An introduction to pamis scottish wheelchair forum 27 th january 2005 loretto lambe director pamis
Download
1 / 24

An introduction to PAMIS Scottish Wheelchair Forum 27th January 2005 Loretto Lambe Director, PAMIS - PowerPoint PPT Presentation


  • 122 Views
  • Uploaded on

An introduction to PAMIS Scottish Wheelchair Forum 27 th January 2005 Loretto Lambe Director, PAMIS. pamis. PAMIS is a voluntary organisation & registered charity based in Scotland Our Head Office is in the White Top Research Unit, Faculty of Education & Social Work, University of Dundee

loader
I am the owner, or an agent authorized to act on behalf of the owner, of the copyrighted work described.
capcha
Download Presentation

PowerPoint Slideshow about 'An introduction to PAMIS Scottish Wheelchair Forum 27th January 2005 Loretto Lambe Director, PAMIS' - bing


An Image/Link below is provided (as is) to download presentation

Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author.While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server.


- - - - - - - - - - - - - - - - - - - - - - - - - - E N D - - - - - - - - - - - - - - - - - - - - - - - - - -
Presentation Transcript
An introduction to pamis scottish wheelchair forum 27 th january 2005 loretto lambe director pamis

An introduction to PAMIS

Scottish Wheelchair Forum

27th January 2005

Loretto Lambe

Director, PAMIS


Pamis
pamis

PAMIS is a voluntary organisation & registered charity based in Scotland

Our Head Office is in the White Top Research Unit, Faculty of Education & Social Work, University of Dundee

PAMIS is a member of the Scottish Consortium for Learning Disabilities


Pamis1
pamis

We work in partnership with people with

profound & multiple learning disabilities,

their families and professionals

PAMIS has offices in Fife, Glasgow, Grampian,

Highland, South Lanarkshire and Tayside


Pamis values
PAMIS Values

  • people, not disabilities, first

  • equality of opportunities care for all, regardless of disability

  • recognition of the experience and expertise of family carers

  • parent/professional partnerships






What is profound multiple learning disabilities
What is ‘Profound & Multiple Learning Disabilities?

  • Profound intellectual disabilities

  • Physical disabilities

  • Sensory impairments

  • Complex healthcare needs


What is profound multiple learning disabilities1
What is ‘Profound & Multiple Learning Disabilities?

Physical Disabilities

most people with PMLD use a wheelchair - often a very specialist one.

many havecerebral palsy musculo-skeletal problems eg, contractures & scoliosis and very limited movement



What is profound multiple learning disabilities2
What is ‘Profound & Multiple Learning Disabilities?

Communication Difficulties

  • Most people with PMLD have no speech – or only a few single words

  • Some are able to use some signs or symbols - Makaton, Boardmaker or SignAlong

  • People make their likes and dislikes known through expressions, behaviour and body-language


What is profound multiple learning disabilities3
What is ‘Profound & Multiple Learning Disabilities?

Complex Health Care Needs

  • Epilepsy – around 2/3 of people with PMLD

  • Chronic respiratory difficulties

    – chest infections, asthma etc

  • Gastro-intestinal difficulties

    – eating and drinking issues, swallowing problems, nutritional and weight issues


What does pamis do
What does PAMIS do?

PAMIS offers families

  • information & advice

  • one-to-onesupport

  • sharing experiencesand working with other families in similar circumstances

  • training– an extensive workshop programme on a range of topics


What does pamis do1
What does PAMIS do?

and also…

  • participation in active campaigns for better opportunities and services

  • involvement in consultation on relevant policies at local and national levels

  • a range of projects & initiatives

  • partnership working to raise awareness of the needs of children and adults with PMLD and their families


Support to individual families
Support to individual families

PAMIS offers families

  • home visits to discuss concerns and priorities

  • information and support

  • help with getting better services

  • support at key meetings


Special interest groups parents professionals
Special Interest Groups: Parents & Professionals

Thegroups provide members with a regular chance to:

  • get together – around every 2 months

  • share information, experiences and concerns

  • plan how to influence services and bring about change

  • The Groups are also consulted about PMLD

  • matters by professionals who make decisions


Pamis projects iniatives
PAMIS Projects & Iniatives

  • Empowering Families Project

  • Leisure for All

  • Multi-sensory storytelling

  • Access to the Curriculum

  • Futures – supporting young people through transition

  • Library & Information Resource


Workshops training programme for families carers
Workshops - training programme for families & carers

  • deal with topics families tell us are important

  • are run in partnership with experienced professionals who act as tutors

  • include practical sessions to practice skills or try out equipment

  • provide a written information pack to keep

  • no charge, transport and translation is provided as required


Workshop topics have included
Workshop Topics have included

  • Oral care – healthy teeth and gums

  • Eating and drinking issues

  • Managing difficult behaviours

  • Moving and Handling Awareness

  • The Adults with Incapacity Act (2000) (with a follow-up legal clinic)

  • Negotiation and decision-making skills

  • Vision



Families speak up
Families Speak Up

  • local working & planning groups and conferences

  • Scottish Consortium for Learning Disability

  • the Scottish Parliament & Cross Party Group on LD

  • the Scottish Executive and NHS Health Scotland

  • training: student teachers, nurses, social workers

  • national conferences

  • on video/DVD



Contact details
Contact details

PAMIS

White Top Research Unit

Springfield House

University of Dundee

Dundee DD1 4JE

Tel: 01382 345 154

Email: [email protected]

Web: www.dundee.ac.uk/pamis


ad