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Can Data from MDTs be used to Enhance Cancer Registration Data?. 6 October 2010. Presenter: Shelagh Reynolds, General Manager WCISU. Objective.

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can data from mdts be used to enhance cancer registration data
Can Data from MDTs be used to Enhance Cancer Registration Data?

6 October 2010

Insert name of presentation on Master Slide

Presenter: Shelagh Reynolds, General Manager WCISU

objective
Objective
  • To determine whether Cancer Data from Multi Disciplinary Teams can be used to enhance the data held by the Welsh Cancer Intelligence & Surveillance Unit

Can Data from MDTs be used to Enhance Cancer Registration Data?

background
Background
  • First All Wales Cancer Register 1972
  • Re-named WCISU 1997 to reflect the functions of the Unit
  • Full Member of the United Kingdom Association of Cancer Registries and the European Network of Cancer Registries

Can Data from MDTs be used to Enhance Cancer Registration Data?

purpose
Purpose

Our primary aim is the systematic collection, analysis and dissemination of information about cancer incidence, mortality and survival within the resident population of Wales.

Can Data from MDTs be used to Enhance Cancer Registration Data?

what data does wcisu collect
What Data Does WCISU collect?
  • Patient Demographics
  • Key dates relating to events
  • Coded Diagnosis
  • Coded Treatment
  • Treating hospital and Clinician detail
  • Pathological Staging information

Can Data from MDTs be used to Enhance Cancer Registration Data?

potential benefits of mdt data
Potential Benefits of MDT Data
  • Addition source of treatment details not available from other sources:
    • Hormone therapy
    • Detailed Radiotherapy
    • Detailed Chemotherapy
  • Staging data enabling stage specific survival: reduction in manual effort by WCISU staff
  • Increased confidence in data received directly from Clinical staff

Can Data from MDTs be used to Enhance Cancer Registration Data?

what did we do
What did we do?

Three exercises:

  • Raw Canisc data was assessed to identify any possible data anomalies and initial matching undertaken against WCISU database.

Can Data from MDTs be used to Enhance Cancer Registration Data?

what did we do 2
What did we do? (2)

2. Data extracted from Canisc and prepared for National Audits were matched against WCISU database.

Can Data from MDTs be used to Enhance Cancer Registration Data?

what did we do 3
What did we do? (3)

3. Staging data for colorectal cancer was matched against colorectal cancer staging held on WCISU database

Can Data from MDTs be used to Enhance Cancer Registration Data?

data records from canisc
Data Records from Canisc

Can Data from MDTs be used to Enhance Cancer Registration Data?

data issues

Data Issues

Can Data from MDTs be used to Enhance Cancer Registration Data?

patient neoplasm matching

Patient/Neoplasm Matching

Can Data from MDTs be used to Enhance Cancer Registration Data?

slide13
Head & Neck* – 08/09

Can Data from MDTs be used to Enhance Cancer Registration Data?

slide14
Breastmatching

Can Data from MDTs be used to Enhance Cancer Registration Data?

slide15
Continued

Can Data from MDTs be used to Enhance Cancer Registration Data?

slide16
Lungmatching

Can Data from MDTs be used to Enhance Cancer Registration Data?

slide17
Continued

Can Data from MDTs be used to Enhance Cancer Registration Data?

slide18
Colorectalmatching

Can Data from MDTs be used to Enhance Cancer Registration Data?

conclusion
Conclusion
  • The raw data is not yet suitable for use by WCISU
  • Extracts of data which have undergone data quality checks can be of great value
  • Benefits for both WCISU and clinical teams by identification of missing information from both systems

Can Data from MDTs be used to Enhance Cancer Registration Data?

further work
Further Work
  • Ongoing work with the Cancer Information Framework and Data Quality manager.
  • Ongoing work with the Lung Cancer Group to identify differences in case ascertainment, to be used as a model for other cancer sites.

Can Data from MDTs be used to Enhance Cancer Registration Data?

further work 2
Further Work (2)
  • Work closely with CIF team to ensure that new datasets approved by WIGSB are aligned to existing definitions used by WCISU.
  • Contribute to the training of MDT co-ordinators to ensure their understanding of medical terminology of cancer data.

Can Data from MDTs be used to Enhance Cancer Registration Data?

acknowledgements
Acknowledgements
  • Co-authors, Rebecca Thomas and Tony Williams
  • WCISU staff
  • CIF team
  • MDT staff across Wales

Can Data from MDTs be used to Enhance Cancer Registration Data?

thank you for your attention
Thank you for your Attention

Questions ?

Can Data from MDTs be used to Enhance Cancer Registration Data?

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