Sponsored by The National Council on Aging and CareSource Healthy Aging Briefing Series MEN AS CAREGIVERS WELCOME This session will begin promptly at 3:30pm ESTPlease mute your phonePersonal introductions are not necessaryThe moderator will be on the line shortly
University of Southern California48 Hr! Men’s Caregiver Retreat Funded by: Los Angeles County Area Agency on Aging Los Angeles Caregiver Resource Center Norris Foundation
Retreat… Retreat - a period of group withdrawal for prayer, meditation, study, and instruction under a director (Merriam-Webster)
LACRC Retreats The “48 Hr!Caregiver Retreats” program provides a two and half day retreat at a relaxing retreat center where caregivers and their family/friends gather to participate in relaxation activities and educational workshops. • For Caregivers and their Family/Friends who help with caregiving.
Goals for the Retreat… To provide caregivers an opportunity to: • Relax while away from their caregiving environment for 48 hours. • Learn skills to manage stress levels. • Provide interaction with other male caregivers. • Learn about community resources and how to use those resources. • Reinforce importance of taking care of themselves so they can care for others.
Target Population • Male family caregivers for adults with brain impairing conditions acquired after the age of 18. (e.g., Alzheimer’s disease, stroke, Parkinson’s disease, MS, ALS, TBI, Huntington’s disease) • Male family caregivers for adults over the age of 60 regardless of illness/disease.
Caregiver Statistics According to statistics from FCA of California: From 1/01/06 to 6/30/06 N=1,760 • Husbands = 11% • Sons = 8.4 % Other caring men include: son-in-laws, nephews, grandsons, friends
When a Man Cares • Men comprise approximately one-third of all primary caregivers to older adults. • 50% increase in men becoming primary caregivers between 1984 and 1994 • More likely to handle grocery shopping, transportation, and finances for the first time in years. • Reluctant to ask for help. • Avoid support groups but go to conferences and information sessions and workshops.
Retreat Programming • Educational Workshops: “Live Till You Die”, lecture on grief, “Men’s Issues in Caregiving” “ Sexuality and Caregiving”, Available Community Resources... Relaxation/Recreation: Massages, Tai Chi, Walks, Stand-up comics, Arts & Crafts Activities, Drum Circle… • Support: Individual/Family Counseling Sessions, 1-hour private sessions with a professional, Support Group…
Getting Started • Put together a retreat committee • Invite male leaders from the community (The Gatekeepers) • Invite a male caregiver(s) to be on the committee • Brainstorm new ideas and programs • Be aware of pre-conceived notions and stereotypes
Getting the Buy-in • Advertisement and referral through the gatekeepers! • Through our female caregivers who had previously attended our retreats • Calling the men and taking the time to “walk” the men through the program and reassuring them of their options • Sending program information
Addressing the Uncomfortable • Not comfortable with socializing • Not comfortable with just being with men • Not comfortable sharing intimate and personal information • Not comfortable being without spouse • Not comfortable sharing a room
Application Process Note: Financial Assistance is available and discussed on an individual case basis. Case reviewed Telephone interview Referral received 1. Respite plan discussed Retreat selected Fees & paper work completed 2.
Men’s Retreat Results Summary Number of attendees: 13 male caregivers Age of caregivers: Range = 18 to 84
Ethnicity of Male Participants • 46% Black • 36% White • 9% Hispanic, American Indian/Alaska Native • 9% Native Hawaiian/Other Pacific Islander, Asian
Relationship to Care Receiver • 62% Caring for a spouse • 23% Caring for another relative • 15% Adult Child
Caregiver Facts • Length of caregiving: Participants had been caring for their loved ones for an average of 5.38 years. The minimum length of caregiving was 2 years; the maximum was 17 years. • Reasons for becoming caregiver: Nearly all stated that they became caregivers because a loved one became ill or was ill and could not be alone. One caregiver wrote only “because she is my wife and I love her” and another wrote “my siblings were not helping my parents so I moved back to LA to care for them.”
Rating of Retreat • This is measured on a scale of 1 to 5 with 1 being “Strongly Agree” • Retreat was good use of my time 1.06 • Enough time to relax 1.88 • Activities appropriate for my culture 1.28 • Activities appropriate for my gender 1.31 • Would like to attend another retreat 1.06 • Would recommend retreats to other caregivers 1.09
Comments • The chance just to “kick it” and meeting others. • Enjoyed the focus on issues relating to male caregivers. • Thank you for organizing the retreat and making me feel welcome. • It was a very nice welcome reception and a very impressive beginning. To all the sponsors: thank you and more power and success. • Many thanks for your kind and very informative talk. I wish I had made notes. • Thanks for the memories. I had so much fun with you guys. It was very informative and everyone was great. • Thank you to all the LACRC staff and all the sponsors of this retreat! • Thank you for your generosity and concern in sponsoring these caregiver retreats. It is most welcome and greatly appreciated. • Thanks for working so hard to make this unique event a reality. The speakers and leaders have been excellent and inspiring. Congratulations to all of you!
One Caregiver wrote, “I was on the same level with my peers when people said-I know how you feel-I wasn't angry. Because I knew they walked in my shoes.”
“I enjoyed the different varieties of activities to focus on myself and forget about pressures on the outside.”
“Some of the ideas were new and it was exciting and stimulating. I will be pondering these new revelations for some time after the retreat.”
SuggestionsFUTURE MEN’S CAREGIVER RETREATS • More physical activities to balance the passive listening. • Less emphasis on the drum session. • Having a “mild” aerobics class. • For the speakers to speak Spanish. • More participants. • Music programming. • More lectures on grief, more group meetings to discuss what we are going through and how we handle it as men.
Respite • Provided during retreat period only • Inform caregivers about the importance • of respite. • Empower caregivers to find respite • providers. • Give caregivers confidence that they • actually can find respite so that when • they periodically need a rest, they know • they can ask for help.
Potential Barriers… • Respite • 65% of the caregivers who attended were able to fund own respite. • Registration fees • About 70% of caregivers were able to pay for their Retreat Registration fees. **Every caregiver situation is reviewed and treated as unique. We work directly with each caregiver to try to resolve any issue that may prevent them from attending the USC 48 Hr!Caregiver Retreats.
Unexpected Outcomes • Staying up till the early hours playing dominoes • Continued contact from over half of the participants • Requests from male professionals and male caregivers for more retreats • Positive responses from participants female family members • Reactions to the retreat programming (positive & negative)
2006 Retreat Dates • Date: Tuesday, May 2- Thursday, May 4, 2006 • Special Target: Male Caregivers • Location: Holy Spirit Retreat Center, Encino, CA
Don’t Forget Your Free Copy of Aging in Stride • NCOA and Caresource are pleased to offer first-time registrants for this Healthy Aging Briefing Series a complimentary copy of the book, • Aging in Stride, which includes the new supplement Just In Case: Emergency Readiness for Older Adults and Caregivers. • To receive your copy, please visit: WWW.AGINGINSTRIDE.ORG/NCOAOFFER • Or just email email@example.com with your name, title, organization, mailing address, phone number, and date of the Briefing you participated in. • One free copy per registrant, please. • To contact Shawn Hertz, send an email to: firstname.lastname@example.org.