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CC-CHOC Rare Disease Workgroup Goals

Childhood Rare Diseases and the Use of Informatics Case study: Distributed Biobanks for Rare Diseases (DBRD) Jennifer Puck, MD University of California San Francisco CC-CHOC Meeting, Apr. 30, 2010. CC-CHOC Rare Disease Workgroup Goals. Originally child health oriented, now all ages.

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312 views • 11 slides

Report to CTSA POC on Rare Disease Workgroup

Report to CTSA POC on Rare Disease Workgroup. Jan 4, 2008. Pediatrics Oversight Committee Rare Disease Workgroup. Rare Diseases Workgroup Genesis: Discussion between Jennifer Puck and Robert Steiner at 1 st POC meeting Subsequently, POC members voted this a high priority initiative

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264 views • 8 slides

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CC-CHOC Rare Disease Workgroup Goals

Report to CTSA POC on Rare Disease Workgroup