Suggested Generic Care Pathway for People with Suspected MND

1. Suggested Generic Care Pathway for People with Suspected MND Time Neurological Symptoms Variable < 4 weeks < 4 weeks < 4 weeks See Guidelines On Telling the Diagnosis < 4 weeks General Practitioner Time: variable Consultant Neurologist Other specialist, eg ENT, Rheumatologist < 4 weeks Investigations EMG MRI Blood (?CSF) 2nd opinion Telling the Diagnosis/Providing Information < 4 weeks 2nd opinion Linking into local MDT Continuing Care/Palliative Care . Symptomatic treatment . Assessment of respiratory function . Assessment of swallowing and nutrition . Assessment of psychological/emotional well-being . Family assessment/support . Benefits . Finance and housing . Aids and appliances . Review of diagnosis . Hospice/home care . Research (NB not in order of importance) MND Association (RCA) Neurologist Neurophysiologist Co-ordinator Physiotherapist Occupational Therapist Speech & Language Therapist Dietician Psychological support Social Worker/Benefits Advisor Palliative Care Physician Counselling Team Respiratory Team Gastroenterology Team PEG/RIG Teams See King’s MND Care and Research Centre Guidelines on Telling the Diagnosis PEG/ RIG, NIV GNDH 11.8.05