Research Bioethics Consultation: More potential than sequencing genomes . Benjamin S. Wilfond MD Seattle Children’s Hospital Treuman Katz Center for Pediatric Bioethics Center for Clinical and Translational Research University of Washington Division of Bioethics, Department of Pediatrics
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Benjamin S. Wilfond MD
Seattle Children’s Hospital
Treuman Katz Center for Pediatric Bioethics
Center for Clinical and Translational Research
University of Washington
Division of Bioethics, Department of Pediatrics
Center for Genomics and Health Equity, Department of Bioethics and Humanities
Regulatory Support and Bioethics Core, Institute of Translational Health Sciences
“An advisory activity available throughout the lifecycle of a study.
It involves interaction with the researcher or others stakeholders in the research enterprise and one or more individuals knowledgeable about the ethical considerations in research, regarding an ethical question related to any aspect of planning conducting, interpreting, or disseminating results of research related to human health and well being.
The purpose of the interaction is to provide information; identify, analyze, and or deliberate about ethical issues; and recommend a course of action”
Beskow et al. IRB: 2009
University of Wisconsin
University of Arizona
Research Bioethics Consultation
NIH Clinical Center
University of Washington (ITHS)My perspective influenced by overlapping roles
Data Monitoring Committee
Cystic Fibrosis Foundation
And FamiliesResearch Bioethics Consultation: Bioethics Committee and IRBS