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Your logo here. Inpatient Palliative Care Family Caregiver. Group Education Session. Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia. The main goal of the session. Your logo here.

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inpatient palliative care family caregiver

Your logo here

Inpatient Palliative Care Family Caregiver

Group Education Session

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

the main goal of the session
The main goal of the session

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The main goal of this education session is to provide you with strategies and resources that will allow you to best support your family member and take better care of yourself.

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

the guidelines for our group
The guidelines for our group

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  • Limitations of a ‘one-off’ education session
  • Not a counselling session
  • Respect each other’s unique experience and values
  • Privacy is also respected – no obligation to share
  • Confidentiality is observed
  • Feel free to take ‘time out’ if you are feeling upset
  • Questions are invited at the end of each topic (or later in a suitable setting)

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

introductions
Introductions

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  • Please briefly introduce yourself to the group
  • E.g. first name, relationship of the person you are caring for and what you like to do in your spare time (when you have some)

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

overview of the session
Overview of the session

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To inform primary family carers about:

1. What is palliative care?

2. The typical role of a family carer

3. Support services available

4. Preparing for the future

5. Self-care strategies for optimal wellbeing

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

getting started
Getting started

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Describe your biggest current challenge or concern related to your caring role

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

the carer kit
The Carer Kit

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  • Palliative care service brochures
  • A guidebook
  • A copy of today’s presentation
  • A relaxation CD (Commonwealth DoHA)
  • Fact sheets on ‘reducing stress’ and ‘sleeping well’

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

topic one what is palliative care
Topic One – What is palliative care?

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Objective:

To inform family carers about palliative care

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

what is palliative care
What is palliative care?

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  • Aims to help people with a life-threatening illness
  • Family-centred support
  • Symptom management
  • End of life care
  • Psychological, social and spiritual care
  • Bereavement support
  • Refer to page 9 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

topic two the typical role of a family carer
Topic Two – The typical role of a family carer

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Objective:

To explore the typical role of a family carer when a family member is an in-patient receiving palliative care

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

who is a carer
Who is a carer?

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  • Someone giving support to a person who is unwell …
  • Carers can be a …
  • Relative
  • Spouse
  • Friend
  • Refer to page 7 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

what do carers do
What do carers do?

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  • Emotional care – listening and being there
  • Practical care – meals, medications, bathing, transporting to medical appointments
  • It depends on what you feel comfortable doing
  • If you are unsure, ask a nurse
  • Refer to page 9 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

typical reactions when a relative requires palliative care
Typical reactions when a relative requires palliative care

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  • Can I do this? And for how long?
  • What skills do I need?
  • Who can help me?
  • What can I expect?
  • What resources are available?
  • Refer to page 7 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

my options as a carer
My options as a carer

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  • Access information to assist in care
  • Seek financial help
  • Say ‘no’ to things you are uncomfortable with
  • Access additional support: e.g. house cleaning, meals on wheels, interpreter services, extra nursing input etc.
  • Seek further opinions
  • Refer to page 12 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

topic three support services available
Topic Three – Support services available

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Objective:

To inform family carers on the services available within the in-patient unit and the support services and resources available within the community.

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

support services available
Support services available

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  • Services available within the inpatient palliative care unit
  • Services and resources within the community

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

resources available
Resources available

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  • GP
  • Palliative Care Australia www.pallcare.org.au
  • Support groups
  • Local council
  • Carers Resource Centre 1800 242 636
  • Carer Respite Centres 1800 059 059
  • Refer to pages 9-12 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

other services
Other services

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  • Health professionals (dietician, naturopath etc.)
  • Alternative and complementary therapies
  • Private nursing agencies
  • Private food services
  • Refer to page 27 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

legal matters and other practical things to consider
Legal matters and other practical thingsto consider

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  • Preparing a will
  • Power of Attorney
  • Advanced care decisions
  • Funeral arrangements
  • Financial matters
  • Carer payment
  • Refer to pages 32-33 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

topic four preparing for the future
Topic Four – Preparing for the future

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Objective:

To inform family carers about:

1. potential future site-of-care options and 2. what to expect when a person is approaching death

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

tom and mary
Tom and Mary

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Tom is 69 and has lung cancer. All active treatment has stopped and Tom is receiving palliative care at the local palliative care unit. He is sleeping a lot and his appetite has decreased. The staff say he is declining and may only have a week or two to live. Tom wants to go home.

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

tom and mary22
Tom and Mary

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Mary is 65 and is Tom’s wife of 42 years. They have two children together and three grandchildren. Mary has been involved in caring for Tom for over a year. It is hard work and she is tired. Now, Tom requires more care from her than when he went in to hospital (to have his pain medication reviewed). She is concerned about him coming home.

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

tom and mary23
Tom and Mary

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  • What do you think Mary’s concerns are about Tom coming home?
  • What might Tom’s concerns be about staying in the hospital?
  • What might be some possible compromises or solutions?

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

potential options
Potential options

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  • Explore additional options for home care and resources available
  • Family meeting to explore and obtain information
  • Explore alternatives to care at home: inpatient palliative care unit, hospital, residential aged care facilities
  • Refer to pages 29-32 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

typical signs when death seems near
Typical signs when death seems near

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  • Large portions of time in bed
  • Unable to move from bed or chair without help
  • Difficulty swallowing solid food
  • Not talking much
  • Occasional confusion
  • Restlessness
  • Changes in breathing
  • Refer to p. 47 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

when death occurs recognising death
When death occurs – recognising death

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  • If in hospital:
  • let a health professional know
  • If at home:
  • ‘there is no rush’ to do everything
  • Inform close relatives
  • Call the palliative care service and they can assist you in taking the next steps
  • Doctor/GP needs to be contacted to arrange death certificate
  • Refer to pages 52-53 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

how might i feel after the death
How might I feel after the death

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  • You may feel:
  • Sadness
  • Distress
  • Shock
  • Anger
  • Resentment
  • Physical symptoms ie. shaking, trembling, hot/cold or both, calmness, palpitations, fatigue, hear noises or have vivid dreams
  • Refer to pp.53-54 of the guidebook
  • Relief
  • Guilt
  • Disorientation
  • Pre-occupation
  • Yearning
  • Fear
  • Anxiety
  • Numbness

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

bereavement support
Bereavement support

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  • Everyone experiences grief differently
  • It’s okay to seek support at any time
  • Contact the bereavement counselling service or your GP for support
  • Refer to page 54 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

topic five self care strategies to promote optimal wellbeing
Topic Five – Self-care strategies to promote optimal wellbeing

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Objective:

To inform family carers of the impact of being a carer and to discuss strategies for how family carers can look after themselves at this time

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

impact on you
Impact on you

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  • Being a carer can be challenging
  • Some carers feel as though they get little time for themselves and may get quite tired
  • Some carers feel overwhelmed
  • It can be physically and emotionally draining
  • The demands of caring can cause stress
  • Refer to pages 15-16 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

the positive aspects of caring
The positive aspects of caring

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  • Remind yourself …
  • Your support is helping your relative
  • There are people to help you
  • You are doing the best you can
  • You can arrange to do something that makes you feel good
  • Refer to page 16 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

caring for yourself
Caring for yourself

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  • Get some exercise
  • Get enough sleep
  • Maintain a healthy diet
  • Do something for yourself every day
  • Accept help
  • Juggling needs for you and for your relative
  • Refer to pages 35-38 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

caring for your relationships
Caring for your relationships

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  • Keep communication open and honest
  • Humour … look for the funny side of things where possible
  • Work at things together
  • Consider showing the book “Supporting a person who needs palliative care” to your relative
  • Refer to pages 38-40 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

time to relax
Time to relax!

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  • Plan to do something enjoyable
  • Talk to someone you feel comfortable with
  • Look for the positives
  • Take a break from the caring role
  • Perform relaxation exercise
  • Refer to pages 40-42 of the guidebook

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

and lastly
And lastly …

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The palliative care team’s aim is to support you

Questions?

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

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Contact details

Phone +61 3 9416 0000

Fax +61 3 9416 3919

Email centreforpallcare@svhm.org.au

Web www.centreforpallcare.org

PO Box 2900, Fitzroy VIC 3065 Australia

6 Gertrude Street, Fitzroy VIC 3065 Australia

Funding for this project was provided by the NHMRC Palliative Care Research Grants Round 3, No. 447713.

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia

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Contact details

Phone

Email

Web

Address line 1

Address line 2

Funding for this project was provided by the NHMRC Palliative Care Research Grants Round 3, No. 447713.

Part of St Vincent’s Hospital and a Collaborative Centre of The University of Melbourne, Australia