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Webinar #3P: How you can contribute to research

Join our webinar to learn about the various roles you can play in research and how you can contribute to Project BRIDGE. Discover how you can ask important questions, provide input on research topics, help create understandable materials, recruit participants, analyze data, and more!

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Webinar #3P: How you can contribute to research

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  1. Webinar #3P: How you can contribute to research Project BRIDGE: Building Research Initiatives by Developing Group Effort This project is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (Contract # EAIN-7111).

  2. At the end of this webinar, you will be able to: 1. Talk about roles you can play in research. 2. List at least two questions you can ask about research.

  3. Aphasia Example

  4. What can people with aphasia and caregivers do? Step 1: Ask a Question: Researchers need to… Provide input on which topics or questions are most important to you • Write a very specific research question

  5. What can people with aphasia and caregivers do? Step 2: State a hypothesis: Researchers need to… Help create materials that explain your research in an understandable way Provide input on which outcome measures might be most meaningful • Choose exactly how to do the research

  6. What can people with aphasia and caregivers do? Step 3: Conduct an experiment Researchers need to… Help ensure that the recruitment materials and consent process are clear and understandable Help recruit participants by distributing information or posters • Write an application to get approval to do research on humans

  7. What can people with aphasia and caregivers do? Step 4: Analyze the results. Researchers need to… Provide a different perspective on the data or results • Analyze the data

  8. What can people with aphasia and caregivers do? Step 5: Make a conclusion Researchers need to… Suggest places to publish that will be important to people living with aphasia Provide feedback on any drafts that are intended for patient partners or other lay audiences Have a great discussion about what should come next • Write up the results and publish it.

  9. Questions you can ask a researcher • Help me understand your research.

  10. Questions you can ask a researcher 2. How could your research change things (e,g., how might it help someone like me)?

  11. Questions you can ask a researcher • What can I do to help you? • Please show me what you are asking me to do.

  12. Questions you can ask a researcher 5. I have an idea. Can I share it with you?

  13. Everybody can help. Researchers and Clinicians People with aphasia and family members Are affected by research – whether you know it or not Can give their opinions and views Can help researchers Get people to participate Make information understandable • Have a lot of special knowledge and skills • Are trained to do research • Want to work with you • Want to listen to your ideas • May be very busy!

  14. Research helps us… • Understand aphasia better • Come up with new therapies • Know which therapies are best for which person • Change policies and practices

  15. Mark your calendars for the BRIDGE conference, October 19 & 20, 2018 People with aphasia and their families Researchers Therapists or Doctors More info at: www.aphasia.org/

  16. Become a PCORI Ambassadorhttps://www.pcori.org/engagement/engage-us/become-pcori-ambassador Have you participated in a PCORI event or initiative? Are you interested in learning more about patient-centered outcomes research and how to inform your community about making better health decisions?  Are you interested in partnering with PCORI to disseminate and implement PCOR research findings?

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