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challenging our assumptions about carers

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challenging our assumptions about carers. activity three powerpoint. a carer identifies themselves as a carer. Many dislike the title ‘carer’ – detracts from identity of being husband, wife, son, daughter Confusion over the term ‘carer’ – often used to refer to paid care staff

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a carer identifies themselves as a carer
a carer identifies themselves as a carer
  • Many dislike the title ‘carer’ – detracts from identity of being husband, wife, son, daughter
  • Confusion over the term ‘carer’ – often used to refer to paid care staff
  • Different cultures use different words to explain the concept of a carer
  • As a result many carers remain ‘hidden’.
a carer is able to voice their concerns
a carer is able to voice their concerns
  • The cared for person might have been present (carer not wanting to upset them).
  • A carer may feel inhibited by the environment, job titles, uniforms.
  • A carer may not follow what was being said due to fatigue, anxiety, overload.
a carer is being difficult when they appear angry
a carer is ‘being difficult’ when they appear angry
  • Likely to be an underlying cause for the anger
  • A carer may be in extreme difficulty rather than it being their personality
  • No steps may have been taken to alleviate the situation and issue is still unresolved
a carer will read the information you provide
a carer will read the information you provide
  • Carer may simply not have time
  • No account taken of the carer’s condition to absorb information eg. lack of sleep, memory problems, stress
  • May not be in an appropriate format or language
a carer will have the relevant knowledge and skills
a carer will have the relevant knowledge and skills
  • May be new to caring role with no previous experience of working in care environment
  • No opportunity provided to the carer for training
  • Information on diagnosis, prognosis and how to deal with condition not provided
  • Carer is included in the meeting but may be ignored
a carer will understand jargon and abbreviations
a carer will understand jargon and abbreviations
  • Carer may be entering into an unfamiliar world which is confusing and bewildering
  • Carer may be too embarrassed, or is not offered opportunity, to ask staff for clarification
  • Can lead to risks to cared for person’s health as well as their own.
a carer is willing to care or able to cope
a carer is willing to care or able to cope
  • Cared for person may say ‘everything is fine – my family will look after me’. Carer’s views not established
  • Is it clear who is the main carer? Are there hidden carers involved? Young carers?
  • Carer anxiety about emotional, physical and financial impact on the wider family
  • Carer may be ignoring or suppressing own health needs
a black asian minority ethnic bame carer will not require services because of their extended family
a black, asian & minority ethnic (BAME) carer will not require services because of their extended family
  • BAME carer may experience additional difficulties combining work with caring due to lack of accessible advice and support
  • BAME carer may not share views of caring that are commonly associated with a particular community
a carer is involved in meetings with medical or social care staff
a carer is involved in meetings with medical or social care staff
  • May be excluded from multi-disciplinary meetings on grounds of confidentiality leaving them worried, isolated and ill-informed
  • If involved, carer may feel they are ignored in discussions
a carer is able to support the cared for person to attend appointments
a carer is able to support the cared for person to attend appointments
  • Carer may not be consulted or advised about appointment times e.g. carer unaware of letters of appointment sent to cared for person’s home
  • Appointment arranged at unsuitable time or suddenly changed when a carer has made special (and sometimes costly) arrangements
  • Carer difficulties when changing appointments
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