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World Bank/Yale University Global Survey on HIV/AIDS and Disability. Nora Groce, Ph.D: Yale University Dr. Debrework Zewdie Global HIV/AIDS Program, World Bank Hon. Judith Heumann- World Bank Office of the Advisor on Disability and Development.

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world bank yale university global survey on hiv aids and disability

World Bank/Yale UniversityGlobal Survey on HIV/AIDS and Disability

Nora Groce, Ph.D: Yale University

Dr. Debrework Zewdie

Global HIV/AIDS Program, World Bank

Hon. Judith Heumann- World Bank

Office of the Advisor on Disability and Development

unfortunately too often individuals with disability are not included in aids outreach efforts

Unfortunately, too often individuals with disability are not included in AIDS outreach efforts

incorrectly believed that
Incorrectly believed that:
  • They are not sexually active
  • They are unlikely to use intravenous

drugs

* They are less likely to be victims of violence – including sexual abuse & rape

embarked on project to
Embarked on Project to
  • Assess current state of knowledge about the impact of HIV/AIDS on disabled individuals and populations
  • Document current activities related on HIV/AIDS and disability worldwide
  • Identify models of good interventions currently in place or in planning
  • Identify gaps in the current system
over the past year have done the following
Over the past year, have done the following:
  • Global literature search to identify all knownscientific articles/resources/training manuals/researchers
  • Developed and disseminated a Survey via e-mail & ground mail on HIV/AIDS
two key questions
Two Key Questions
  • Is AIDS a significant concern to disabled population around the globe
  • Are AIDS messages reaching disabled populations?
mailed or e mailed to

Mailed or E-mailed to:

* 2800 compiled for the project on on our listserv

* Carried by additional listservs to another 2000-3000 sites

distribution of responses 978 responses from 57 countries
Distribution of Responses: 978 responses from 57 Countries
  • Governmental, NGO, Disability Advocacy organizations
  • From Organizations serving 5 to > 100,000
  • From India and China to Faroe Islands
    • 43% Sub-Saharan African; 23% Asia, 10% Americas, 3% Pacific Islands
all risk associated with hiv are increased for individuals with disability
All risk Associated with HIV are increased for individuals with Disability
  • Stigma
  • Poverty
  • Lack of Education
  • Risk of violence and rape
  • Substance abuse
  • Lack of accessible and affordable care
disability and sexuality
Disability and Sexuality
  • Adolescents with many (although not all) types of disability reach puberty at the same age as their peers;
  • Adolescents and adults with disability are as likely to be sexually active as non-disabled peers;
  • Homosexuality and Bisexuality occurs at the same rate as among non-disabled
even when in school
Even when in School
  • Less likely to receive education in science and health education
  • More likely to routinely be excused from sex education courses
  • Far more likely than peers to drop out of school & drop out of school at an earlier age
          • UNICEF. A Global Overview of Young People Living with Disabilities. 1999
why they are not being reached
Why they are not being reached:
  • Lack of education inhibits ability to

obtain information

* Information in Inaccessible Formats:

- Radio campaigns miss the Deaf;

    • Billboards do not reach the Blind;
    • Complex/ vague messages do not reach those with intellectual impairments
    • Clinics/services are inaccessible
subgroups are at still higher risk
Subgroups are at still higher risk
  • Women
  • Minorities
  • Individuals with disability who are homosexual or bisexual
  • AIDS Orphans who have an existing disability
also lack of access to
Also Lack of Access to
  • Health care for HIV/AIDS if infected
  • Drug and alcohol program
  • Domestic violence intervention programs
  • Community Centers, clinics and other places where condoms are distributed, AIDS education is held, etc.,etc.,
missing
Missing
  • Understanding of what programs work and why they work to provide education, intervention & etc. for disabled populations
  • What specific clinical needs might exist for individuals with disability vis-à-vis AIDS
  • For those few pilot projects already available, monitoring or evaluation
interventions a continuum
Interventions: A Continuum
  • Type I: Inclusion as part of the general population with little or no adaptation needed
  • Type II: Inclusion as part of the general population with low/moderate cost adaptations
  • Type III: Disability-specific, targeted interventions; Involvement of disability advocacy as AIDS educators
conclusion
Conclusion
  • Individuals with Disability face all known risk factors for HIV/AIDS and at equal to up to three times greater risk of HIV infection than non-disabled individuals
ad