1 / 17

IT ’ S ALWAYS TOO SOON TO START THE CONVERSATION… UNTIL IT ’ S TOO LATE Ellen Goodman

llen. IT ’ S ALWAYS TOO SOON TO START THE CONVERSATION… UNTIL IT ’ S TOO LATE Ellen Goodman. 1. Our mission: Fostering meaningful and effective conversations about end-of-life care. Ellen Goodman tells her story. The death rate is still 100% and…. Why Talk?.

mroscoe
Download Presentation

IT ’ S ALWAYS TOO SOON TO START THE CONVERSATION… UNTIL IT ’ S TOO LATE Ellen Goodman

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. llen IT’S ALWAYS TOO SOON TO START THE CONVERSATION…UNTIL IT’S TOO LATEEllen Goodman 1

  2. Our mission: Fostering meaningful and effective conversations about end-of-life care

  3. Ellen Goodman tells her story

  4. The death rate is still 100% and….. Why Talk?

  5. In 40% of all end-of-life situations, treatment decisions need to be made, but…. 60% of the time the dying person will not be able to participate 70% of people die in institutions…. while 70% say they would want to die at home 82% of Americans think it is important to put their wishes …in writing but only 23% have done so! By the Numbers

  6. What kind of “good” or difficult deaths have you been a part of? What things do you worry about most? “We have two fears: that we will not get the care we need, and that we will get care we don’t want.”Ellen Goodman

  7. The gift of wonderful advances in living better. New challenges – when does technology just prolong dying? Are there situations worse than death? Technology is a two-edged sword

  8. To not be a burden To maintain some control To not be in pain To have time to share and reach closure Family peace of mind may be more important to some than than the details of what treatments they get or don’t get. What do people say they want and fear?

  9. Even those of us who have completed documents have often not discussed the contents with family members. Family members often do not even know that they exist or where they are. Documents may not convey the “big picture” of what is important. “A crisis is a terrible time to learn.” - Ellen Goodman But my _____ knows what I want!

  10. They are a good start to thinking about your wishes, but…. People’s wishes can change – special events, changing values, recent medical and life experiences. Many directives, especially Living Wills, prescribe timelines that may not apply to the situation. Most current documents are procedure-based, not values-based. But I have Advance Directives!

  11. A tool for preparing for the conversation. A gentle approach that focuses on values and not on procedures. Provides guidance for your Medical Durable Power of Attorney for Health Care (MDPOA) and your loved ones, when and if they need to make decisions in specific medical situations. The Starter Kit

  12. Step 1 – we’ve looked at some facts… Thinking first, maybe just by yourself. Step 2 – The scales about where you stand What matters most to you…. When you are the patient…. Step 3 – Sharing: when, where, who…. Breaking the ice Looking at The Starter Kit

  13. What written documents do you need? Medical Durable Power of Attorney (MDPOA) is very useful. Living Will addresses procedures and time frames Above do not require legal counsel MOST (Medical Orders for Scope of Treatment) Is a provider order, for people with severe chronic or terminal illness Where do you keep them? How do you share with medical provider? Keep Going: Next Steps!

  14. Call us for help We can: Help you prepare for a conversation Guide a conversation with your family Refer you to other resources, classes Prepare you to talk to your healthcare provider Offer presentations in a workplace, for a faith community or your favorite group The Conversation Projectin Boulder County

  15. Contact us at: http://theconversationprojectinboulder.org (303) 442-0436, ext 133 Contact information

  16. 17 17

  17. We have control over when our breathing stops, sometimes even our heart…. The “technological imperative” – the push to “do everything” at the end of life for medical providers for family member for the individual ( for themselves or for their families) What is new about dying?

More Related