The Future of Primary Care in Europe II The Expert Patient Program At Catalan Institute Of Health

1. The Future of Primary Care in Europe II The Expert Patient Program At Catalan Institute Of Health  

2. 2 Introduction

3. 3 The standard healthcare process

4. 4 Objective of the Expert Patient Program To improve the understanding that patients with heart failure have on their disease by sharing knowledge with an expert patient and other patients with the final aim of improving quality of life and acceptance of the disease.

5. 5 Specific Objectives of the Expert Patient Program Provide information on signs and symptoms of the disease with particular emphasis on signs of alarm. Increase the knowledge of patients on precipitating factors of decompensation. Increase the involvement of patients in the management of their disease and prevention of complications. Increase patient�s self-confidence and skills

6. 6 Who is an �Expert Patient�... ? An �expert patient� (EP) is a person with a chronic disease whose knowledge and profile enables him/her to lead a group of patients with the same disease and who is capable of: Taking an active part in managing their own care Knowing and identifying the signs and/or symptoms of their disease and responding to them Acquiring tools that help in managing the physical, emotional and social impact of the disease

7. 7 Expert Patient Program Action Plan Selection of Primary Health Care Center Explanation of the Program to health care professionals Informative sessions for patients of the Center Selection of the Expert Patient Constitution of the patient group Theoretic content and methods for the Expert Patient given by health care professionals Theoretical/practical group sessions led by the Expert Patient Support and feedback

8. 8 Expert Patient Program Groups of 10 patients + Expert Patient. Nine sessions over two months. Duration of each session 1.30 hours. Theoretical and practical sessions. Training, support in leading and feedback for the expert patient.

9. 9 How heart functions? � What is heart failure and causes of heart failure � Signs and symptoms of heart failure Signs of alarm and decompensation � Treatment of heart failure: diet, exercise, lifestyle � Treatment of heart failure: drugs � Quality of life � Issues discussed in heart failure sessions

10. 10 Assessment Expert Patient Program. Current evaluation Surveys of knowledge and attitudes at the beginning and end of the Program Satisfaction surveys Future evaluation Healthcare professionals / Emergency room visits Quality of life assessment

11. 11 Survey assessment  � � � �

12. 12 Characteristics of patients: Sex- age

13. 13 Characteristic of patients: NYHA Classification

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17. 17 1st. Expert Patient Program Pilot Group. Barcelona The results obtained in the Barcelona Pilot Program are encouraging and in agreement with those obtained by the National Health Service in England. The implication of the people involved in the Program has been very satisfactory.

18. 18 Acknowledgement Carme Acebr�n Montserrat Agramunt Jordi Altirribas Ester Amado Jordi Armengol Josep Casajuana Rocio Casa�as Helia Cebri�n Al�cia Coiduras Josep Davins Toni Dedeu Lea Dom�nguez Neus Esgueva Mireia F�bregas Esther Gil Anna G�mez Dolors G�mez Ch�n Gonz�lez Encarna Grifell Francesc Jos� Maria M Antonia Llauger Iskra Lig�erre M Jes�s Lucas Paca Maestre Isabel Manito Marc Mar� Tino Mart� Marisol Mayorga M Jes�s Mejias Gloria Muniente Valeria Pacheco Paqui P�rez J Manel Picas Elena Puigdevall Kika Pujol M Jos� Queijas Soledad Romea Eva Rodr�guez Jos� Verd�

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20. 20 Thank you! nfabrellas@gencat.cat