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The Pregnancy to Early Life Longitudinal PELL Data System

Goals of Presentation. Describe PELL (a longitudinal linked reproductive health data system)Discuss the issues involved in the creation of state population-based linked MCH data systemsProvide some examples of current usages of the PELL data system Facilitate a discussion about the opportunities

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The Pregnancy to Early Life Longitudinal PELL Data System

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    1. The Pregnancy to Early Life Longitudinal (PELL) Data System NAPHSIS Meeting Baltimore, Maryland June 3, 2009 Eugene Declercq, PhD Boston University School of Public Health

    2. Goals of Presentation Describe PELL (a longitudinal linked reproductive health data system) Discuss the issues involved in the creation of state population-based linked MCH data systems Provide some examples of current usages of the PELL data system Facilitate a discussion about the opportunities and barriers in creating similar MCH linked data systems in other states

    3. PELL Data System Collaborative public-private partnership Maternal and Child Health Department, Boston University School of Public Health Massachusetts Department of Public Health (MDPH) CDC Division of Reproductive Health

    4. PELL Overview Population-based relational, reproductive health data system Funded to assess impact of prenatal environment on subsequent child (and maternal) health Utilizes a broad range of public health data Longitudinal data system (developmentally based) Allows for multiple kinds of linkages and analysis, including dyadic, maternal, child, multiple sibling and family Breadth of data system is expandable Offers a conceptual and practical model for other states

    5. Nature of Pell Data System Consists of a birth-related Core plus additional program and other surveillance data Connected by unique identifiers for births, children, and mothers All linkages are to birth and fetal death certificates

    6. Core Data Sets in PELL Linkage

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