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The Road to Collaboration

This study explores the different levels of user involvement in research on self-harm, including control, collaboration, and consultation. It examines the acceptability and feasibility of an A&E advocacy service for self-harm survivors based on their experiences with mental health services.

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The Road to Collaboration

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  1. The Road to Collaboration Judy Beckett Louise Bryant Academic Unit of Psychiatry & Behavioural Sciences, University of Leeds Academic Unit of Psychiatry and Behavioural Sciences

  2. Partnership working Levels of user involvement Control: users design, undertake & disseminate result of study, users have decision making power. Collaboration: active ongoing partnership throughout the study, sharing of power in decision making. Consultation: lowest level of involvement, no sharing of power in decision making. From: Involve (2004), Faulkner (2004)

  3. Acceptability & feasibility of an A&E advocacy service for self-harm Project idea initiated by Louise Pembroke: experience as a user of mental health and A&E services in relation to self-harm.

  4. Research partners • Management group: Louise Pembroke, Allan House & Hilary Dyter (LMHAG) • Research Team: Louise Bryant (PI), Judy Beckett, Helen Buckland & Cath Sweeney (researchers with experience of using A&E following self-harm) • NHS partner: A&E consultant, Stephen Bush

  5. Process of involvement • Management group agreed principles of involvement • Recruitment of staff with personal experience of self-harm • Training • Data collection (interviewing) • Data input, analysis and write-up • Evaluation of involvement

  6. Evaluation of involvement • Telford et al (2004) Principles of successful consumer involvement in NHS research • Questionnaires developed by SWYMH NHS Trust – ‘staff’ and ‘service user’ versions Full report available from http://www.leeds.ac.uk/medicine/psychiatry/index_p.html

  7. Workshop activity

  8. Reflection on the evaluation tools Principles of involvement (Telford et al) • Successful involvement requires more than adherence to the 8 principles • No reflection of the power relations in collaborative research

  9. SWYMHT evaluation questionnaire • Responses are not anonymous • Personal reflections not independent evaluation

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