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challenging our assumptions about carers

challenging our assumptions about carers. activity three powerpoint. a carer identifies themselves as a carer. Many dislike the title ‘carer’ – detracts from identity of being husband, wife, son, daughter Confusion over the term ‘carer’ – often used to refer to paid care staff

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challenging our assumptions about carers

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  1. challenging our assumptions about carers activity three powerpoint

  2. a carer identifies themselves as a carer • Many dislike the title ‘carer’ – detracts from identity of being husband, wife, son, daughter • Confusion over the term ‘carer’ – often used to refer to paid care staff • Different cultures use different words to explain the concept of a carer • As a result many carers remain ‘hidden’.

  3. a carer is able to voice their concerns • The cared for person might have been present (carer not wanting to upset them). • A carer may feel inhibited by the environment, job titles, uniforms. • A carer may not follow what was being said due to fatigue, anxiety, overload.

  4. a carer is ‘being difficult’ when they appear angry • Likely to be an underlying cause for the anger • A carer may be in extreme difficulty rather than it being their personality • No steps may have been taken to alleviate the situation and issue is still unresolved

  5. a carer will read the information you provide • Carer may simply not have time • No account taken of the carer’s condition to absorb information eg. lack of sleep, memory problems, stress • May not be in an appropriate format or language

  6. a carer will have the relevant knowledge and skills • May be new to caring role with no previous experience of working in care environment • No opportunity provided to the carer for training • Information on diagnosis, prognosis and how to deal with condition not provided • Carer is included in the meeting but may be ignored

  7. a carer will understand jargon and abbreviations • Carer may be entering into an unfamiliar world which is confusing and bewildering • Carer may be too embarrassed, or is not offered opportunity, to ask staff for clarification • Can lead to risks to cared for person’s health as well as their own.

  8. a carer is willing to care or able to cope • Cared for person may say ‘everything is fine – my family will look after me’. Carer’s views not established • Is it clear who is the main carer? Are there hidden carers involved? Young carers? • Carer anxiety about emotional, physical and financial impact on the wider family • Carer may be ignoring or suppressing own health needs

  9. a black, asian & minority ethnic (BAME) carer will not require services because of their extended family • BAME carer may experience additional difficulties combining work with caring due to lack of accessible advice and support • BAME carer may not share views of caring that are commonly associated with a particular community

  10. a carer is involved in meetings with medical or social care staff • May be excluded from multi-disciplinary meetings on grounds of confidentiality leaving them worried, isolated and ill-informed • If involved, carer may feel they are ignored in discussions

  11. a carer is able to support the cared for person to attend appointments • Carer may not be consulted or advised about appointment times e.g. carer unaware of letters of appointment sent to cared for person’s home • Appointment arranged at unsuitable time or suddenly changed when a carer has made special (and sometimes costly) arrangements • Carer difficulties when changing appointments

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