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The Cancer Journey:. Storytelling Nodes .

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the cancer journey
The Cancer Journey:

Storytelling Nodes

slide3

“There is little in the practice of medicine that does not have narrative features, because the clinical practice, the teaching, and the research are all indelibly stamped with the telling or the receiving or the creating of stories.” --Rita Charon, Narrative Medicine

slide4

“Illness is the night side of life, a more onerous citizenship. Every person who is born holds dual citizenship, in the kingdom of the well and the kingdom of the sick.”--Susan Sontag, Illness as Metaphor

slide5

“Furthermore, we have not even to risk the adventure alone; for the heroes of all time have gone before us; the labyrinth is thoroughly known; we have only to follow the thread of the hero-path. “--Joseph Campbell, Hero With a Thousand Faces

slide8

I. Stages of the Journey (PLOT)

A. Pre-diagnosis

1. Health--Innocence

2. Old Order/Disorder

3. Precursors, warning signals

separation crossing the threshold
Separation: Crossing the Threshold

B. Determining encounter

1. Immediate revelation

2. Period of uncertainty

initiation treatment
Initiation: Treatment

C. Initiation: Treatment

1. End of uncertainty

2. Gathering Helpers

  • Medical (Oncologists, Surgeons, Nurses, Radiologists, etc.)

ii. Family (spouse, parents, siblings, friends, community)

iii. Spiritual (pastors, books, tapes, inner resources)

trials
Trials

3.Setting a Course

a. Woundings

b. Torment (Physical, Emotional, Financial, Spiritual)

c. Confinement

return outcomes
Return (Outcomes)

D. Homecoming, Homegoing

1. Remission, Recovery

2. Death (Acceptance, Denial)

characters dramatis personae
CHARACTERS(Dramatis Personae)

II. Protagonists/

Antagonists/

Supporting Roles

hero types
Hero Types

1. Patient as Hero Of Cancer Journey

a. Warrior

b. Priest

c. Sage

d. Scholar

hero types1
Hero Types

2. Patient as Victim-Hero

a. Captive

b. Servant

c. Innocent

d. Fool

helper types
Helper Types

1. Doctors

2. Nurses

3. Family members

4. Friends and community support

5. Spiritual counselors and resources

6. Death as Helper/Friend

villains antagonists
Villains/Antagonists

1. Disease as Antagonist

a. Malevolent

b. Impersonal

villains antagonists1
Villains/Antagonists

2. Doctors/Medical System

a. Doctors as Usurpers of Hero Role

b. Doctors/Medical System as Obstacles/Obstructions

c. Doctors/Medical System as Agents of Torment/ Wounding/ Confinement

villains antagonists2
Villains/Antagonists

3. Family members/ friends/ community antagonists

villains antagonists3
Villains/Antagonists

4. Death as Ultimate Antagonist

narrative types
Narrative Types

III. Narrative types (1-5 scale):

A. Focused/ Digressive

B. Explicit/ Implicit

C. Detailed/ Ellisive

narrator types
Narrator Types

IV. Narrator types (1-5 scale):

A. Expansive/ Reluctant

B. Emotive/ Detached

C. Serious/ Humorous

D. Engaged/ Resigned

brenda johnson
Brenda Johnson
  • Themes: Separation and reconnection; death of an old self/ giving birth to the new
  • Talismans: “turned out to be one of the best things that ever happened in my life”; “...why did it come to me? Because I was young enough to be able to fight it and be able to handle it.”
  • Hero: Captive – Servant
  • Narrative: Focused 2 // Implicit 4 // Ellisive 4
  • Narrator: Expansive 2 //Emotive 1 // Serious 1 // Engaged 2
diane felder
Diane Felder
  • Themes: Living to the fullest; accepting consequences
  • Talismans: “God bless breast cancer – it saved my life.” “I don’t know what’s to come. I know this is what I’ve got now. And I love it so much – I’m gonna fight for every bit of it. Yes, I’ve had a great life, which leaves me wanting more.”
  • Hero: Fool — Warrior – Sage
  • Narrative: Focused 2// Explicit 1// Detailed 1
  • Narrator: Expansive 1// Emotive 1// Humorous 2// Engaged 1
cathy collins
Cathy Collins
  • Themes: Job’s Patience (catalogue of losses)
  • Talisman: “It’s not about me.”
  • Hero: Captive – Servant -- Sage
  • Narrative: Focused 1 // Explicit 1 // Detailed 2
  • Narrator: Expansive 1 // Emotive 1 // Serious 2 // Engaged-Resigned 3
marcia shell
Marcia Shell
  • Themes: Transformation of affliction to mission; betrayal by medical system
  • Talisman: “cancer was the best thing to happen to me.”
  • Hero: Innocent; Scholar – Priest
  • Narrative: Focused 2 // Implicit 4 // Ellisive 4
  • Narrator: Expansive 1 // Emotive 2 // Serious 1 // Engaged 1
john mclain
John McLain
  • Themes: trust in the Lord; The Man who went forth to learn fear…
  • Talismans: “The Lord looks after me”; “I’m ready to go--my bags are packed”; “It’s not the size of the dog in the fight—it’s the size of the fight in the dog”
  • Hero type: Warrior (spiritual); Innocent/ Servant
  • Narrative: Focused 1// Explicit 1// Detailed 1
  • Narrator: Expansive 1// Detached 2// Serious-Humorous 3// Engaged-Resigned 3
vickie phillips
Vickie Phillips
  • Themes: power of friendship; ability to receive; Carnival humor
  • Talismans: “I am not my cancer”: “I can laugh or I can cry and I just decided that I would run with the laughter part.” “I didn’t get a death sentence—I got a chance to live...” “We’re all on the same rock.”
  • Hero type: Fool-trickster // Sage
  • Narrative: Focused 1// Explicit 1// Detailed 2
  • Narrator: Expansive 1// Detached 2 // Humorous 2// Engaged 1
slide33

“The power in suffering to promote integrity is not only a Christian belief, it has been part of almost every religious tradition. Yet twenty years of working with people with cancer in settings of unimaginable loss and pain suggests that this may not be a teaching or a religious belief at all but rather some sort of natural law. That is, we might learn it not by divine revelation but simply through a careful and patient observation of the nature of the world. Suffering changes the life force, sometimes into anger, sometimes into blame and self-pity. Eventually it may show us the freedom of loving and serving life.” (118)--Rachel Naomi Remen, M.D. Kitchen Table Wisdom

slide34

“And where we had thought to find an abomination, we shall find a god; where we had thought to slay another, we shall slay ourselves; where we had thought to travel outward, we shall come to the center of our own existence; where we had thought to be alone, we shall be with all the world.”