Trisha Paul. What are Illness Narratives?. “Expressions of the experience of being ill” Can take many forms (art, film, dance, etc.) Can be told from a variety of perspectives (Health professionals, loved ones, etc.). Literary Illness Narratives about Cancer. The Idea.
(Health professionals, loved ones, etc.)
“Sometimes I feel like this experience will never end. But I know it will. Having my friends makes me want to keep on going. Friends are forever.”
“A picture that shows my mind when it is confused.”
“This is how I feel about what has happened to me.”
“The necklace is mostly blue because our planet is mostly water, then green for all plant life and finally the smallest…the white for ALL living creatures, including human beings, because we need to remember how small we really are in the whole scope of things”
1. How does this activity make you feel?
2. Does writing make you feel better? Why?
3. Which form did you prefer?
4. Why did you prefer this method?
Narrative medicine is an ever-growing field. In what ways can technology be incorporated in this field, and with what implications?
How can these narrative understandings be implemented for educational and training purposes of health care professionals?
How can we raise awareness of narratives amidst the health system?
How could we spread this awareness of narratives globally? How can technology play a role in this?
What are the sensitivities we need to consider in sharing these personal stories?