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Centers for Disease Control and Prevention National Center on Birth Defects and Developmental Disabilities. Autism Spectrum Disorders Centers for Disease Control and Prevention. OSEP December 8, 2008. CDC Programs Specific to ASDs.

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Autism spectrum disorders centers for disease control and prevention l.jpg

Centers for Disease Control and Prevention

National Center on Birth Defects and Developmental Disabilities

Autism Spectrum DisordersCenters for Disease Control and Prevention

OSEP

December 8, 2008


Cdc programs specific to asds l.jpg
CDC Programs Specific to ASDs

  • Surveillance/Monitoring—Address questions on the prevalence/trends

  • Epidemiologic Research: Examine risk/protective factors

  • Prevention/Translation of Research— “Learn the Signs. Act Early.”


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CDC Establishing a Network to Monitor ASDs and other DDs in the United States

Washington

Maine

Montana

Vermont

Minnesota

North Dakota

Michigan

New

Hampshire

Oregon

Wisconsin

Massachusetts

South Dakota

Idaho

New York

Wyoming

Michigan

Rhode Island

Connecticut

Pennsylvania

Iowa

Nebraska

New Jersey

Nevada

Ohio

DC

Indiana

Delaware

Illinois

Utah

Maryland

West

Virginia

Colorado

California

Virginia

Kansas

Missouri

Kentucky

North Carolina

Tennessee

Arizona

Oklahoma

Arkansas

South

Carolina

New Mexico

Mississippi

Georgia

Alabama

Texas

Florida

Louisiana

Alaska

U.S. Virgin Islands

CDC

11 ADDM Sites 2006-2010 (10+CDC)

16 ADDM Sites 2001-2006 (15 +CDC)

Hawaii

Puerto Rico

Guam

+


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Surveillance Year 2002 the United States(8-year-olds born in 1994)

  • Sites represented approximately 10% of US 8-year-old children - 2,685 children were identified with an ASD.

  • The average prevalence across all sites was very similar to 2000 at 6.6 per 1,000.

  • There was also a range 3.3 (AL) to 10.6 (NJ) per 1,000 children

    Between 1:100 and 1:300 with an average of 1:150 children with ASD.


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Study to Explore Early Development (SEED) the United States

Multi-state collaborative study to help identify factors that may put children at risk for autism spectrum disorders and other developmental disabilities.

California, Colorado, Georgia, Maryland, North Carolina, Pennsylvania

Approximately 2,700 children, ages 2 to 5, and their parents will be part of this study.


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Research Areas Included the United States

  • Infection and immune function, including autoimmunity

  • Reproductive and hormonal features

  • Gastrointestinal features

  • Genetic features

  • Investigation of the broader ASD phenotype

  • Sociodemographic characteristics

  • Substance use, hospitalizations and injuries, sleep disorders, and mercury exposure


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Parent Education Campaign the United StatesDevelopmental milestones and early warning signs of delay

Every child should meet their full potential.


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Learn the Signs. the United StatesAct Early.

Parent education campaign

about developmental milestones

and warning signs of delay


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Campaign Objectives the United States

  • Increase AWARENESS of developmental milestones and early warning signs

  • Increase KNOWLEDGE in the benefits of early action and early intervention

  • Increase parent-provider DIALOGUE on the topic of developmental milestones and disorders

  • Increase EARLY ACTION on childhood developmental disorders


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Communication the United StatesLearn the Signs.


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Target Audiences the United States

  • Health Care Professionals (HCPs)

    • Pediatricians, family physicians, physician assistants, nurse practitioners, nurses, and others

  • Parents of Young Children

    • Ages 4 and younger

  • Early Educators (EEs)

    • Preschool teachers, day care providers, and others


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Campaign materials the United States


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Mobilization the United StatesAct Early

Catalyst in helping parents and professionals to learn the signs and act early


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Act Early Regional Summits the United States

Bringing together key stakeholders in states to improve early identification and early intervention.


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2007-2008 Act Early Regional Summits the United States

Region V – “Creating Medical Home Solutions for Individuals with Autism,” December 2007

Region VII Summit (Iowa, Kansas, Missouri and Nebraska) - Kansas City, MO February 2008

Region VI Summit (Arkansas, New Mexico, Louisiana, Oklahoma, and Texas) - Albuquerque, NM March 2008


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Proposed outcomes of the Act Early Regional Summits the United States

  • Increase awareness of Learn the Signs. Act Early, campaign and its impact in target regions

  • Develop common understanding among stakeholders of opportunities, challenges and barriers to early identification and diagnosis

  • Enhancing partnerships at the federal level (CDC, HRSA, AUCD)


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Proposed outcomes of Regional Summits the United States(continued)

  • Develop state teams to initiate and/or enhance state wide early identification, diagnosis and service provision and coordination for families with ASD

  • Create national web-based forum to disseminate promising evidence-based practices for stakeholders to use to develop innovative approaches in their states


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Future plans the United StatesAct Early activities

  • AUCD and HRSA

    • 2009 Act Early Regional Summits

  • AUCD

    • Act Early fellow

    • Collaborative Research Awards

    • Research Topics of Interest – Developmental Screening


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Questions? the United States

www.cdc.gov/actearly

www.cdc.gov/autism

[email protected]

The findings and conclusions in this presentation

are those of the author and should not be construed

to represent any agency determination or policy.


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