Developing an Autism Plan for East Sussex . Kenny MacKay Strategic Commissioner – Mental Health, Adult Social Care. Developing an Autism Plan for East Sussex . Debbie Endersby Head of Commissioning – Learning Disability, Adult Social Care. Welcome. Overview. Jane’s story.
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Strategic Commissioner – Mental Health, Adult Social Care
Head of Commissioning – Learning Disability, Adult Social Care
“Finding people who understand about Asperger’s helps me and makes me feel less anxious. I want to find a job and have someone to do things I like doing with, someone who understands me and my anxiety. They don’t have to have autism but they need to know about Asperger’s and what it means for me.”
Autism Commissioning Project Manager, Adult Social Care
To develop a plan by:
Do the proposals reflect your priorities?
Any suggestions for improved outcomes?
“DSM4 will make it harder for people to get a diagnosis because we’ll all be lumped together as Autistic Spectrum Disorder. I had to wait 14 months to get my diagnosis, and start to understand what autism is. The main things that are important to me are to get a job so I can live and be more independent, and to have people around me who understand the way I am. This would make me feel less anxious.”
When I got my diagnosis, there wasn’t any support. They didn’t refer me on. I went back to my mental health service but I don’t fit into the mental health world, even though I’ve come under mental health since I was young. Asperger’s is not mental health. Without people who understand me, I get anxious. I need help to manage my anxiety, especially when talking to new people who I don’t know if I can trust or not. I felt like I was going in circles.
“I contacted a lot of services I found on the internet but the contact numbers were mostly out of date or I was blocked because I had a criminal conviction. I tried to get support from a lot of organisations that helped people to get work. I want to find a job. I want to have a friend. I want to have support from people, to do things I like to do, where people understand how I am and can deal with it. Some people in mental health services are ok at doing this, but a lot aren’t. Also, some people are the Job Centre are ok but some are not.”
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