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SARC Business Meeting. November 2005. Trial Update. SARC 001 Gleevec Closed to accrual Outstanding data Requests SARC 002 STS/gem-txt Closed to accrual Outstanding data Requests. IRB/Contracts Mayo MDAnderson 5 NCI 3 Ortho Hosp Penn Univ of MI 2 Wash Cancer 1 Yale 1.

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SARC Business Meeting

November 2005


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Trial Update

  • SARC 001 Gleevec

    • Closed to accrual

    • Outstanding data

    • Requests

  • SARC 002 STS/gem-txt

    • Closed to accrual

    • Outstanding data

    • Requests


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IRB/Contracts

Mayo

MDAnderson 5

NCI 3

Ortho Hosp

Penn

Univ of MI 2

Wash Cancer 1

Yale1

Contracts

Partners

Emory

Univ Florida

Neither

MSKCC

Seattle

UCLA

Univ Toronto

Moffitt

Trial UpdateSARC 003 bone/gem-txt


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Trial UpdateSARC 004

  • DFSP/Gleevec

    • University of Michigan

    • Seattle

    • Partners

    • MSKCC

    • MDAnderson


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SARC 005

Adjuvant uterine/ gem/txt

IRB approval pending from MSKCC

Contracts

Database development

GOG

SARC 006

MPNST

DoD

Database development

Trial Update


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Data capture

Web based

Ongoing training for data quality

CACR

Center for the Advancement of Clinical Research

Michigan

Drug distribution

Centralized pharmacy

Reputation for quality

Biologics

North Carolina

Trial Support


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Location

  • Rented office space

    • Dominos Farms

      24 Frank Lloyd Wright Dr

      Ann Arbor, MI


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Employees

  • Administrative assistant

    • Barb Thibert

  • Accountant

    • Keith Locke

  • Research Project Manager

    • Emily Hollenberg, RN, MPH


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Finances

  • Income (from inception 11/03)

    • $505,156

  • Expenses (from inception 11/03)

    • $192,202


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Finances

  • Income (by category)

    • Biannual meeting $ 15,000

    • Donations $ 20,000

    • Guideline Translation $ 25,000

    • Primary Vascular $ 4,300

    • Rosenfeld Symposia $ 50,000

    • SARC 002 $ 92,356

    • SARC 003 $ 40,000 ($ 78,000)

    • SARC 004 $ 25,000

    • Scientific Symposia $133,500

    • Website Development $100,000

      $505,156


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Finances

  • Expenses (by category)

    • Biannual meeting $ 17,871

    • Operating expenses $ 49,650

    • SARC 002 $ 52,332

    • SARC 003 $ 40,229

    • Scientific symposia $ 31,942

    • Website development $ 180

      $192,202


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Executive Committee

  • Monthly calls

  • Review all trials

  • Discuss protocols in development


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Board of Directors

  • Annual Meeting

    • November 18,2005


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Development Subcommittee

  • Members

    • Deborah Buks

    • David Marsh

    • Tim McCormick

    • Charles Nearberg

  • Activities

    • Discuss strategies

    • Evaluate potential opportunities


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David Marsh

Eugene and Maxine

Rosenfeld


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Ann Foote-Primary Vascular Sarcoma Fund

Paul Corliss

The Silver Fox Club contributes 10 percent of its sales to helping those with sarcoma cancer, which has affected the founder’s wife.

Out Fox Sarcoma


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Development

  • Meeting with Dr. Doroshow

  • Utilize website

  • RO1 application

  • Continue to explore additional funding opportunities


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Website Development

  • Proposal from

    Altum/CommonHealth


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Website

  • Destination for sarcoma clinical trials

  • Source of information

    • Physicians

    • Patients and families

  • Emphasize credibility

  • Call to action

    • Clinical trials

    • Support

  • Link with other sites


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Guideline Translation

  • Nancy Leahy

  • Laura Zyczynski

  • Jenni Heaton

  • Joan Giblin

  • Kelly Scheu

  • Linda Sohn

  • Monica Davey

  • Lauren Long

  • Donna Bernstein

  • Terri Armen

  • Carolyn Hayes

  • Denise Parker

  • 7 pending


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  • New Business

  • Future directions

    • Developmental therapeutics

    • Launch website

      • Maximize

        • Clinical trial awareness

        • Education

        • Outreach

    • Partnering


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