May 9, 2019

1. From Innovation to Commercialization Access to Data May 9, 2019 Douglas Bell, MD Leader, Informatics Program, Associate Director, UCLA CTSI Professor in Residence, UCLA Department of Medicine www.ctsi.ucla.edu▪bringing CTSI innovations to the greatest health needs in Los Angeles

2. How Can I Access EHR Data? Amazing Uses Data Electronic Health Record Contact the CTSI Informatics Program: patientdata@mednet.ucla.edu.

3. The “Honest Broker” Process for Research Recruitment Outreach Electronic Health Record BedMaster Data Files Contains 74 M Diagnoses 287 M Lab results 82 M Procedures 65 M Medications 57 M Vital Signs …and much more on 2.4 M Patients* MyChart Retrospective Analysis (with Office of Health Informatics & Analytics and CTSI Biostatistics Program) -specific data -specific patients Machine Learning (with Office of Health Informatics &Analytics and CTSI Biostatistics Program) REDCap OnCore Gene Chip (2 M SNPs) – IPH Sample

4. Tools for Self-Service Data Access DDR - Discovery Data Repository Date-shifted version of Epic Caboodle Contact the CTSI Informatics Program: patientdata@mednet.ucla.edu.

5. Tools for Self-Service Data Access Participation by 48 CTSAs Connected to ACT: • Boston University • Children’s National • Columbia University • Duke University • Emory Univ./Morehouse Univ. • Harvard University • Indiana University • Johns Hopkins University • Mayo Clinic • Medical College of Wisconsin • Medical University of South Carolina • New York University • Northwestern University • Ohio State University • Oregon Health & Science University • Pennsylvania State University • Stanford University • University of Alabama at Birmingham • U. of Arkansas for Medical Sciences • University of California, Davis • University of California, Irvine • University of California, Los Angeles • University of California, San Diego • University of California, San Francisco • Univ of Cincinnati/Cincinnati Children’s • Univ of Colo/Children’s Hosp. Colorado • University of Florida • University of Kansas • University of Kentucky • University of Minnesota • University of North Carolina at Chapel Hill • University of Pittsburgh • University of Southern California • UT Health San Antonio • UT Southwestern • Vanderbilt University Medical Center • Virginia Commonwealth Univ. • Washington University in St. Louis • Weill Cornell Medicine Over 440,000 queriable data elements Over 124 million unique patients currently available to query across the network Staging for ACT: • Case Western University • Dartmouth College • Scripps Research / Scripps Health • Tufts University • University at Buffalo • University of Illinois-Chicago • University of Massachusetts • University of Miami • University of Michigan • University of New Mexico • University of Rochester • UT Houston • University of Texas Medical Branch • University of Utah • University of Virginia • University of Washington • University of Wisconsin-Madison • Wake Forest University

6. Consulting Services See: https://ohia.mednet.ucla.edu See:https://ctsi.ucla.edu Contact the CTSI Informatics Program: patientdata@mednet.ucla.edu.

7. Programs • May 16, 10-11 AM • Nearly 300 investigators attended training webinars in 2018 • Learn how to: • Search 6.5M+ de-identified patient records • Expand a study from single to multi-site • Obtain patient counts from all institutions w/ one query • Inform NIH Inclusion Enrollment Reports w/ patient counts by gender, race and ethnicity • Increase cohort identification for rare disease studies • Obtain coordinated data provisioning support