Treating patients with epidermolysis bullosa. Jemima Mellerio Great Ormond Street Hospital and St John’s Institute of Dermatology London, UK. Treating patients with EB. EB and EB care in England and Wales What are the problems and what can we do about them?
Great Ormond Street Hospital and
St John’s Institute of Dermatology
Fine J-D et al. J Am Acad Dermatol 2008; 58(6): 931-50
University of Dundee
St Thomas’ Hospital
EB care in England and Wales
Symptom control team
Multidisciplinary EB care
EB: what are the problems and what can we do about them?
So many interventions…
So little evidence…
e.g. acceptability and efficacy of Urgotul dressings
e.g. parenteral iron and erythropoietin for anaemia in EB
Clinical trials - what to do?