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Empowering the Consumer

Empowering the Consumer. Linking Employment Abilities & Potential (LEAP) "Eliminating barriers, creating opportunities" www.leapinfo.org LEAP's mission is to advance a society of equal opportunity for all persons, regardless of disability. Learning Objectives .

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Empowering the Consumer

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  1. Empowering the Consumer Linking Employment Abilities & Potential (LEAP) "Eliminating barriers, creating opportunities" www.leapinfo.org LEAP's mission is to advance a society of equal opportunity for all persons, regardless of disability.

  2. Learning Objectives • 1. Participants will gain an understanding of consumer-directed care • 2. Participants will gain tools to promote self-advocacy • 3. Participants will be given resources that will assist them in supporting consumers as they learn to manage their care.

  3. What is Consumer Direction? • Self-management • Self-determination • Independent living philosophy • Assisted Autonomy • Definitions/perceptions vary

  4. Why is it important….? • Dignity • Respect • Empowerment • Control • Self-worth

  5. Choice

  6. Cross Disability/Age

  7. Historical PerspectiveDisabilityMovement Community Inclusion

  8. History of the Disability Movement • 19th century • Institutionalized, patients who needed curing • Excluded people with disabilities from the larger society • Implied something inherently and permanently wrong with them • No room for integration • Perpetuated myths of inequality • Paternalism

  9. History of the Disability Movement • WWI • Thousands of WWI soldiers returned home, the first vocational rehabilitation acts were passed in the 1920s • Provide services to the WWI veterans with newly acquired disabilities • In 1920, as a result of polio, Franklin Roosevelt developed the International Rehabilitation Facility. • In 1935, the League of the Physically Handicapped came together because of discrimination from private industry. • Throughout the next few decades, the wars made advances in not only medicine but disability policy as well. Paralyzed Veterans of America and the President’s Committee on Employment began at the end of WWII.

  10. History of the Disability Movement • Civil Rights movements of 1960s • As African Americans, women and other social minorities gained political consciousness, so did people with disabilities • Nader’s Raiders • It’s all about groups of persons demanding equal rights and protection.

  11. History of the Disability Movement • Early 1970s • People with disabilities lobbied congress to put civil rights language for people with disabilities into the 1972 Rehabilitation Act • Vetoed by President Nixon • Group of people with disabilities marched on Washington • Revised 1973 Rehabilitation Act was passed • For the first time in history, the civil right of people with disabilities were protected by law • Birth of IL Centers

  12. American with Disabilities Act • The Americans with Disabilities Act (ADA) was passed in 1990 and gives civil rights protections to individuals with disabilities similar to those provided to individuals on the basis of race, color, sex, national origin, age and religion. It works to break down barriers to employment, transportation, public accommodations, public services and telecommunications for people with disabilities.

  13. “The heady feeling of that memorable moment (the signing of the ADA) remains with me and gives me pause to hope that those of us with disabilities will one day soon be an integral part of American life, recognized for our abilities and celebrated for our achievements”. “We need to expect a lot of ourselves and need the public to also have high expectations of what we can do.  We can do anything.”

  14. Olmstead Decision • In July 1999, the Supreme Court issued the Olmstead v. L.C. decision. The Court ruled that there should be community options for Ms.Curtis and Ms.Wilson. • The Olmstead v. L.C. decision challenges federal, state, and local governments to develop more opportunities for individuals with disabilities through accessible systems of cost-effective community-based services. The Olmstead decision interpreted Title II of the Americans with Disabilities Act (ADA) and its implementing regulation, requiring states to administer their services, programs, and activities "in the most integrated setting appropriate to the needs of qualified individuals with disabilities."

  15. Ohio Increasing Options • PAS Coalition • Home and Community Waivers • Consumer Direction Opportunities • Home Care Attendant • Home Choice • Cooperatives • ADRN

  16. Consumer Issues • Fear of the unknown • Fear of losing what they already have • Less that ideal management skills • Fear of reprisals • Understanding roles and responsibilities • Already dealing with a lot

  17. Professional Concerns • Safety • Consumer has minimal self-management skills • Roles and responsibilities • Liability • Time

  18. Disability is a natural part of the human experience.US Developmental Disabilities/Bill of Rights Act A New Paradigm:

  19. What is, is. What isn’t, isn’t. You become so obsessed with what isn’t that you miss what is.Author unknown*********

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