'Rare diseases research' presentation slideshows

PCORnet: the National Patient-Centered Clinical Research Network

PCORnet , the National Patient-Centered Clinical Research Network Andrew A. Nierenberg, MD Adapted with permission from Rachael L. Fleurence , PhD Richard Platt, MD, MS. PCORnet: the National Patient-Centered Clinical Research Network. Goals:

640 views • 42 slides

PCORnet: the National Patient-Centered Clinical Research Network

PCORnet , the National Patient-Centered Clinical Research Network Andrew A. Nierenberg, MD Adapted with permission from Rachael L. Fleurence , PhD Richard Platt, MD, MS. PCORnet: the National Patient-Centered Clinical Research Network. Goals:

536 views • 42 slides

The Rare Diseases Clinical Research Network (RDCRN)

The Rare Diseases Clinical Research Network (RDCRN). Data current as of August 31, 2014. Rare Diseases Clinical Research Network (RDCRN) is coordinated by Office of Rare Diseases Research, NCATS.

679 views • 41 slides

Potential to support research and increase awareness on rare diseases research by Eurordis

358 views • 25 slides

EU publicly funded research programs

EU publicly funded research programs. FDA/EMA Orphan Designation and Grant Workshop (12 Oct 2012). Presented by: Jordi Llinares Head of orphan medicines. Outline. Small and Medium sized Enterprises at EMA The European Framework programme A collaborative example.

358 views • 22 slides

Creating action with information: The Rare Disease Community

Creating action with information: The Rare Disease Community. Cary O. Harding, MD Department of Molecular & Medical Genetics. Disclosures. BioMarin Corporation Funds for participation in clinical trials Sapropterin dihydrochloride rAvPAL-PEG National PKU Alliance

227 views • 21 slides

220 views • 11 slides

110 views • 11 slides

LESSON 7: Who Should Pay? Funding Research on Rare Genetic Diseases

LESSON 7: Who Should Pay? Funding Research on Rare Genetic Diseases. PowerPoint slides to accompany Using Bioinformatics : Genetic Research.

91 views • 9 slides

NAS/IOM Review of Rare Diseases Research and Orphan Products Development - USA

NAS/IOM Review of Rare Diseases Research and Orphan Products Development - USA. Timothy Cote, M.D., MPH Director, Office of Orphan Products Development Food and Drug Administration Stephen C. Groft, Pharm.D. Director, Office of Rare Diseases Research National Institutes of Health

194 views • 7 slides

ICARE Member Reports

ICARE Member Reports. NIH Office of Rare Diseases Research

257 views • 3 slides