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Patient Registries Project for EU Healthcare Collaboration

The project aimed to map patient registries in EU countries, promote interoperability, and establish a central EU patient registry. Activities included best practice identification, research methodology, and cross-border data sharing legislation. Total budget: €3.36M.

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Patient Registries Project for EU Healthcare Collaboration

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  1. QUICK FACTS Start: May 2012 Finish: May 2015 WP 4 Holder: HZJZ Total budget:  € 3.360.548,96 WPs no: WP1-WP6 Partners: 11+12 www.patientregistries.eu Martina Jelinić, HZJZ Vanja Pajić, HZJZ

  2. Geographically: the EU, EFTA, and accession countriesare included (11 associated and 12+ collaborative partners) • According to different governance of registries:regional, national and supranational registries

  3. JA Aims • Mapping of existing EU, regional and national patient registries • Identification of existing EU projects • Interoperability • Best practices • One patient registry of registries across EU www.patientregistries.eu

  4. JA Activities • Country level registries best practice identification and applied research methodology • EU & global best practices identification • Literature review • Cross-border legislation on patient data sharing • EU-level Registry of registries design and development www.patientregistries.eu

  5. Financing Total financing •  € 3.360.548,96 EU co-financing - WP4 CRO (60%) •  € 341.957,45 Cro Ministry of Health co-financing (40%) •  € 143.380,83 www.patientregistries.eu

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