European Haemophilia Consortium. A Strategy for Women with Bleeding Disorder The Irish Experience Roundtable of Stakeholders 21st June 2011 – Brussels Debbie Greene Irish Haemophilia Society. National Register. Of the 918 people in Ireland known to have von Willebrands
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A Strategy for Women with Bleeding Disorder
The Irish Experience
Roundtable of Stakeholders 21st June 2011 – Brussels
Irish Haemophilia Society
known to have von Willebrands
Disease 537 are female.
Many do not require therapy
on a regular basis but knowing
about their bleeding disorder
Include lectures on Women and Bleeding Disorders at most Irish Haemophilia Society conferences.
publication on Women and Bleeding Disorders
All registered members
Women with Bleeding Disorders attending haemophila centres.
All maternity hospitals.
publication on Rare Bleeding Disorders in 2010.
All registered members.
All with Rare Bleeding Disorders registered at haemophilia centres.
Advertised in Haemophilia Treatment Centres by production of specific flyers and posters.
Mailshot to all obstetricians and e-mailed PDF copy of our publication on Women and Bleeding Disorders.
How did we promote the meetings?
Repeat orders received from some hospitals.
Education and knowledge is power.
From left: Debbie Greene, Nina Storey, Anne Duffy, Brian O’Mahony, Nuala McAuley, Fiona Brennan and Declan Noone.