Skip this Video
Download Presentation

Loading in 2 Seconds...

play fullscreen
1 / 15

ASBAH - PowerPoint PPT Presentation

  • Uploaded on

ASBAH. Spina Bifida and Hydrocephalus. Linda Lewis Helpline and Information Service Manager [email protected] ASBAH. ASBAH is the leading UK registered charity providing information and advice about spina bifida and hydrocephalus

I am the owner, or an agent authorized to act on behalf of the owner, of the copyrighted work described.
Download Presentation

PowerPoint Slideshow about 'ASBAH' - reynard

An Image/Link below is provided (as is) to download presentation

Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author.While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server.

- - - - - - - - - - - - - - - - - - - - - - - - - - E N D - - - - - - - - - - - - - - - - - - - - - - - - - -
Presentation Transcript

Spina Bifida and Hydrocephalus

Linda Lewis

Helpline and Information Service Manager

[email protected]


ASBAH is the leading UK registered charity providing information and advice

about spina bifida and hydrocephalus

to individuals, families, carers and professionals.

what we do
What We Do

Our services are targeted towards:-

  • support to parents before and around the birth of their

baby, or diagnosis of the disability

  • support to the child and family on educational matters
  • specialised information and help on health matters
  • helping young people access services to progress

towards control of their lives

  • responding to the needs of adults with spina bifida

and/or hydrocephalus

definition of hydrocephalus
Definition of Hydrocephalus
  • Hydrocephalus comes from the Greek ‘hydro’ meaning

water and ‘cephalie’ meaning brain

  • Hydrocephalus can result when either too much

cerebrospinal fluid (CSF) is produced, or when it is

prevented from circulating or being reabsorbed

  • Insertion of a shunt
  • Endoscopic Third Ventriculostomy (ETV)
social issues
Social Issues
  • Difficulty in group situations
  • Literal thinking: coping with irony, humour,


  • Difficulties with empathy
  • Social immaturity
  • Hidden disability
social issues ways to help
Social Issues Ways To Help
  • Encouragement & support in small groups
  • Training in social skills and empathy
  • Work on self-esteem
what is spina bifida
What is Spina Bifida?
  • Spina bifida means ‘split spine’
  • In spina bifida, the bones do not close round the

spinal cord and the nerves can bulge out on the

unborn baby’s back and become damaged

spina bifida may affect
Spina Bifida May Affect:
  • Mobility
  • Sensation
  • Circulation
  • Bowel and bladder control
  • Sexual functioning
sexual functioning
Sexual Functioning
  • Loss of sensation
  • Erectile dysfunction
  • Retrograde ejaculation
  • Low fertility
  • Latex allergy is common in people with spina bifida.
  • It can produce severe anaphylaxis and death, even
  • in people who were not aware they were sensitive
  • or have had previous contact with latex
  • Folic Acid and the prevention of neural tube defects