Serving patrons with developmental disabilities and the people that care and support them
Download
1 / 41

Serving Patrons with Developmental Disabilities (and the people that care and support them) - PowerPoint PPT Presentation

Serving Patrons with Developmental Disabilities (and the people that care and support them) Anne Dorsey Barrie Public Library, Adult Services Librarian Sambhavi Chandrashekar University of Toronto, PhD student February 01, 2007

loader
I am the owner, or an agent authorized to act on behalf of the owner, of the copyrighted work described.
capcha

Download Presentation

Serving Patrons with Developmental Disabilities (and the people that care and support them)

An Image/Link below is provided (as is) to download presentation

Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author.While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server.


- - - - - - - - - - - - - - - - - - - - - - - - - - E N D - - - - - - - - - - - - - - - - - - - - - - - - - -

Presentation Transcript


Serving Patrons with Developmental Disabilities (and the people that care and support them)

Anne Dorsey

Barrie Public Library, Adult Services Librarian

Sambhavi Chandrashekar

University of Toronto, PhD student

February 01, 2007

All pencil drawings are presented with permission from the artist Martha Perkse


To reach a port we must sail, sometimes with the wind and sometimes against it. But we must not drift or lie at anchor.

Oliver Wendell Holmes

All pencil drawings are presented with permission from the artist Martha Perkse


Purpose of this session

  • Recognize people with developmental disabilities as growing integral portion of library users

  • Acknowledge the efforts of librarians to work with people with developmental disabilities

  • Develop some skills necessary to serve people with developmental disabilities

All pencil drawings are presented with permission from the artist Martha Perkse


Definition of Developmental Disability

  • Cognition and perception problems

  • Communication

  • Behaviour

  • Motor functions

  • Chronic health problems

  • Multiple disabilities

All pencil drawings are presented with permission from the artist Martha Perkse


Prevalence of Developmental Disability

  • 3.5% of adults with a disability

  • Rates are projected to increase

  • Most common disability for infants/toddlers

  • Affects 25 times more than blindness

  • May be primary, secondary disability and/or a cluster of disabilities

  • Covers 300+ reasons

All pencil drawings are presented with permission from the artist Martha Perkse


Developmental Disability Terms

  • Mentally retarded

  • Mentally handicapped

  • Mentally disabled

  • Mentally disordered

  • Special needs

  • Cognitive disability

  • Intellectual disability

All pencil drawings are presented with permission from the artist Martha Perkse


Best Term?

  • Single term may not be achievable or desirable

  • Take cue from the individual or their caregiver

  • Term used by supporting agencies

  • Always “person first”

  • She/he has a developmental disability

  • Words mirror attitude and perception

All pencil drawings are presented with permission from the artist Martha Perkse


Sociopolitical/Historical Background

  • Prior to 1830s – Age of Restraint

    - Out of sight

  • 1830-50s - Asylums are built for mentally ill but soon fill up with DD people

  • 1876 – HRC in Orillia is the 1st exclusive institution; medical model prevails

All pencil drawings are presented with permission from the artist Martha Perkse


The paradigm shift

  • 1950s-70s – group homes and support

    for families

  • 1970s-2000 – tri-ministry services, cost efficient community living

  • 2000 and beyond – supported independent living, person-centered, full community participation

  • The Autism boom

All pencil drawings are presented with permission from the artist Martha Perkse


Legislation

Accessibility for Ontarians with Disabilities Act, 2005

Human Rights Code – provincial & federal

Ontarians with Disabilities Act

Lobbying

Community Living – local/province/federal

Parent groups

Lawyers & lawsuits

Education system

Because it’s the lawBecause we should

All pencil drawings are presented with permission from the artist Martha Perkse


Access

Confidentiality

Democracy

Diversity

Education & life-long learning

Preservation

Public good

Professionalism

Service

Social responsibility

Core values of librarianship

All pencil drawings are presented with permission from the artist Martha Perkse


The role of libraries

  • Person-centered approach to service

  • Access for all

  • Service to special populations

  • Library is reliable, unbiased, free source of information

  • Put mission statements, policies into practice

  • Educational agency within the community

All pencil drawings are presented with permission from the artist Martha Perkse


The bigger picture

  • The person with a developmental

    disability

  • Parents

  • Schools

  • Associations

  • Health care providers

  • Residential homes

  • Service providers

  • Employers

  • Students (high school, DSW, ECE)

All pencil drawings are presented with permission from the artist Martha Perkse


What is unique about the person with a developmental disability?

  • Life-span – age defiant

  • Don’t usually self-identify

  • Rely on others for support/advocacy

  • Limited opportunities – especially adults

  • Isolation

  • Communicationdifficulties

  • Social skills

All pencil drawings are presented with permission from the artist Martha Perkse


What is needed/wanted?

  • To be welcomed

  • To be treated as an individual

  • Access to all community activities

  • To be included (vs. integration)

  • To feel safe

  • Opportunity to make own decisions

  • To pursue individual goals

  • Freedom to choose programs/services

All pencil drawings are presented with permission from the artist Martha Perkse


What is needed/wanted?

  • Positive interactions with staff

  • Assistance in locating & retrieving materials

  • Reader’s Advisory – appropriate recommendations

  • Extra time and guidance

  • Age appropriate & ability appropriate

All pencil drawings are presented with permission from the artist Martha Perkse


How can we meet the need?

  • Soul searching

  • Library documents specifically includes DD

  • Assign a staff member to monitor/guide

  • Focus groups, surveys etc. with individuals, caregivers, local agencies etc.

  • Fill the gap

  • Promote inclusion & empowerment in all areas of library service

All pencil drawings are presented with permission from the artist Martha Perkse


Meeting the need

  • Investigate & research best practices

  • Service accommodations

  • Professional development

  • Partner, network, consult etc.

  • Move forward

  • Sphere of influence

All pencil drawings are presented with permission from the artist Martha Perkse


Collection Development

  • Public libraries often 1st point of contact

  • Current & accurate information serves a wide audience

  • Consider special or hybrid collections

  • Work with agencies – swap and/or house

  • Every library should have a basic current collection with a broad range of resources

  • General works

  • Specific works – Autism, Down Syndrome etc.

All pencil drawings are presented with permission from the artist Martha Perkse


Selection Questions

  • Is empathy promoted?

  • Is acceptance depicted?

  • Is success emphasized?

  • Are the images positive?

  • Will others gain understanding?

  • Is attitude “one of us” promoted?

  • Does language stress “people first”?

All pencil drawings are presented with permission from the artist Martha Perkse


Consider these:

  • High interest/low vocabulary

  • CD and text kits

  • Well-illustrated materials

  • Music collections

  • Audio collections

  • Interactive software

  • Video-recordings

All pencil drawings are presented with permission from the artist Martha Perkse


Evaluation of materials

  • Weeding policy

  • Evolution of DD philosophy – remember your user Bettleheim’s Empty Fortress

  • Seriously consider weeding anything earlier than mid-90s

  • Consult agencies re: weeding struggles

  • Valuable personal narratives

All pencil drawings are presented with permission from the artist Martha Perkse


Publishers Watch Alert!

  • Greenwood www.greenwood.com

  • Woodbine House www.woodbinehouse.com

  • Inclusion Press www.inclusion.com Toronto!

  • Jessica Kingsley Publications www.jkp.com

  • Remedia Publications www.rempub.com

  • James Stanfield www.stanfield.com

  • Tactile Vision www.tactilevisioninc.com

All pencil drawings are presented with permission from the artist Martha Perkse


Oh so brief suggestions!

  • High interest/low vocabulary – Sidestreets, Orca Soundings, Bayview High

  • Picture fiction books – well illustrated but lengthier text than pre-school picture books

  • Personal narratives and experiences

  • Rooster by Don Trembath; Different croaks for different folks by Midori Ochiai; Disabled fables

  • Reflections from a different journey: what adults with disabilities wish all parents knew by Stanley Klein

  • Periodicals – Exceptional Parent; Abilities

All pencil drawings are presented with permission from the artist Martha Perkse


Professional/Collection Development Tools

  • The Accessible Canadian Library II

  • Improving Library Services to People with Disabilities (2007)

  • Voices from the margins

  • Planning for library service to people with disabilities

  • Special needs reading list

  • Information services for people with developmental disabilities

  • Preparing staff to serve persons with disabilities

  • Guidelines for Library Services for People with Mental Retardation

All pencil drawings are presented with permission from the artist Martha Perkse


Sensitivity Training – Spinclusion, Kids Kit, Different Together

Displays, book reviews, pathfinders

Tap into familiar & knowledgeable staff

Liaison with community groups and school

Specific programs for DD and/or care circle

Signage – large, concise and simple

Volunteers

Co-op students

Community hours

Easy Low Cost Solutions

All pencil drawings are presented with permission from the artist Martha Perkse


Overview of technologies for patrons with developmental disabilities

Adaptive Technologies (AT) – definition

Needs assessment

Helping them use AT

AT options – Devices / Software

Library collections

Other services

Inclusion as a process in libraries

Resources for librarians

All pencil drawings are presented with permission from the artist Martha Perkse


Adaptive (Assistive) Technology (AT)

Definition of AT:

“Any piece of equipment or product system, whether acquired commercially, modified or customized, that is used to increase, maintain or improve the functional capabilities of individuals with disabilities”

Assistive Technology Act, 1998


Needs assessment for patrons with DD

Identification of patrons and their needs

Selecting supportive learning technologies

Support for multiple disabilities

Access to appropriate information

Support for caregivers

Access to information for caregivers

Need for training in use of technology


Helping use of AT by patrons with DD

Understand the patron’s needs & abilities

Use imagination in meeting needs with

available technology

Introduce a variety of technologies

Demonstrate & facilitate use of technology

Be patient; use brief verbal instructions

Provide encouragement

Build on their strengths


Adaptive Technology options - Devices

Hand-held magnifiers

Tape players

Daisy players

Audio amplification systems

CCTV

Alternative keyboards

Alternative monitors

Alternative mice


Adaptive Technology options - Software

Windows accessibility features

Scanning and reading - Kurzweill 3000

Text-to-speech - Dragon Naturally Speaking

Screen magnification - Zoom text

Screen reading - JAWS

Reading support - Kurzweill 1000

Numeracy/math support - Intellimath

Mind mapping - Inspiration

Writing - Write Out Loud


Library Collections

Audio book kits (tape + book)

Large print books

Captioned films and video

Digital books

Talking books

Adaptive toys


Other services

Providing materials in alternative formats

Accessible & usable library website

Online catalogue of materials & services

Special programs for caregivers

Special programs for patrons with DD

Partnering with disability organizations


Creating a successful AT program

Partnering with special needs educators

Needs analysis, procurement & installation

AT as part of “access for all” budget

Integration of AT with library services

Publicizing AT services availability

Building linkages with other libraries

Training and support for staff and users

Maintenance of AT


Inclusion in libraries as a process

Degree of access is a continuum

Sustained commitment is essential

Balance between accessibility and budget

More possibilities always exist in future

Sensitivity to the demography served

Requirement at policy level


Resources for librarians

ATRC - Adaptive Technology Resource Centre

- http://www.atrc.utoronto.ca

for consultation about AT

SNOW - Special Needs Ontario Window

- http://snow.utoronto.ca/

for special needs education resources


Speak directly & clearly to the person

Offer to shake hands

Identify yourself

Listen-speak-listen

Patience & respect

Eye contact-eye level

Show and tell – walk and talk – repeat

Relax and take your time

Ask for help if you are having difficulty understanding

Thanks and follow-up

Ten Commandments of Communication

All pencil drawings are presented with permission from the artist Martha Perkse


Developmental disabilities, libraries and their future

  • 2004 study of accredited library schools – zero education related to disabilities!!

  • Step 1 – educate librarians & educators

  • # of people with disabilities will increase = pressure to accommodate

  • Services and resources must be barrier free in all respects

  • Networking, partnerships –

    buzz words must be action words

All pencil drawings are presented with permission from the artist Martha Perkse


Pull up the anchor & set sail!

  • Need sincere goodwill

  • Self-regulation – there is no legislation, policy or procedure that can enforce attitude

  • Lessons learned by all are invaluable

  • What we make doable for all makes it possible for those with DD

  • Don’t despair – just set out do something

    Let the shameful walls of exclusion finally come tumbling down

    George H.W. Bush 1990


Thank you for your time and attention

Anne Dorsey

adorsey@barrie.ca

Sambhavi Chandrashekar sambhavi.chandrashekar@utoronto.ca

All pencil drawings are presented with permission from the artist Martha Perkse


ad
  • Login