Universal LifeSt i les, L.L.C .

1. Person Centered Approaches to a Meaningful and Enviable Life …Overcoming Life’s Obstacles Universal LifeStiles, L.L.C.

2. Today Today is a gift….. that is why it is called the PRESENT.

3. An Obvious Correlation “What you do today will determine tomorrow.” Mahatma Gandhi

4. Valued Experiences Sharing Ordinary Places Making Choices Contributing Respect Growing In Relationships

5. History The history of their lives becomes their future. Cheryl Wacker

6. Quality of Life Construct • Sensitizing Notions: gives society a sense of reference and guidance from the individual’s perspective, focusing on the person and the individual’s environment • Social Construct: used as an • overriding principle to enhance an • individual’s well being and facilitate • collaboration for change at the • societal level; and • Unifying Theme: provides us with • a common language and systematic • framework to apply quality of life • concepts and principles • University of Minnesota Driven to Discover

7. Fatalism… … a doctrine that events are fixed in advance so that human beings are powerless to fix them (Webster Dictionary) There is a prevailing belief that individuals with significant disabilities cannot have a quality life!

8. The Law of Leaking When benchmarks are achieved and goals are realized to improve quality of life, beware of ‘leaking and straying.’”. This law states: Improvements in quality of life revert to their original status unless vigilance and directed efforts are exercised.

9. Guardian’s Expectations… …can serve as a self- fulfilling prophecy either negative or positive! Their expectations should not be determined by a diagnosis! It is essential that guardians dream about opportunities for their charge’s enhanced quality of life.

10. The Future “Plan for the future because that’s where you are going to spend the rest of your life.”Mark Twain

11. You’re the Author When writing the story of your life, don’t let anyone else hold the pen.

12. The Future Is Now How can people have a future - when they don’t have a “present”? Being an active participant in all aspects of one’s life - Forming valued relationships Having things of value Future Present Past

13. A Change Of Focus Futures Planning is bankrupt when it focuses on what you want in your future versus what contributions you wish to make… Why are you on this earth? John O'Brien, PhD.

14. Worthwhile Only a life lived for others is a life worthwhile! Albert Einstein

15. Life LIFE: IT’S NOT THE SIZE OF THE SPLASH BUT THE JOY YOU FIND ALONG THE WAY NON SEQUITUR by WILEY

16. Later There is no future without a “present!”

17. J J J J J J J THE HOPE FACTOR 12 Realized 10 Realized 8 HOPE Realized 6 Realized 4 2 0 Wake Up Sleep TIME

18. Core Q of L Domains Desired states of: Emotional well-being Physical well being Interpersonal relationships Material well being Personal development Social inclusion Self-determination and rights University of Minnesota, Driven to Discover

19. Looking Forward When you get up each morning what do you look forward to? Watching your child take a first step Going to dinner with a close friend Buying a birthday present for your partner Reaching your goal at a Weight Watchers meeting

20. Looking Forward (cont’d) Making reservations for a long needed vacation Tending to the plants in your garden Reading two more chapters of a book by your favorite author What do the men and women you support look forward to each morning when they wake up?

21. The Foundation of Happiness Happiness is the foundation in realizing a preferred future. Support people in realizing happiness through Universal strategies: Altruism Relationships Exercises Pets Unfortunately these life experiences are lacking in the lives of many whom we support!

22. Intimacy What would your life be like without an intimate relationship? Intimate: marked by close acquaintance, cherished, dearest, devoted, warm friendship, relating to or indicative of one’s deepest nature. Wikipedia

23. Program System A Perspective On Quality The process always starts in the center, with the person. The quality of supports for people who rely on human services depends on program design and delivery. Improving a program's ability to provide quality services and supports is shaped by the organization of the service system. Person

24. Quality On Three Levels Program Person Program System

25. What We Know Research suggests a number of ecological characteristics relate to a high quality of life and self-determination in living arrangements: Organizational climate Agency policies and regulations The knowledge, skills and attitudes/beliefs of DSPs The behavior of DSPs The personal capacities and behaviors of supervisory staff and organizational leadership University of Minnesota Driven to Discover

26. Shifting to A New Paradigm What is intellectual disability? TraitInteraction between person and environments interpretation and assessment StatisticFunctional interaction between environments Deficit ModelFunctional

27. Shifting To A New Paradigm(cont’d.) Resulting changes in services: Ineffectual teachingQuality teaching No schoolsSeparate schools Integrated schools Residential segregation Neighborhoods Custodial careTeaching skills Institutions Group homes Supported Living

28. Shifting To A New Paradigm(cont’d.) Changing the interaction: Control andcoercion Empowerment DependenceSelf-definition, personal autonomy, choice Being a burdenA person with challenges Eternal child; Transition to helpless adult status

29. Shifting To A New Paradigm (cont’d.) Changing the interaction (cont’d.): Fear of person Understanding of full humanness Familial risk Acceptance Affirmation and support Denial of Access to health care health care

30. Shifting To A New Paradigm (cont’d.) Changing the interaction (cont’d.): Idleness Adult Day Program Segregated workshop Jobs Job discrimination Anti-discrimination Supported employment IQ=Restrictiveness Individualized supports Source: Luckasson, R., Spitalnik, D.M. (1993). Political and programmatic shifts of the 1992 AAMR definition In V.J. Bradley, J.W. Asbough, & B. Blaney, (Eds.). Creating individual supports for people with developmental disabilities: A mandate for change at many levels. Baltimore: Paul H. Brookes. (In progress).

31. Childhood Experiences • Rights of passage for all children: • Selling Girl Scout cookies • Taking music lessons • Running through the sprinkler • Receiving an allowance • Roller skating • Packing a school lunch • Making things for • grandma • Learning to whistle • Riding your bike • Pulling a wagon

32. Childhood Experiences (cont’d) • Playing Hide and Seek • Listening to bedtime • stories • Attending a story hour • Blowing bubbles • Taking a bubble bath • Riding a pony • Having a sleep-over • Staying up really late • Eating Count Chocula • Flying a kite

33. Childhood Experiences (cont’d) • Having a squirt gun fight • Baking cookies • Playing croquet • Playing in a sandbox • Trick or Treating • Playing in • Little League • Dance recitals • Playing Hopscotch • Selling lemonade • Making mud pies

34. Preferred Future Identifying and seeking a preferred future is the essence of a quality life.

35. Take Action! the grass is greener where you water it! Anonymous The grass isn’t always greener on the other side of the fence…….

36. Transition Tran si tion: 1. Passage from one form, state, style, or place to another

37. Evolution of the Planning Process Model Team Plan Role Focus Medical/Custodial Intra Disciplinary ITP Patient Physical Infirmity

38. Intra-Disciplinary Clinical staff defend their territory against intruders. Each discipline has a “professional bag of tricks”, guarded by a discipline representative. Those not holding membership are not allowed to view the bags 'contents. PT OT MSW

39. Intra-Disciplinary Roles Special Educator Psychologist Speech & Language Clinician Dietician Social Worker Occupational Therapist Nursing Recreational Therapist Physical Therapist The individual is dissected - each discipline exacts their part of the person.

40. Puppets In the name of professionalism, we pull the strings of those we support – impairing: spontaneity, self-determination and individualization. P.T. DSP Psychologist O.T. Service Coordinator Language Clinician Behaviorist Job Coach Dietician Guardian Nurse The role of the professional is to relinquish control and empower the individual!

41. Evolution of the Planning Process Model Team Plan Role Focus Medical/Custodial Intra Disciplinary ITP Patient Physical Infirmity Developmental Inter Disciplinary IPP Resident Skill Acquisition

42. Interdisciplinary Each discipline completes their assessment, objectives and plans sharing them with other disciplines. Through a process of consensus, the plans evolve into an integrated planning document.

43. Evolution of the Planning Process Model Team Plan Role Focus Medical/Custodial Intra Disciplinary ITP Patient Physical Infirmity Developmental Inter Disciplinary IPP Resident Skill Acquisition Habilitative Trans Disciplinary IHP Client Movement to LRE

44. Trans-Disciplinary If its not illegal, unethical or immoral and the staff are capable of providing the required clinical services ---- DO IT! MSW Psych. Speech OT PT RN

45. Let’s Celebrate • The spirit of a Person Centered Plan is more fully realized when celebration is pervasive throughout the process. • Unlike the ISP of IPP process where: • horns don’t honk and bubbly doesn’t flow when the person meets their tooth brushing objectives • rounds of applause are not given for achieving the objectives in bed making and hair combing • there is no celebratory • dinner when the last two • steps in a ten-step task • analysis is achieved for • vacuuming.

46. Let’s Celebrate (cont’d) • Celebration is inspired in the PCP process when the focus person: • saved enough money from their job to go on a 4 day vacation • invited their family over for dinner and prepared the meal • completed 100 hours of • volunteer service for three • organizations • lost those last 25 pounds • used the public bus to visit friends • These are cause for • celebration!

47. Evolution of the Planning Process Model Team Plan Role Focus Medical/Custodial Intra Disciplinary ITP Patient Physical Infirmity Developmental Inter Disciplinary IPP Resident Skill Acquisition Habilitative Trans Disciplinary IHP Client Movement to LRE Participatory/ Non Disciplinary ISP Consumer Relations Inclusionary

48. Community Valued Common Accomplishment Challenge Experiences Experiences Promote Growing in Few & restricted Community interdependence relationships relationships; few participation among people memberships; isolation & loneliness; loss of connections; low personal power Recognize & Discovering & Low level of Supporting develop all contributing contribution; contribution human gifts, unrealistically low resources capacities & expectations; skills deteriorating ability; physical hurt Protect integrity Making choices Limited voice; Promoting by creatively few options; choice resolving no exit conflicts

49. Community Valued Common Accomplishment Challenge Experiences Experiences Offer valued roles Being respected Negative Encouraging to everyone by & having the reputation; valued social confronting dignity of a prejudiced, roles limiting beliefs valued social inappropriate & and their role limited historical responses from consequences. other people; Give up negative, stereotypes. self-fulfilling prophecies Include all people Sharing ordinary Being separated Community places and by location, presence activities activities, schedule Source: Personal Profile by O’Brien, John and Connie Lyle, Beth Mount, Responsive Systems Associates

50. Valued Experiences Growing in Relationships Contributing Making Choices Respect Sharing Ordinary Places