Who Cares Wins: employer support and employment rights for carers in the UK
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Who Cares Wins: employer support and employment rights for carers in the UK Madeleine Starr MBE Emily Holzhausen Carers UK. Who cares?. We all care or will have to care

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Who Cares Wins: employer support and employment rights for carers in the UK

Madeleine Starr MBE

Emily Holzhausen

Carers UK


Who cares? carers in the UK

  • We allcareorwill have tocare

  • The bulk of care has always been provided within relationships and families – in the EU 80% of care is provided by families

  • By 2050 globally three times more people of working age will be looking after 2 billion ageing family members

  • More people are living longer, and at home, with disability and illness

  • Which means…

  • More people needingcare and more people needing to provide that care


Who works
Who works? carers in the UK

We all work or will have to work and work longer

  • By 2060 there will be only 2 people working for each 1 in retirement, compared to 4 to 1 today

  • Our economy will need a shrinking workforce to work longer to meet growing care and pensions bills - at a point when many people will be sandwiched between caring roles

  • Choosing between work and care will not be an option for individuals or the economy

    Which means…

  • More support needed to combine work with care


Juggling work and care in the uk
Juggling work and care in the UK carers in the UK

  • Of the UK’s 6 millioncarers, 58% are women, 42% are men

  • Nearly 80% - 4.4 million – are of working age

  • 3 million – 1 in 7 people in the UK workforce - juggle paid work with care, 2 million full time, 1 million part time

  • 400,000 people combine work with 20+ hours of care per week 200,000 people combine work with 50+ hours of care per week

  • Male carers are more likely to work than women - 6 out of 10 work, 90% full time

  • Women carers are more likely to work part time


Impact of care on work in the UK carers in the UK

  • 2.3 million people move in and out of caring each year, so caring impacts on individuals, employers and the economy year on year

  • Carers UK’s State of Caring Survey 2011 of 4000 carers found that nearly 1 in 3 had reduced their working hours or given up work to care

  • Research by LSE has estimated the public expenditure costs of carers giving up work to care as a £1.3 billion in England alone, £1 billion in lost tax, £300 million in Carers Allowance costs

  • Total costs - taking account of lost earnings - are a staggering £5.3 billion UK wide, 0.3% of GDP


Why carers give up work carers in the UK

  • Stress of juggling work and care

    • High levels of care

    • Unpredictability of care

    • Caring at a distance

  • Unsuitability or inflexibility of care services

  • Affordability of care services

  • Inflexibility of workplaces


What carers need carers in the UK

  • Understanding from managers and colleagues

  • Access to advice and information

    • Signposting to support

    • Peer support/carers networks

  • Flexibility (often short-term)

    • Flexible working arrangements

    • Flexible leave arrangements, including a response to emergencies

  • Practical support

    • Private space for a call or parking close to work


The legislative response 1
The legislative response 1 carers in the UK

  • Employment Relations Act 1999

    • Right to emergency leave to care for dependants

    • Amendment to Regulations in 2002 to introduce right to requestflexible working for parents, including parents of disabled children up to the age of 18

  • Work and Families Act 2006

    • Right to request flexible working for someone caringfor a spouse, partner, civil partner or relative, or living at the same address as the adult in need of care


The legislative response 2
The legislative response 2 carers in the UK

  • Equality Act 2010

    • Following the ruling in the Coleman Case by the European Court of Justice in 2008, this gives carers protection from discrimination on the grounds of association with disability or age

    • This applies to employment, and the supply of goods and services

  • Carers (Equal Opportunities) Act (2004)

    • Local Authority Carers Assessments must take account of carers’access to work, learning and leisure


Leading good practice employers for carers
Leading good practice: carers in the UKEmployers for Carers

Employers membership forum, administered by

Carers UK and designed to:

  • Provide a practical service to employers seeking to develop carer friendly workplace policies and practices

  • Identify and promote the business benefits of supporting carers in the workplace

  • Influence employment policy and practice to create a culture which supports carers in and into work

    Leadership Group committed to influencing policy:

  • Chaired by BT and supported by the specialist knowledge of Carers UK


How efc influences practice
How EfC influences practice carers in the UK

  • Promoting awareness andunderstanding

    • Changing the workplace culture

  • Developing workplace practice

    • Reviewing, implementing and embedding policies and practice for employees and line managers

  • Facilitating peer support

    • Face to face and virtual networks

      • Case Study: London Fire Brigade’s LFB Connect


How efc influences policy
How EfC influences policy carers in the UK

  • EfC Leadership Group

    • Committed to working with Government to inform policy and influence practice, bringing the employer voice to public debate

    • Originally an interest group brought together through the ACE National partnership, led by Carers UK, through which it:

      • Supported the Carers (Equal Opportunities) Act 2004 and Work and Families Act 2006

      • Contributed to the Employment Taskforce of the 2008 National Carers Strategy

      • Supported the launch of EfC as a membership forum


Key achievements since 2009
Key achievements since 2009 carers in the UK

  • Memorandum of Understanding with HM Government, March 2010: unique mechanism for engagement

  • Business Case for Supporting Carers in, and into, Employment, Annexe to Recognised, Valued and Supported, ‘refreshed’ National Carers Strategy, November 2010

  • Conditions for Carers in Employment, April 2011

  • Response to Government’s Modern Workplaces consultation, August 2011

  • Care Summit, June 2012, hosted jointly by EfC and HM Government, exploring new models for care services

  • Co-chair of subsequent Task and Finish Group


Next steps
Next steps carers in the UK

  • Task and Finish Group report, March 2013

    • Evidence base for supporting carers in and into employment

    • Evidence base for investing in care services as a condition for employment

    • Evidence from Europe

  • Growing the employer voice in the care debate

    • Care: the new childcare?

  • Growing employer membership of the forum to roll out good practice

  • Growing the forum model beyond the UK


Care and technology in the 21 st century madeleine starr mbe emily holzhausen carers uk

Care and Technology in the 21 carers in the UKst Century

Madeleine Starr MBE

Emily Holzhausen

Carers UK


Challenges and opportunities
Challenges and opportunities carers in the UK

  • Challenges for 21st century societies

    • Demand for care

    • Demand for work

    • Globalisation

  • Opportunities through technology

    • Transformation of health and care delivery, and greater sustainability through cost efficiencies, systems integration and new workforce practice

    • Flexible working and flexible caring to sustain more productive,healthier and longer working lives

    • New markets in health and care technologies


What do we mean by technology
What do we mean by technology? carers in the UK

  • Anything that works!

    • Internet: information, access to products and services, peer support, workplace support, community support

    • Telehealth

    • Telemedicine

    • Telecare

    • Telerehabilitation

    • Mobile technologies

    • Apps for health and care

    • Self care: Wii-Fit, Carewell,Healthvault


Opportunities for health and care
Opportunities for health and care carers in the UK

  • Service solutions and cost efficiencies

    • WSD findings: reduced hospital admissions, less time spent in hospital and A&E, lower mortality rates

    • 2020 Health: £1billion savings and better outcomes through scaled telehealth solutions

    • Scotland Telecare Development Programme and Digital Wales: health and care service efficiencies

  • Three Million Lives: targets for supporting long term health and care needs

  • New ways of working across health and care


Threats for health and care
Threats for health and care carers in the UK

  • Public funding constraints on ‘invest to save’

  • Poor service integration

  • Workforce buy-in

  • New and untested commissioning structures

  • Poorly developed and fragmented market, public and private

  • Lack of awareness of new technologies

  • Poor perception of new technologies


Opportunities for families and carers
Opportunities for families and carers carers in the UK

  • Better access to advice and information

  • Better access to products and services

  • Personalised and cost effective service solutions

  • A life outside caring, enabled by flexible services

    • Work

    • Community participation

    • Leisure


Threats for families and carers
Threats for families and carers carers in the UK

  • Digital exclusion

    • Affordability

    • Accessibility

    • Reliability

  • Lack of awareness of products and services

  • Lack of information on accessing products and services

  • Inflexible service solutions: ‘one size fits all’

  • Poorly developed private purchase market


Opportunities for employers
Opportunities for employers carers in the UK

  • Delivering workplace support forcarers

    • Information and signposting

    • Training, e.g., Knowledge Calls

    • Peer support, e.g., virtual carers networks

  • Delivering workplace support for managers

    • Online resources, including training

    • Virtual ‘Lunch and Learn’ and webinars

  • Delivering flexibility

    • Remote working

    • Remote caring


Threats for employers
Threats for employers carers in the UK

  • Internal

    • Lack of awareness of issuesforcarers

    • Lack of awareness of technology solutions

    • Fear of opening the ‘flexibility floodgates’

    • Line management resistance

  • External

    • Poor or patchy adviceandinformation on products and services

    • Poor or patchy flexible service delivery


Opportunities for the economy
Opportunities for the economy carers in the UK

  • Sustainable health and care systems

    • New models of service delivery resulting in long term cost efficiencies

  • Sustainable workforce

    • Currently 300,000 carers are forced to give up work to care each year, at a cost of £5.3 billion

    • The cost to employers of replacing someone lost to caring equates to one year of their salary

  • New markets in health and care technologies, including for private purchase


Threats for the economy
Threats for the economy carers in the UK

  • ‘Valley of death’:challenges in bridging the gap between technology R&D and implementation

  • Systems resistance: lack of vision

  • Lack ofinvestment in new markets or new market players

  • Short termism: failure to act on demographic realities


Next steps1
Next steps carers in the UK

  • Identifying policy levers

    • Health and Wellbeing Boards and JSNAs

    • Clinical Commissioning Groups

    • Delivering Care Markets for Quality and Choice: local Market Position Statements

  • Identifying investment levers

    • Three Million Lives

    • Plan for Growth

    • DALLAS

    • 2013 Comprehensive Spending Review


Carers UK carers in the UK

  • Websites:

  • www.carersuk.org

  • www.employersforcarers.org

  • [email protected]

  • [email protected]


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