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Issue Area: Barriers to Information Sharing and Data Collection

Issue Area: Barriers to Information Sharing and Data Collection.

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Issue Area: Barriers to Information Sharing and Data Collection

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  1. Issue Area: Barriers to Information Sharing and Data Collection What policy changes are needed so that the Federal government can effectively collect and share data on children with state and local government agencies and voluntary organizations to facilitate evacuee tracking, family re-unification, disaster case management, and the delivery of social services? • Specifically: • What type of information should be collected and shared and who should information be shared with? • What are the barriers to information sharing under current laws and policies, and what modifications are necessary to improve sharing of personal information for purposes such as evacuee tracking and delivery of services?

  2. Issue Area: Barriers to Information Sharing and Data Collection • Desired State: • Develop a standardized, interoperable national evacuee tracking and family reunification system that ensures the safety and well-being of children. • Review and modify current privacy policies and laws to permit the timely sharing of relevant disaster victim information among Federal, state, local, tribal, and non-governmental agencies and organizations engaged in supporting children and families affected by disasters, when it is clearly in the best interest of children to do so. • Barriers to the Desired State: • Information confidentiality rules • Restrictive policies of Federal agencies • Lack of a universal Release of Information (ROI) form • Lack of established and interoperable information collection systems

  3. Issue Area: Barriers to Information Sharing and Data Collection • Additional Barriers to the Desired State: • Standardized Tracking • Scope: What should a tracking system entail? What should and should not be included? Should the focus be more than just evacuee tracking? • Authority: Who owns the system? Who runs the system? What are the triggers? • Access: Who can access the system? When can the system be accessed and for how long? What is the process for gaining access? What information will be available? Are there safeguards in the system that limit what people can do?

  4. Issue Area: Barriers to Information Sharing and Data Collection • Additional Barriers to the Desired State: • Standardized Tracking (Continued) • Input and Output: What information should be in the system? When is information put in to the system and when is it made available? Can a system be in place before a disaster, so information is available when a disaster occurs? What data is output and how is the level of access determined? • Management/Maintenance/Ownership: Who owns the system? How can it be funded? Given the varying technical abilities at the state and local levels, can a single platform exist? What mechanism will allow users with varying abilities to attain and use data?

  5. Issue Area: Barriers to Information Sharing and Data Collection • Additional Barriers to the Desired State: • Policy/Legislative Barriers • Real Barriers vs. Issues of Interpretation: Barriers may be due more to interpretation of a law than the law itself. Where are there real gaps in the law, and what changes can be made to address them? • Outreach/Awareness: Communication regarding the need for information collection/sharing prior to a disaster is lacking. Training and guidance on information sharing is lacking. • Incentives and Impediments: Implementation may be seen as an unfunded mandate. Incentives need to be in place to encourage entities to share information. What existing resources and funding can be used? Where can new sources of funding come from?

  6. Issue Area: Barriers to Information Sharing and Data Collection • Additional recommendations for the Commission: • Scope: • Should be limited in purpose. • Should focus on a specific mission (the safety of children until reunification) • Should be standards in data collection • Should focus on existing systems

  7. Issue Area: Barriers to Information Sharing and Data Collection • Additional recommendations for the Commission: • Authority: • Possibilities include a Federal authority providing state guidance or Federal guidance to support state law. • Guidance could be provided by either a formal federal or informal advisory board, which engages public and private stakeholders in supporting the process. • Primary need (examples): data field definition governance and standards; the basics need to be universally applied.

  8. Issue Area: Barriers to Information Sharing and Data Collection • Additional recommendations for the Commission: • Access: • Should be granted based on triggers with consideration to privacy • The trigger should define what information becomes accessible • Outreach and Awareness: • Needs to be increased • Especially to school systems and child care providers • To raise awareness of capabilities, regardless of what those capabilities end up being

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