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Where are we going wrong

Where are we going wrong. Journalists never tell what is oke (and many things go well )  no sensation??? is struggle for life so sensational ? S hare responsibilites between government , medical staff, patients and investers , but all have different agenda’s !.

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Where are we going wrong

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  1. Where are wegoingwrong • Journalistsnever tell whatisoke (and manythings go well)  no sensation???is struggle for life sosensational? • Shareresponsibilitesbetweengovernment, medical staff, patients and investers, but all have differentagenda’s!

  2. If wewould have communicated, thiswould not have happened You neverlistened to us

  3. Patient’sjourney:Care giversinvolved: average 20 until 1st T

  4. Patient’sjourney • Question of organisation: logistics • Structure • Process • Planning • Responsabilities • Possibilities • Competence

  5. Cancer care • Costoriented • Efficiency • Efficacy • >Cost- effectiveness • Outcomeoriented • Medical : • Survival • 30 daysmortalityaftersurgery • Patient oriented • Quality of life

  6. Elements of a quality system for care research organization professionals audit patients education

  7. National Regional Local individual Control signals and actions Information Levels of measures and influences European/international

  8. Patient’sjourney • Verycomplex • Manyplayers • Differentfocusses and definitionsconcerningwhatis right

  9. Number of available indicators by country for population based CRs N=13 of 86 Indicators: stage; delay of 1st treatment; compliance to guidelines

  10. Where are wegoing « wrong »? • Patient does not know where to go • No information available on which teams in whichhospitals are good in whichkind of cancer • BUT: whatis good?? • How to getaccess to the dedicated teams?(health care system)

  11. Where are wegoing « wrong »? • Cancer requests a multidisciplinaryapproachbetweenat least 5 different disciplines: • Radiologist • Pathologist • Surgeon • Radiotherapist • Medicaloncologist • How do theyworktoghether? Whoisresponsible for what? How is the communication betweenthem as the patient willbeinformed by at least 3 differentspecialists!!! How ispaid for what!

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