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UK Renal Data Collaboration

UK Renal Data Collaboration. UKRR Audit Day 25 June 2013 keith.simpson@nhs.net. UK Renal Data Collaboration. Involves Registries (UKRR & SRR) RPV Rare renal disease groups Patients Renal Association Renal units Renal IT industries Data Governance NHS, HSCIC, DoH , ISD.

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UK Renal Data Collaboration

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  1. UK Renal Data Collaboration UKRR Audit Day25 June 2013keith.simpson@nhs.net

  2. UK Renal Data Collaboration InvolvesRegistries (UKRR & SRR)RPVRare renal disease groups Patients Renal AssociationRenal units Renal IT industriesData GovernanceNHS, HSCIC, DoH, ISD

  3. Governance & Risks Guiding CoalitionMet in Edinburgh Nov 2012, 2nd Meeting soonChair Dr Afzal ChaudhryPosition paper availableRisk Register

  4. UK Renal Data Collaboration Can we develop a project that better supports what we do:Care for patients data and info for patientsResearch basic and epidemiology, traditional & novelTeach & learnRun the servicesQuality improvement units could devolve some QI to the registries prompts (Tx list), trends (infections) ...

  5. UK Renal Data Collaboration RenalUnits .

  6. UK Renal Data Collaboration RenalUnits Labs .

  7. UK Renal Data Collaboration RenalUnits Labs NHSBT OtherNational data .

  8. UK Renal Data Collaboration RenalUnits RPV Labs UKRR SRR RaDaR NHSBT BAPN OtherNational data .

  9. hard to managewasteful summarised data can’t be recovered perpetuates errors some unknown >> biaseg RRT start date & unit lost in transferinflexible…

  10. UK Renal Data Collaboration RenalUnits Patient sees~all their data RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps NHSBT BAPN OtherNational data .

  11. UK Renal Data Collaboration RenalUnits Patient moves renal unit RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps NHSBT BAPN OtherNational data .

  12. UK Renal Data Collaboration NHS net firewall RenalUnits RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps BAPN NHSBT OtherNational dataHES, RGOS ... other Warehouse data viewable Primary careeg drug prescription . ukrdc_it_09b 17022013

  13. UK Renal Data Collaboration Prerequisites: Use1) NHS and CHI numbers for patient id2) real time comprehensive electronic records3) national & international terminologies SNOMED CT, DM&D, eBNF, NLMC4) information standards eg FHIR from HL7 Need firm lead from RAs and CDsRelevant to clinical governance if we hope to useIT to address eg CV catheter infection

  14. Clinical terminology –SNOMED CTUK Renal Terminology CommitteeMembership and expert Guidance from Professional Terminologists from HSCIC UK Renal diagnosis subset Good links with ERA-EDTA Need good SNOMED CT interface in Renal Units(paper to be issued by HSCIC)Hospitals not encouraging use ?because paid by ICD9/10No Teaching about it in Universities, Colleges and Professional associations

  15. National Laboratory Medicine Catalogue(cross referenced to SNOMED CT)

  16. National Laboratory Medicine Catalogue(cross referenced to SNOMED CT) PTH urate, Hb

  17. UK Renal Data Collaboration Information Model Presented by Peter Nicklin, HSCIC, 7th June 2013

  18. UKRDC Data Model – big picture

  19. UKRDC Data Model – bigger picture

  20. UKRDC Data Model – some headings

  21. External Collaboration 1) UK Renal IT suppliers 2) Health and Social Care Information Centre member of renal terminology committee SNOMED CT, Drugs Medicines & Devices data model data transfer scheme advice on warehouse 3) Royal College of Pathologists & DoH NLMC 4) Senior trainee interested in participating

  22. UK Renal Data Collaboration NHS net firewall RenalUnits RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps BAPN NHSBT OtherNational dataHES, RGOS ... other Warehouse data viewable Primary careeg drug prescription . ukrdc_it_09b 17022013

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