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Learn about Braille Institute's initiatives targeting visually impaired Latinos with diabetes in urban, suburban, and rural areas of California. Gain insights into collaborative approaches and culturally sensitive care for this population.
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El Poder Sin Ver: Ability Without Sight Initiatives to reach Latino People with low vision
Presented By: • Adama Dyoniziak, MPH, CPH Director of Strategic Programs, Braille Institute, Los Angeles • Lynn Dubinsky, MA Adult Programs Manager, Braille Institute, Santa Barbara • Rosie Rascon, BS Independent Living Skills Instructor, Braille Institute, San Diego
Learning Objectives • Learn steps to success in working with the visually impaired Latino population in urban, suburban, and rural areas • Gain cultural competencies with regards to working with the Latino population
Braille Institute Latino Initiative • Braille Institute is a private, non-profit organization whose mission is to eliminate barriers to a fulfilling life caused by blindness and severe sight loss • Strategic Plan: Focus new services to the underserved segments of the population, particularly the Latino communities using a public health model • Five centers in Southern California – each has its specific population and needs
Statistics: Diabetes • Diabetes 7th leading cause of death in general US population; 5th leading cause of death in Latino population, and leading cause of visionloss • US population 65 years+ expectedtoincrease 93% overthenext 3 decades; US Latino elderlypopulationwillincreaseby 555% (2001, HealthIssues in the Latino Community) • Estimatedprevalence of DiabeticRetinopathyforpeople 65+years in the US is 11% (2004, Archives of Opthalmology, Vol 122) • Total prevalence of diagnosed & undiagnosed diabetes amongMexicanAmericansis 23.9% (vs Whites 12%) • 7.8% of alladults in California have diabetes; 9.2% of Latino adults in California have diabetes (2010, UCLA Center forHealthPolicyResearch)
Collaborative Approaches • Partnership development builds infrastructure • Build trust…warm up the crowd…get commitments • One legitimate contact gets your foot in the door • Build momentum through a community outreach process • Consistent follow-up to maintain credibility & program viability
Urban Areas: East Los Angeles • Los Angeles’ Latino population increased 11% in the past decade • 48-97% geographically dense Latino enclaves • Los Angeles has the largest number of people with diabetes in California: 642,000 residents
Urban Areas: East Los Angeles • Partners: Vision y Compromiso, American Diabetes Association • Contracts: AltaMed Health Care Services, Harder+Co Community Research, RL Public Relations • Clinics, evaluation, public education campaign
Promotoras, or Health Promoters • Grass roots health educators used in Latino countries for a myriad of health and community interventions • Add a personal and informal style to health care • Bridge the gap between providers and the community
Promotoras • known grass roots leaders in their communities • majority are members of the target population • culturally competent: language, customs, understand and live the values of the community they serve • trained to facilitate individual, family or small group health education • work in a multidisciplinary approach
Suburban, Urban, & Rural Areas: California South Central Coast
Suburban, Urban, & Rural Areas: California South Central Coast • Santa Barbara (43.4%), Ventura (40.9%), & San Luis Obispo (21.3%) Counties (2010 Census) • Sansum Diabetes Research Institute • La Casa de la Raza: Latino Community Center • Neighborhood clinics & farmers’ markets
Suburban & Urban Areas- San Diego • 113,000+ San Diegans have diabetes; over half are Latino (National Diabetes Stats) • 28.8% (376,000) of San Diegans are Latino (City-data.com)
Suburban & Urban Areas: San Diego • Partners: La Maestra Clinic, Family Health Centers • Gap in Diabetic education: eye component • Outcomes: retinal exam grant funding, systems change
Culturally Appropriate • Culture is more than race and ethnicity • Socioeconomic status or class • Urban, suburban, or rural community • Religious traditions and beliefs • Parents’ level of education • Length of residency in the US assimilation level • Language and traditions of their country of origin • Culturally appropriate means considering how all of these factors will affect participants’ experiences in the program or curriculum.
Culturally Sensitive • Culturally sensitive care targets the entire person not just his or her physical ailment • Recognize, understand, respect, and respond to the client’s cultural convictions. • Success requires patience, a willingness to listen carefully, and a respect for cultural diversity
Culturally Competent • Awareness of one's own cultural worldview • Personal Attitude towards cultural differences • Knowledge of different cultural practices and worldviews • Cross-cultural Skills • The culturally competent organization fosters a culture of openness and respect, and is committed to: • serving diverse clients, • hiring diverse staff, and • establishing programs that address the needs of different client populations.
Cultural Values • The Latino family is an interdependent and interactive kin network that allows for mutual and reciprocal help among its members • Some relevant values include: colectivismo, familismo, simpatía, respeto y confianza, machismo, presentismo, amistad
Colectivismo, or Collectivism • The emphasis is on the needs, objectives, and points of view of the group vs the individual • Interdependence within a group has higher priority than independence of the individual
Familismo, or Familialism • This value fosters strong identification with and attachment to the nuclear and extended families and feelings of loyalty, reciprocity, and solidarity among family members • Value facilitates a natural network of support and a structure for sharing successes and failures
Simpatía, or Avoiding Conflict • This value stresses the importance of avoiding conflicts and promoting behaviors that foster pleasant social interactions • People may agree to participate in workshops and never attend because initially saying no would create a conflict • Participants want to comply with provider suggestions so they will agree with a provider - but the suggestions may not be compatible with what the participant believes or what they are able to do • Providers who form relationships with participants need to converse about topics important to participants, although this may be unrelated to the services
Simpatía • Participating in non-traditional activities ie., Zumba, eating Three Kings Bread • No shows for workshops or events
Respeto (Respect) y Confianza (Trust) • Latinos are high power-distance individuals in that they value conformity and obedience and support authoritarian attitudes • These individuals include those with more education and greater wealth, or greater experience • The cultural tendency to encourage respect for authority and to discourage disagreement is even more pronounced if a provider is perceived as more powerful
Respect and Trust • Instructors or other professionals are referred to as Doctora or Maestra • Can lead to fear of authority, especially institutes or governmental-like organizations
Machismo, or Gender Roles • Traditionally, Latino men are more dominant and are more likely to assume financial responsibility for elderly parents, and other family members • Latino women are expected to be submissive, passive, selfless and home centered and are more likely to assume caretaking roles for the extended family
Machismo • Males are less likely to ask for help • Latino men may avoid “learning” activities if they perceive it as threatening their control or dignity, or indicates that they have flaws or weaknesses.
Presentismo, or Time Orientation • Future oriented: planning, delayed gratification, punctuality, efficiency • Present oriented: less able to delay gratification, less able to plan for the future, place less emphasis on punctuality and efficiency • Latinos are more likely to be present oriented, valuing the quality of their interpersonal relationships rather than the length of time of an interaction • Latinos may be dissatisfied with the inflexibility and rigidity of time devoted to issues based on efficiency; providers may be frustrated with the inability to provide a complete service because of less planning by the participant
Time Orientation • Being late as rude vs handling practical matters • Have a time cushion • Take time to warm up the group
Amistad or Social Warmth • Latinos need less physical space when interacting socially, and is a sign of being demonstrative and responsive with the person you are interacting • Latinos may view providers of other ethnic groups as impersonal or distant when they need more space; while non-Latinos may view Latinos as emotional or too personal in a professional setting
Social Warmth • When teaching a class, students often socially embrace the instructor or offer food
In Conclusion • Your agency cannot be “outside” the community trying to get “in” and provide services. • Be a legitimate part of the community with people and organizations being aware, taking part in, and referring to your services. • Be integral to the community’s success because they are integral to your success.
For More Information • 1-800-BRAILLE (1-800-272-4553) Monday - Friday, 8:30am - 5 pm • access our website http://www.brailleinstitute.org • Se hablaespañol