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Transition to Adulthood with ASD: What Parents and Guardians Need to Know

Transition to Adulthood with ASD: What Parents and Guardians Need to Know

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Transition to Adulthood with ASD: What Parents and Guardians Need to Know

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  1. Transition to Adulthood with ASD: What Parents and Guardians Need to Know

  2. Eligibility vs. Entitlement Special Education • Entitlement based on need • No waiting lists Adult Services: • Eligibility criteria specific to particular agencies • Limited funding • Waiting lists

  3. Adult Agencies/Organizations • Department of Behavioral Health and Developmental Services - Community Services Boards • Department of Aging and Rehabilitative Services • Department of Social Services • Social Security Administration • Centers for Independent Living • Institutions of Higher Education • Department of Medical Assistance Services – state Medicaid agency

  4. Topics • Age of Majority • Disability Benefits and Planning • Post Secondary Readiness, Education and Training • Employment • Housing and Residential Supports • Life in the Community

  5. Age of Majority

  6. Topics • Joint Bank Account • Representative Payee • Powers of Attorney • Educational Representative • Guardianship

  7. Joint Bank Account • Supplemental Security Income or other payments directly deposited • Authorized automatic payments for living expenses

  8. Representative Payee • Manages benefit checks on behalf of person with a disability • Spends such funds on behalf of the person with a disability • Authority only for funds designated

  9. Powers of Attorney • General: may act on person’s behalf unless the person becomes incapacitated • Durable: May act on person’s behalf even if that person becomes incapacitated

  10. POA for Property • Legal document granting one person authority to handle finances or property for another person • Person with disability has legal authority • Person with disability may revoke at any time • Best used when person needs assistance making complex financial decisions

  11. POA for Healthcare • Allows a competent person to designate another to make healthcare decisions on his behalf should he become incompetent • May be revoked at any time

  12. POA for Educational Decisions • Student grants authority for others to make decision • Can be revoked or changed

  13. Educational Representative • Student “unable or incapable of providing informed consent for educational decisions under the Individuals with Disabilities Education Act” • Can be parent, family member, or other competent adult • Easier and less expensive • Educational decisions only

  14. Guardianship • Appointed by a court • Responsible for personal affairs of an incapacitated person • Limited or full decision making

  15. Disability Benefits Planning for the Future

  16. Topics • Benefits through the Social Security Administration • Home and Community Based Waivers • Planning for the Future – Special Needs Trusts and Letters of Intent

  17. Social Security Administration • Supplemental Security Income (SSI) • Social Security Disability Insurance (SSDI)

  18. Definition of Disability “The inability to engage in any substantial gainful work activity (SGA) because of a medically-determinable physical or mental impairment(s); • That is expected to result in death, or • That has lasted or is expected to last for a continuous period of not less than 12 months.” • Social Security 2010 Red Book, p. 14

  19. Supplemental Security Income (SSI) Payments to people who: • Are age 65 or older orare blind orhave a disability and • Have low income and resources

  20. Additional Benefits Individuals on SSI may also qualify for: • Medicaid • Food stamps • Auxiliary grants for housing • Other benefits for individuals with low incomes

  21. How Does My Son or Daughter Apply for SSI? Visit or call local SSA office to make an appointment or call toll free number: 800-772-1213

  22. Social Security Disability Insurance (SSDI) Payments to people who meet SSA’s disability criteria and • Have work history and have paid social security taxes or • Are an adult disabled before age 22 with a parent who is deceased or starts receiving retirement or disability benefits

  23. Work Incentives • Special rules making it possible for people with disabilities receiving SSDI or SSI to work and still receive monthly payments and Medicare or Medicaid • Work Incentives and Planning Assistance Program (WIPA):

  24. Home and Community Based Medicaid Waivers

  25. Medicaid Waivers A joint state and federal program designed as an alternative to institutional placement to provide services and supports to individuals with disabilities in their communities

  26. Types of Medicaid Waivers • Individual & Family Developmental Disabilities Support (DD or IFDDS) • Intellectual Disability (ID) • ID Day Support • Elderly or Disabled with Consumer Direction (EDCD)

  27. Individual and Family Developmental Disabilities Supports (DD) Waiver Must: • Have DD diagnosis, not ID • Be 6 years or older • Require level of care provided in intermediate-care facility • Meet financial criteria

  28. Screening for DD Waiver Request for Screening Form - completed by family and sent to local Child Development Clinic:

  29. DD Waiver Assessment Tool Level of Functioning (LOF) - completed by Child Development Clinic

  30. DD Waiver Services • Day support • Companion services • Supported employment • In-home residential support • Therapeutic consultation • Personal care services • Assistive technology • Crisis stabilization • Supported employment • Skilled nursing services • Attendant services • Family and caregiver training • Environmental modifications • Prevocational services • Support coordination • Personal emergency response system

  31. Intellectual Disability (ID) Waiver • Must be: - under 6 and “at risk” or - over 6 with a diagnosis of Intellectual Disability • Require level of care provided in intermediate-care facility • Meet financial criteria

  32. Screening for ID Waiver Contact local Community Services Board (CSB) or Behavioral Health Authority (BHA) for Level of Functioning screening

  33. ID Waiver Services • Companion services • Supported employment • Residential support services • Therapeutic consultation • Personal assistance • Prevocational services • Support coordination • Attendant services • Supported employment • Skilled nursing services • Family and caregiver training • Crisis stabilization • Environmental modifications • Assistive technology • Personal emergency response system • Day support

  34. ID Day Support Waiver Person must be: • On ID Waiver wait list • Have diagnosis of ID

  35. Elderly or Disabled with Consumer Direction Waiver (EDCD Waiver) • Individual must meet criteria for nursing home care • Screening tool: UAI • Currently only one of four waivers without a waiting list

  36. EDCD Waiver • Administered by DMAS • Apply by requesting screening from your local Department of Social Services. Specify that you need an assessment for “Long Term Care.”

  37. EDCD Waiver Services • Personal care • Adult health care • Respite care • Skilled respite care • Medication monitoring • Personal emergency response system (PERS)

  38. Individual and Family Support Program • Up to $3,000 available annually to individuals or families on the waiting lists for ID or DD Waivers • Must apply annually -

  39. Planning for the Future Trusts and Letters of Intent

  40. Special Needs Trusts • Enable person with a disability to have: • unlimited assets held in trust • without losing eligibility for certain government needs-based benefits • Different from other trusts • Written by lawyers with expertise in elder or disability law

  41. Letter of IntentDescribes to future caregivers your and your child’s wishes in regard to: • Residence • Education • Employment • Medical care • Behavior management • Social activities • Religious endeavors

  42. Post Secondary Readiness, Education, and Training

  43. Topics • Is Your Child Ready for Life after High School? • Planning • Post-secondary Options

  44. Is Your Child Ready for Life After High School?

  45. Important Life Skills • Waking up on their own • Laundry on their own • Personal hygiene • Money management and budgeting • Transportation • Health and safety issues .

  46. Important Life Skills • Time management • Organization and priority setting • Problem solving • Academic and study skills • Recognizing the need for help and how to get it

  47. Self Advocacy Skills Help individual understand and identify: • Their disability and its impact on learning and working • Necessary supports • Their rights • Concept of “reasonable accommodations” • How to advocate for themselves • How and when to disclose

  48. Planning

  49. Planning • Identify individual’s vision and goals • Identify individual’s strengths and interests • Explore career/technical training, or college options • Conduct vocational and college assessments

  50. Post Secondary Options