H | D | R | C Research Priorities Dr Julie Barrett, HDRC Research Coordinator
Research priorities resulting from the 2009 membership event • The effect of building and environment on outcomes for people with dementia. • Assistive technology in Housing with Care. • Care and support in Housing with Care and the effect of personal budgets. • Suitability of Housing with Care for people with dementia and home-for-life issues. • Advantages and disadvantages of different models of Housing with Care schemes for people with dementia. • Cost effectiveness of housing with care for people with dementia compared to residential care and own homes in the wider community. • Communicating with people at all stages of dementia and assessing quality of life. • Maximising wellbeing – voice, choice and control for people with dementia in Housing with Care. • Views of people with dementia living in Housing with Care. • Staff skills and training.
Funding bids • DALLAS programme (Delivering Assisted Living Lifestyles at Scale) – TSB call – HDRC part of a research “community” which was one of the 8 at the final stages of the competition; was not one of the final 5 to be funded. • Impact of interaction with the outside local community on residents with dementia– Submitted to Dunhill Medical Trust – outline bid successful, full bid unsuccessful. • Dementia Friendly Societies, large 5 year research programme with 8 work streams (HDRC co-lead on 2 work streams: Dementia Friendly Housing and Greening Dementia; on leadership team for 2 work streams) - ESRC/NIHR Dementia Initiative Call – outline proposal unsuccessful. • Supporting people with sight loss and dementia – NIHR SSCR call – bid successful. • Cogworks 2 (role of the built environment in promoting cognitive health and wellbeing of people in care homes) – EPSRC Design for Wellbeing – bid unsuccessful • HiPass (Healthy Ageing through Personalised Cyber Assistance Systems) – EU funding – waiting to hear (Summer 2014)
Funded project • The HDRC has been involved in a project funded by the National Institute for Health Research (NIHR), School for Social Care Research (SSCR) programme. • Project duration: 21 months (ended 31st March 2014). • How best to provide care and support for adults living with sight loss and dementia in a range of housing settings? • Output: good practice guidance.
HDRC’s role • Noted an opportunity for project funding in the SSCR’s 4th wave funding call. • Brought research team together. • Helped develop proposal. • Found suitable members for the project advisory group and coordinated advisory group involvement. • Sourced field sites and participants using the HDRC network of members. • Organised, coordinated and reported on stakeholder consensus event. • Input to: research methodology, tools and documents; reporting and outputs. • Coordinating dissemination via HDRC network.
“Oven ready” research proposals • Interaction with the outside community: evaluating the impact of interaction with the outside local community on the health and wellbeing of residents with dementia in extra care / continuing care settings and on the attitude of the local community. • Dementia Friendly Housing: analysis of the issues influencing decisions of people with dementia and their carers to move into Housing with Care; the advantages and disadvantages of different models of Housing with Care; the effect of building and environment on outcomes for people with dementia. • Green Dementia Care: examining the impact of interaction with nature on multiple health and wellbeing dimensions for people with mild cognitive impairment / early stage dementia living in different accommodation settings.
Your research priorities: small group discussion • What are your / your organisation’s research priorities? • Top 5 research themes. Associated key research questions. • May like to consider: • Are the current research priorities still applicable to you / your organisation? Are there any changes you would like to make to these? • What research would you / your organisation like to see being done? • What issues are you / your organisation grappling with in relation to accommodation and care for people with dementia? • What questions would you / your organisation like answered? • What research would help you / your organisation with these issues and questions and help you to make decisions relating to accommodation and care for people with dementia?