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An introduction to PAMIS Scottish Wheelchair Forum 27 th January 2005 Loretto Lambe Director, PAMIS

An introduction to PAMIS Scottish Wheelchair Forum 27 th January 2005 Loretto Lambe Director, PAMIS. pamis. PAMIS is a voluntary organisation & registered charity based in Scotland Our Head Office is in the White Top Research Unit, Faculty of Education & Social Work, University of Dundee

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An introduction to PAMIS Scottish Wheelchair Forum 27 th January 2005 Loretto Lambe Director, PAMIS

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  1. An introduction to PAMIS Scottish Wheelchair Forum 27th January 2005 Loretto Lambe Director, PAMIS

  2. pamis PAMIS is a voluntary organisation & registered charity based in Scotland Our Head Office is in the White Top Research Unit, Faculty of Education & Social Work, University of Dundee PAMIS is a member of the Scottish Consortium for Learning Disabilities

  3. pamis We work in partnership with people with profound & multiple learning disabilities, their families and professionals PAMIS has offices in Fife, Glasgow, Grampian, Highland, South Lanarkshire and Tayside

  4. PAMIS Values • people, not disabilities, first • equality of opportunities care for all, regardless of disability • recognition of the experience and expertise of family carers • parent/professional partnerships

  5. Craig

  6. Jennifer

  7. Gillian

  8. Putting a lot into life…….

  9. What is ‘Profound & Multiple Learning Disabilities? ‘ • Profound intellectual disabilities • Physical disabilities • Sensory impairments • Complex healthcare needs

  10. What is ‘Profound & Multiple Learning Disabilities? ‘ Physical Disabilities most people with PMLD use a wheelchair - often a very specialist one. many havecerebral palsy musculo-skeletal problems eg, contractures & scoliosis and very limited movement

  11. Moving and Handling - Hoists

  12. What is ‘Profound & Multiple Learning Disabilities? ‘ Communication Difficulties • Most people with PMLD have no speech – or only a few single words • Some are able to use some signs or symbols - Makaton, Boardmaker or SignAlong • People make their likes and dislikes known through expressions, behaviour and body-language

  13. What is ‘Profound & Multiple Learning Disabilities? ‘ Complex Health Care Needs • Epilepsy – around 2/3 of people with PMLD • Chronic respiratory difficulties – chest infections, asthma etc • Gastro-intestinal difficulties – eating and drinking issues, swallowing problems, nutritional and weight issues

  14. What does PAMIS do? PAMIS offers families • information & advice • one-to-onesupport • sharing experiencesand working with other families in similar circumstances • training– an extensive workshop programme on a range of topics

  15. What does PAMIS do? and also… • participation in active campaigns for better opportunities and services • involvement in consultation on relevant policies at local and national levels • a range of projects & initiatives • partnership working to raise awareness of the needs of children and adults with PMLD and their families

  16. Support to individual families PAMIS offers families • home visits to discuss concerns and priorities • information and support • help with getting better services • support at key meetings

  17. Special Interest Groups: Parents & Professionals Thegroups provide members with a regular chance to: • get together – around every 2 months • share information, experiences and concerns • plan how to influence services and bring about change • The Groups are also consulted about PMLD • matters by professionals who make decisions

  18. PAMIS Projects & Iniatives • Empowering Families Project • Leisure for All • Multi-sensory storytelling • Access to the Curriculum • Futures – supporting young people through transition • Library & Information Resource

  19. Workshops - training programme for families & carers • deal with topics families tell us are important • are run in partnership with experienced professionals who act as tutors • include practical sessions to practice skills or try out equipment • provide a written information pack to keep • no charge, transport and translation is provided as required

  20. Workshop Topics have included • Oral care – healthy teeth and gums • Eating and drinking issues • Managing difficult behaviours • Moving and Handling Awareness • The Adults with Incapacity Act (2000) (with a follow-up legal clinic) • Negotiation and decision-making skills • Vision

  21. Moving & Handling Awareness

  22. Families Speak Up • local working & planning groups and conferences • Scottish Consortium for Learning Disability • the Scottish Parliament & Cross Party Group on LD • the Scottish Executive and NHS Health Scotland • training: student teachers, nurses, social workers • national conferences • on video/DVD

  23. A better life

  24. Contact details PAMIS White Top Research Unit Springfield House University of Dundee Dundee DD1 4JE Tel: 01382 345 154 Email: pamis@dundee.ac.uk Web: www.dundee.ac.uk/pamis

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