“ Who We Are”

1. “Who We Are”

2. Objectives From this webinar we hope you will be able to: Define the role of ESRD networks Discuss the different departments of NW 14 and their responsibilities Describe the function of the Patient Advisory Council (PAC) and the importance to patients.

3. ESRD Network of Texas“Who We Are” webinar • Glenda Harbert, Executive Director • Kelly Shipley, Quality Improvement Director • Nathan Muzos, Information Management Director • Debbie O’Daniel, Office Manager • Angie Wieler, Quality Improvement Coordinator • Treneva Parks, Patent Services Coordinator • Andrea Fichtner, Outreach Coordinator • Doris Wilson, Data Clerk/Receptionist • Leigh Husni, Special Projects • Carolyn Atkins, Quality Improvement Nurse • Kathleen Prewitt, Data Clerk • Grant Kingsley, Social Worker

4. What about ESRD Networks? There are 18 across the US Texas is #14

5. ESRD Network Program • Established in 1978 by Congress • Currently 18 Networks • NW 14 is and most NW’s are non-profit organizations governed by volunteers from the renal community • 3-year contracts with Statement of Work defined by CMS • Funding from 50 cents withheld per treatment • www.esrdnetworks.org

6. Goals For the ESRD Networks • Improve quality and safety of dialysis related services • Improve independence, quality of life and rehabilitation (to the extent possible) through transplantation, use of self-care modalities, in-center self care through end of life • Improve collaboration with providers to ensure achievement of goals through most efficient and effective means possible, recognizing differences and associated possibilities/capabilities

7. Goals For the ESRD Networks • Improve collection, reliability, timeliness, and use of data to measure processes of care and outcomes; maintain patient registry • Improve patient perception of care and experience of care and resolve patient’s complaints and grievances

8. Mission Support quality dialysis and kidney transplant healthcare through patient services, education, quality improvement and data exchange.

9. ESRD Network of Texas Volunteer Boards/Committees Executive Committee Nephrologists Nurse Facility Administrator Patient Nephrologists Dialysis and Kidney Transplant Patients Transplant Surgeons Nurses Dietitians Social Workers Medical Review Board Patient Advisory Committee In-Center Hemo Peritoneal Dialysis Transplant Caregivers

10. End Stage Renal Disease Network of Texas Committees Nephrologists Ruben Velez, MD, Chair Robert Hootkins, MD, Chair Emeritus Donald Molony, MD Clyde Rutherford, MD Mohanram Narayanan, MD Navid Saigal, MD Mazen Arar, MD Samhar I. Al - Akash, MD Transplant Surgeon Osama Gaber, MD Greg Jaffers, MD Technician John Dahlin Medical Review Board Nurses Camille May, RN, CNN Kaylynne Duran, RN Trish White, RN, CNN Debbie Heinrich, RN, CDN Dietitians Jane Louis, RD, LD Jennie House, RD, LD Social Workers Mary Beth Callahan, LMSW Martha Donaho, LMSW Patients Anna Gonzalez Diane Morgan Executive Committee Melvin Laski, MD, Chair Manny Alvarez, MD, Chair Elect Richard Gibney, MD, Chair Emeritus Robert Hootkins, MD Larry McGowan,BA Laura Yates, RN,CNN Leigh Anne Tanzberger Charles Orji, MD

11. The 18 ESRD Networks serve • 386,940 living dialysis patients as of 12/31/2006 • 4,886 Home Hemodialysis • 29,335 Peritoneal Dialysis • 199,419 new patients in 2009 • 5,580 dialysis and 244 transplant facilities

12. 37,595 patients at the end of March 2011 • 505 dialysis and 23 transplant facilities • 8 Full time and 4 part time staff ESRD Network of Texas also known as Network 14

14. The ESRD Networks Provide... • Information Management • Quality Improvement • Community Information and Resources • Patient Services • Administrative

15. Information Management (Data ) Department • Maintaining national ESRD registry • 2728 Medical Evidence Form • Patient Activity Roster • 2746 Death Form • 2744 Facility Survey • Facility information/services • Reporting to the renal community on trends in ESRD care

16. Quality Improvement Department • Collecting and Distributing data feedback reports to facilities • Clinical Performance Measures • Quality of Care Indicators Report • Transplant Rates • Vocational Rehabilitation Rates • Dismissed Patients/Complaints • Conducting QI projects and activities on specific areas of care • Fistula First Project • Clinical Performance Measures (CPM) • Dismissed Patients Initiative • Transplant education/encouragement initiative

17. Quality Improvement Department • Providing professional education • Annual meeting • Fistula First Conferences • Professionalism, DPC • Offering technical assistance to facilities • QI In-services/Audits/Tools • Data form completion Workshops • Community Practice • Difficult Patients/Situations • Rules/Regulation

18. Patient Services Department • Resolving complaints • Providing patient education • Assisting patients to locate dialysis services

19. Community Outreach Services • Patient Newsletters • Professional Newsletters • Disaster Coalition • Outreach to Patient and Professional Organizations • Patient Advisory Committee (PAC) liaison • Network Patient Representative (NPR)

20. Administrative Department Information on other Networks Assistance with Federal and State rules and regulations Department handles accounting issues, purchasing, Network office equipment repairs, Network staffing issues (Human Resources) Information on opening of new facilities Media request and legal issues

21. We’re Here to Help ESRD Patients and Facilities! • Questions or Concerns • Patient Education Resources • Professional Education Resources • Assistance – Completing Forms • Clearinghouse and Referrals! • Assisting with patient and/or facility concerns, complaints, or grievances.

23. Patient Advisory Committee Gloria Lang-Jones, Chair, San Antonio, Texas Jorge Garcia, Chair Elect, McAllen, Texas Ana Rodriguez, Secretary, Kyle, Texas Dianne Thomas, Activities Coordinator, Dallas, Texas Frances Carroll, Lubbock, Texas Gigi Cooper, Houston, Texas Anna Gonzalez, San Antonio, Texas Danny Knight, Waxahachie, Texas Perry Sanders, Arlington, Texas Leigh Anne Tanzberger, Sugar Land, Texas Linda Thompson, Yorktown, Texas Lesia Timmons, Tyler, Texas

24. Please welcome Ana Gonzalez, past PAC chair

25. Please welcome Danny Knight PAC Member-At-Large

26. How do I become a PAC member • Send a letter of interest to the Network office • AND • Have your facility Social Worker, your facility administrator, OR your Nephrologist send the Network office a letter of recommendation

27. The ESRD Network of Texas, Inc. 4040 McEwen Rd, Suite 350 Dallas, Texas 75244 972-503-3215 * Fax 972-503-3219* Patient Toll Free Number 1-877 886-4435 info@nw14.esrd.net * www.esrdnetwork.org