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The Dutch Dyslexia Programme A case study

The Dutch Dyslexia Programme A case study. Natasha M. Maurits Professor of clinical neuroengineering Chair of the DDP steering group University Medical Center Groningen www.clinicalneuroengineering.com n.m.maurits@umcg.nl. Open data access week RuG 26-10-2012.

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The Dutch Dyslexia Programme A case study

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  1. The Dutch Dyslexia Programme A case study Natasha M. Maurits Professor of clinical neuroengineering Chair of the DDP steering group University Medical Center Groningenwww.clinicalneuroengineering.comn.m.maurits@umcg.nl Open data access week RuG 26-10-2012

  2. Amsterdam – Groningen - Nijmegen Open data access week RuG 26-10-2012

  3. Core features of the DDP • longitudinal project • 180 at-risk and 120 control children • brain measures (EEG): 8 moments from 2 - 41 months • behaviour and developmental measures: 17 months – 6 years • reading – spelling - calculating: group 2 – 5 • influence environment: at home and school • intervention project • early: group 2 and 3 (5 and 6 years) – and group 4 • genetic project • sib-pairs from 108 (independent) families → traits • DNA from parents and children from the longitudinal project Open data access week RuG 26-10-2012

  4. How much data are we talking about? Open data access week RuG 26-10-2012

  5. How much data are we talking about? Open data access week RuG 26-10-2012

  6. DDP and Open Access • Goal • to provide future data access to DDP group and other interested researchers • Means • DANS – Data Archiving and Networked Services (KNAW and NWO) • data storage and access for ‘alpha’ and ‘gamma’ sciences • self archiving (metadata and raw data files) • Implementation • Other acces (data deposited under embargo for three years) • Restricted access (steering group decides who gets access) • Open access in future? Open data access week RuG 26-10-2012

  7. Coupling to raw data through manual Open data access week RuG 26-10-2012

  8. Status • Checking manual vs metadata file • Privacy sensitivity issues (eg video data) • Ready in 2013? Open data access week RuG 26-10-2012

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