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WORKSHOP 4 Striking a new deal with patients. Patient participation in a virtual world Developing your PPG – some thoughts A social networking presence DISCUSSION. Developing your PPG/PRG – what we are doing.

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Workshop 4 striking a new deal with patients
WORKSHOP 4Striking a new deal with patients

  • Patient participation in a virtual world

  • Developing your PPG – some thoughts

  • A social networking presence


Developing your ppg prg what we are doing
Developing your PPG/PRG – what we are doing

  • Have a section on the practice web site to include

    • Information about the PPG and an application form

    • N.A.P.P newsletters

    • Our PPG newsletters

    • Other healthcare information – without jargon or acronyms

  • Develop a Patient Information Centre

  • Continually develop contacts with local Community Groups

  • Develop a local network of PPGs – by meetings or virtually

  • Host ‘Expert Patient’ sessions

  • Have strong support from the GPs and the Practice Manager

  • Recognise that the world is changing and work together with local public and patient engagement groups.

A social networking presence
A social networking presence

  • for

  • The National Association for Patient Participation

N.A.P.P Annual Conference, Manchester, 26th May 2012

Roger Till

What should n a p p be doing
What should N.A.P.P. BE DOING?

  • Open a Facebook account - to communicate with the world at large

  • Create a Facebook Page

    • Pages are visible to everyone (e.g. by a Google search, even if the viewer does not have a Facebook account)

    • Set up a Wall (for communicating information about N.A.P.P to the world at large) linked to the Page

    • Five tips for non-profit organisations

      • Be accessible; Tell stories; Focus on impact; Solicit broad participation; Empower core supporters (from ‘The Facebook Era’ by Clara Shih, 2011, 2nd Edition, Prentice Hall, 350pp)

  • Needs on-going management and initial IT skills (time) and will be a mix of current information, standard material/information about N.A.P.P

  • Advertise the N.A.P.P website, workshops, Newsletters, projects and Annual Conference etc.

  • Have a policy for colleagues on accepting clients, potential clients and colleagues

Workshop 4 striking a new deal with patients


But you can see the information here just by being on the Internet

And then what
and then what?

  • Open a twitter account

    • This is only for communication with the membership, between the membership and other persons or organisations agreed by the staff and Trustees.

  • Use the N.A.P.P logo as the Avatar.

    • This is not a twitter account to discuss the colour of Jon Snow’s ties

    • It is a private service to N.A.P.P members to discuss patient participation and to exchange ideas and project experiences - such as reports from members; experiences of setting up new groups; discussion of commissioning groups; Patient Reference Groups and DES; project reports

  • It will use the twitter Private Lists facility. The owner of the twitter account is the only person who can add people to the List

    • General twitter users cannot see or access these Private Lists

    • See Tee Morris, ‘Sams Teach Yourself Twitter, 2010, Pearson Education, 182pp

  • All N.A.P.P members will be offered access. Additional Private Lists may be set up for specific projects or collaborations

  • Needs ongoing management and initial IT skills (time) and will be a developing practical resource for the membership

  • Have an agreed process for adding people to the List(s)

Workshop 4 striking a new deal with patients

@NAPP London UK

N.A.P.P has over 30 years experience and expertise in promoting, supporting and developing Patient Participation Groups (PPGs) and has developed a full range of resources that can support practices and PCT's in implementing this contractual Patient Participation requirement.



N.A.P.P uses Twitter?






Another mock-up based on the BHF site

And then what1
And then what?

  • Eventually we might start a N.A.P.P blog to develop ideas and reports about patient participation

  • ........... but that is a little way down the road

  • ........... when we have more resources

  • ........... oh, and we could set up a YouTube account as well, to show all those videos of our CEO giving speeches.

Roger Till, N.A.P.P Conference, Manchester, May 2012