National Dementia Strategy ‘We are in it together’ East Midlands Annette Lumb and Jillian Guild

1. National Dementia Strategy‘We are in it together’East MidlandsAnnette Lumb and Jillian Guild

2. Building the Regional Support Team Improvement Programme for the East Midlands Annette Lumb Jill Guild Social Care Programme Lead NHS Programme Lead EM Department of Health EM Strategic Health Authority

3. Our goal for the East Midlands 2009-2014 Improve awareness of dementia Diagnosis is made early to allow for intervention Deliver high quality care and support for those with dementia and their carers 2009-2010 Implement regional collaborative programme across 5 sub-localities Improvement Programme for the East Midlands

4. Improvement Programme for the East Midlands What have we been doing since the launch in February 2009?

5. Improvement Programme for the East Midlands “We are in it together” East Midlands Joint Improvement Partnership (JIP) Executive Board Chair: Mick Connell, Leicestershire County Council East Midlands Joint Improvement Partnership (JIP) Executive Board Chair: Mick Connell, Leicestershire County Council East Midlands JIP and Early Intervention Programme Board Board Chair: David Pearson, Nottinghamshire County Council East Midlands JIP and Early Intervention Programme Board Board Chair: David Pearson, Nottinghamshire County Council Next Stage Review Mental Health Reference Group Service Users, Families & Carers Service Users, Families & Carers Regional Dementia Strategy Delivery Group Board Chair: Ian Howarth, Regional Manager Alzheimer's Society Regional Dementia Strategy Delivery Group Board Chair: Ian Howarth, Regional Manager Alzheimer's Society Local Collaborative Site Derbyshire Local Collaborative Site Derbyshire Local Collaborative Site Leicestershire Local Collaborative Site Leicestershire Local Collaborative Site Northamptonshire Local Collaborative Site Northamptonshire Local Collaborative Site Lincolnshire Local Collaborative Site Lincolnshire Local Collaborative Site Nottinghamshire Local Collaborative Site Nottinghamshire

6. Improvement Programme for the East Midlands Regional Dementia Delivery Group: We need a new one ! = Sponsor Ian Howarth Alzheimer's Society = Chair Different stakeholders such as people living with dementia and their families and carers, commissioners from health and social care, providers from public, independent and third sector and clinicians

7. People and their carers living with dementia

8. Diagnostic: Data information packs Diagnostic Screening Tool Semi-Structured and Discovery Interviews Regional Workshops to create: A care pathway A joint commissioning strategy Regional Vision event: Inspired local people to act developed a shared vision Designed what services could look like Shared stories about living well with dementia Master Classes to support: Develop joint commissioning strategy Develop costed plans Develop business cases System Dynamic Modelling Improvement Programme for the East Midlands Collaborative Programme

9. East Midlands Dementia Strategy: Programme Overview 2009 /10 Master Class Master Class • Workshops • Diagnostic • Analysis • Develop New Pathway • Refine New Pathway • Implementation Regional Summit Draft Commissioning Strategy Costed Plan Purchasing Plan PHASE 2 WORKSHOPS Data, Research and Analysis Group Agreed Commissioning Strategy Business Cases Implementation of Service Improvement Priorities Data Collection Packs Diagnostic Screening Tool Master Class Semi Structured & Discovery Interviews PHASE 1 PHASE 2 PHASE 3 PHASE 4 PHASE 5 Regional Regional Sub - Locality Level

10. National Audit Office GP SurveyResults January 2010 Aim of the survey was to: • Get GP’s views on the National Dementia Strategy (NDS) • What extent GP’s involvement in the NDS • GP’s attitudes towards dementia • GP’s knowledge of dementia

11. Results • 1001 GP’s responded to the survey • At least 5% from each of the 10 English SHA’s • Majority of the GPs that responded qualified after 1990

12. Results cont. Positive shift in attitude • 80% agreeing that it is important to actively look for early signs of dementia • Slight improvement in GP’s attitudes towards dementia management from 2006-2009

13. Results cont. • 71% they were confident in diagnosing • 58% confident about giving advice • 73% GPs felt lack of time was why they could not do enough for people with dementia • 69% GPs felt that they was a lack of social care support services to their practices • GPs had most difficulty with coordinating support services for carers and people with dementia

14. Results cont. • 57% GPs still unaware of local care pathways • 90% have a QoF register for dementia patients • 80% of those registers prompt to review the patient regularly • Reviews – 54% are a general health check • Only 12% are on assessment of need

15. Results cont. • 38% did not know about the strategy • 88% are not familiar with the strategy • 1.5% were involved in National Dementia Strategy consultation • 13% GPs had personally implemented change • 87% had done nothing • 18% of GPs reported that their discussions about the strategy had taken place with practice colleagues and staff

16. Results cont. Finally! GP’s knowledge quiz to test their knowledge on dementia and related issues was: • 2004 = 49% • 2009 = 49%

17. Improvement Programme for the East Midlands Desired Outcomes: • Better Use of Resources • Effective Leadership • Improved health and well-being of individuals • Improved quality of Life of services users, their families and carers • Freedom from discrimination • Individuals maintain their dignity and respect • Individuals have increased choice and control Contact details: annette.lumb@dh.gsi.gov.uk; jill.guild@eastmidlands.nhs.com