Research Advocacy A Survivor’s Perspective. March 10, 2012. MOCA serves. Over 800 ovarian cancer survivors More than 4,500 members Over 45,000 friends, family and donors. Medical Research.
A Survivor’s Perspective
March 10, 2012
“ The War on Cancer”
Cure cancer by 1976, the Bicentennial.
Richard M. Nixon
Someone who conveys a
collective patient perspective
Someone who brings a consumer POV to the research process
Someone who wants to help research progress
Willingness to read and study
Ability to communicate clearly
By asking questions from a patient perspective, keeping this awareness of the patient POV front and center.
A long way from “The Big C,”
Cancer has its own language
There’s no Rosetta Stone
By Margaret Edson
Cynthia Nixon in Wit
The New Yorker, Feb 6, 2012
Photograph by Ruven Alexander
So… you think you want to be a grant reviewer?
Here’s how this program works…..
Brigham & Women’s
One advocate is engaged with each SPORE project
Minnesota Ovarian Cancer Alliance