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Actions. A law to perform fundoscopy in newborns in Brazil Translation of the video to 8 languages: english, french, arabic, spanish, hindu, italian, swahilli, hebrew and has been distributed through International Network for Cancer and Treatment Research - INCTR

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  1. Actions • A law to perform fundoscopy in newborns in Brazil • Translation of the video to 8 languages: english, french, arabic, spanish, hindu, italian, swahilli, hebrew and has been distributed through International Network for Cancer and Treatment Research - INCTR • Information to Maternities and lay people • 2.500.000 phone cards for public telephones in the state of São Paulo • Raise funds • Toll free number - 0800 7704665

  2. INCTR 2007

  3. New actions • Retinoblastoma Day • Latin american meetings • Qualify pediatricians and neonatologists to fundoscopy • RetCam for follow up and discussions

  4. Results • Number of cases diagnosed through the campaign in all country – 60 (not all cases reported to us) • Other ocular diseases diagnosed through the campaign: retinopaty of prematury, familial exudative vitreoretinopathy, cataract, ocular toxocariasis, toxoplasmosis, Coat’s disease • Prevention of Blindness in childhood

  5. Problems for the treatment of Rb in Mexico • Delayed diagnosis • No national Register available • Treatment • Economic and material resources

  6. Delayed Diagnosis • Mean time from first symptoms –as referred by parents- to first diagnosis: • Early stages =7.4 months • Advanced stages = 13.1 months

  7. It can take more than one year to diagnose Retinoblastoma in a child.

  8. There are no enough centers

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