hospital Post began May 2008

15. A Two Person Journey ADMISSION TREATMENT DISCHARGE CARERS RECOGNISED AS‘KEY PARTNERS’IN THE PROVISON OF CARE

16. ADMISSION A & E / Acute Admission Wards Carer information Section – Admission Form 6 month - Hospital case note review

17. Hospital Wards and Departments Networked into all wards and Departments Established how aware staff are of the ‘Key Partners’ in Care approach Continually raise awareness amongst NHS staff of Carers/Carers issues Developed an awareness raising programme

18. Awareness Raising Programme CARERS RECOGNISED AS ‘KEY PARTNERS’ IN THE PROVISON OF CARE COMMUNICATION & LISTENING SKILLS PROMOTE THE NEED TO BE MORE SUPPORTIVE AND PROVIDE INFORMATION. IMPROVE KNOWLEDGE AND ABILTY TO SIGN POST CARERS TO CARER SUPPORTS DISTRIBUTE HOME FROM HOSPITAL PACKS TO CARERS IDENTIFY HIDDEN CARERS ENSURING CARERS RECEIVE CONDITION SPECIFIC INFORMATION

19. HIDDEN CARERS IDENTIFY ‘HIDDEN CARERS’ A CARER WHO DOES NOT RECOGNISE THEMSELVES AS A CARER

20. IF HIDDEN CARERS DO NOT RECOGNISE THEMSELVES AND PROFESSIONALS DO NOT RECOGNISE THEM THEY CAN’T BE SUPPORTED OR SIGN POSTED

21. HOME FROM HOSITAL PACKSUPPORTED PACK FOR CARERS Section 1 – Before leaving Hospital – Discharge Planning Section 2 – After Leaving Hospital – Services in the Community Section 3 – Finances – Costs and Benefits Section 4 – Your Rights as a Carer Section 5 – Useful Contacts Monitoring and evaluation programme implemented 6 month audit – Benefit of packs- via follow up phone calls

22. DISCHARGE PLANNING Review hospital admission and discharge procedures to ensure carers needs are addressed. Co ordinator for Carer member of sub -group addressing these issues. Close liaison with Discharge team Attend multidisciplinary meetings in wards: Liaison with consultants, nurses, OT, Physiotherapist, Social Workers. Support Carers at hospital Case Conferences

23. ROBUST REFERRAL SYSTEM Photographic Service information cards and referrals forms in all wards and Departments. Carer specific information boards at entrance of all 3 hospitals. Regular display information stands for professionals and Carers in hospitals and primary care sites. Development of link nurses in wards and departments

24. ROLE OF THE CO ORDINATOR FOR CARER ACUTE HOSPITALS ASSESS AND MEET THE INDIVIDUAL NEEDS OF FAMILY, FRIENDS AND CARERS WHILE THE PATIENT IS IN HOSPITAL EXPLAIN THE ROLE OF THE STAFF INVOLVED IN THE CARE PROCESS FOLLOW UP CALL TO HOME FOLLOWING DISCHARGE INVOLVE FAMILY FRIENDS AND CARERS IN PLANNING PATIENT CARE AND DISCHARGE ENSURE FAMILY FRIENDS AND CARERS HAVE NECESSARY SKILLS BEFORE DISCHARGE THROUGH EDUCATION AND TRAINING HIGHLIGHT AND SIGN POST CARER ORGANISATIONS IN THE COMMUNITY

28. Follow up Phone calls April 09 – Dec 09 - 448 Follow up calls 6 months data collection. Outcomes: Carer Support Agencies referrals Social work referrals The Pension service referrals GP register Carers assessment Home from Hospital packs Discharge plan

29. Carer Support team Information EventFriday 4th December 2009Alona Hotel ,Strathclyde Park 25 – SERVICES / AGENCIES PARTICIPATED IN THE EVENT 107 - PEOPLE REGISTERED AT THE EVENT: 72 PROFESSIONAL CARERS 25 Referrals 497 Enquires Power Point Presentation Carers Health Issue Play DVD Carers Story Board

30. FUTURE GOALS Review of carer education and training by professionals in acute setting. Exploring ways of improving identification young carers in acute setting. Improve Carer Information within Admission forms

31. THANK YOU FOR YOUR ATTENTION Questions