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Neonatal Care Report

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  1. Neonatal Care Report Clinical Document Architecture (CDA)Release 2 ∙ Version 3

  2. Neonatal Care Report Children’s Hospitals Neonatal Consortium (CHNC) • Background & Rationale • collaborative of 24 children’s hospital Neonatal ICUs • multidisciplinary initiative, started in 2006 • limited knowledge about best practices & outcomes for the unique population of infants in tertiary NICUs: • complex & uncommon neonatal diseases • preterm infants with co-morbidities/complications • ill term infants requiring emergent intervention • e.g., ECMO, surgery, dialysis • congenital anomalies • genetic & metabolic syndromes • typically referred for surgical and other subspecialty care

  3. Neonatal Care Report CHNC Mission • Aims of the Initiative: • To evaluate & optimize the tertiary neonatal intensive care provided at children’s hospitals • determine variations in care • evaluate efficacy of current practices • promote safety & facilitate research efforts • spearhead benchmarking & quality improvement initiatives • ultimately improve clinical outcomes

  4. Neonatal Care Report Development of Database - CHND CHNC Partnership with Child Health Corporation of America (CHCA) In 2008, CHNC partnered with CHCA, a business alliance of 43 leading children’s hospitals Developed a comprehensive clinical database: Children’s Hospitals Neonatal Database (CHND) • Establishment of a Core Data Set • In 2009, CHNC/CHCA completes specifications for a core data set of about 700 defined data fields • Data collection primarily manual abstraction from current systems of clinical documentation (costly)

  5. Neonatal Care Report Children’s Hospitals Neonatal Database Participants • Atlanta • Birmingham • Boston • Chicago • Columbus • Cincinnati • Dallas • Detroit • Denver • Fort Worth • Houston • Kansas City • Little Rock • Los Angeles • Memphis • (Le Bonheur) • Oakland • Philadelphia • Pittsburgh • St. Louis • San Diego • Salt Lake City • St. Petersburg • Washington, DC • Wilmington, DE *13 additional CHCA hospitals and 8 non CHCA sites considering future participation.

  6. Neonatal Care Report (NCR) Employing HL7 standards to facilitate electronic extraction • HL7 Clinical Document Architecture (CDA) Release 2 Selection of Subset of Data Elements for the NCR • unambiguous data fields, well established standards • present in majority of centers (varied stages of EHR development) Messaging a Subset of Data • Acuity Scoring • severity of illness assessment • derived from existing mortality models: • Pediatric Risk of Mortality: PRISM-III • Pediatric Index of Mortality: PIM-II • Clinical Risk Index for Babies: CRIB-II • Score for Neonatal Acute Physiology: SNAPPE II • Predominantly laboratory and physiologic data • Scored at several intervals • 1st 12 hours, Day 3, Day 7 of admission • Demographic data • Name, MRN, Maternal Zip • Birth Data • Birth weight • Gestational Age • Apgar scores (1, 5, prolonged) • Admission/Discharge Information • Dates • Measurements (weights, head circ.)

  7. Neonatal Care Report Working Group Contributors Co-Chair/Co-Editor: Robert H. Dolin, MD Semantically Yours, LLCbobdolin@gmail.com Co-Chair/Co-Editor: LioraAlschulerAlschuler Associates, LLCliora@alschulerassociates.com Co-Chair: Calvin Beebe Mayo Cliniccbeebe@mayo.edu Co-Chair: Keith W. Boone GE Healthcarekeith.boone@ge.com Primary Editor: Gay Giannone, MSN RNAlschuler Associates, LLCgay@alschulerassociates.com Co-Editor: Joy Kuhl, MBA, CPF Principal | Optimal Accords, LLCjoy@optimalaccords.com Co-Editor: Michael A. Padula, MD Neonatologist, Clinical Informaticist The Children's Hospital of Philadelphiapadula@email.chop.edu Co-Editor: Feliciano Yu, M.D. Information Technology Division Pediatrics Professor University of Alabama at Birmingham School of Medicinefyu@peds.uab.edu Co-Editor: David J. Durand, MD Director, Division of Neonatology Children's Hospital and Research Center Oaklandddurand@mail.cho.org Co-Editor: Karna Murthy, MD Neonatologist, Children's Memorial Hospital Assistant Professor of Pediatrics Northwestern Universityk-murthy@northwestern.edu Co-Editor: Jacqueline Kueser Vice President, Strategy/R&D Children’s Hospitals Corporation of America jacqueline.kueser@chca.com Co-Editor: Kirk Elrod CHCA IT Liaison/Business Analyst Children’s Hospitals Corporation of America kirk.elrod@chca.com Current Working Group also includes: Kate Conrad, Bobby George, Andy Spooner David Muraco, Diane Ward Celeste Milton, Jean Millar Ann Watt Shaun Shakib Sandy Stuart Brett MarquardJingdong (JD) Li AnnekeGoossen William Goossen Teresa Finitzo