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Comprehensive Care Pathway for Suspected MND Patients

This generic care pathway outlines the timely steps to be taken for individuals with suspected Motor Neurone Disease (MND) during the initial 4 weeks of symptom onset, covering diagnosis, treatments, assessments, and support services. It recommends involving various specialists, conducting necessary investigations, providing information, and linking patients to multidisciplinary teams for ongoing care and palliative services.

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Comprehensive Care Pathway for Suspected MND Patients

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  1. Suggested Generic Care Pathway for People with Suspected MND Time Neurological Symptoms Variable < 4 weeks < 4 weeks < 4 weeks See Guidelines On Telling the Diagnosis < 4 weeks General Practitioner Time: variable Consultant Neurologist Other specialist, eg ENT, Rheumatologist < 4 weeks Investigations EMG MRI Blood (?CSF) 2nd opinion Telling the Diagnosis/Providing Information < 4 weeks 2nd opinion Linking into local MDT Continuing Care/Palliative Care . Symptomatic treatment . Assessment of respiratory function . Assessment of swallowing and nutrition . Assessment of psychological/emotional well-being . Family assessment/support . Benefits . Finance and housing . Aids and appliances . Review of diagnosis . Hospice/home care . Research (NB not in order of importance) MND Association (RCA) Neurologist Neurophysiologist Co-ordinator Physiotherapist Occupational Therapist Speech & Language Therapist Dietician Psychological support Social Worker/Benefits Advisor Palliative Care Physician Counselling Team Respiratory Team Gastroenterology Team PEG/RIG Teams See King’s MND Care and Research Centre Guidelines on Telling the Diagnosis PEG/ RIG, NIV GNDH 11.8.05

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