1 / 12

S. 323 / H.R. 1428

S. 323 / H.R. 1428. Comprehensive Immunosuppressive Drug Coverage Act for Kidney Transplant Patients Act of 2013. How Do You Get PKD?. One of most common, life-threatening genetic diseases PKD does not skip a generation Parents with PKD have a 50% chance of passing it to each child

magee
Download Presentation

S. 323 / H.R. 1428

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. S. 323 / H.R. 1428 Comprehensive Immunosuppressive Drug Coverage Act for Kidney Transplant Patients Act of 2013

  2. How Do You Get PKD? One of most common, life-threatening genetic diseases PKD does not skip a generation Parents with PKD have a 50% chance of passing it to each child Often affects many people in one family Five to 10% of PKD cases are spontaneous (new) mutations

  3. Autosomal Recessive PKD (ARPKD) 20 years ago, only half survived to age 10.Now 85% survive to their 10th birthday! 1 in 20,000 children Often causes death in first month of life 70% survive newborn period, and then 1/3 need dialysis or kidney transplant by age 10

  4. There is No Treatment Fourth leading cause of kidney failure More than 50% of PKD patients will develop kidney failure by age 50 Dialysis and kidney transplantation are their only options for survival

  5. Treatment of Kidney Failure Dialysis • 4 hours a day, 3 days a week • Costs $88,000 a year Kidney Transplant • Provides highest quality of life and best clinical outcomes • More than 108,000 people on the list • Only about 16,000 transplants each year

  6. Living Donation • Directed Donation • Altruistic Donation • Paired Kidney Exchange

  7. S. 323 / H.R. 1428 Immunosuppressive drugs prevent organ rejection Title XVIII of Social Security Act provides patients who are Medicare-eligible only because of kidney failure with immunosuppressive drug coverage, but only for first 36 months Patients left to pay for expensive drugs out-of- pocket, or risk organ failure and death

  8. Annual Per Patient Cost:Immunosuppressive Drugs vs. Dialysis or Second Transplant

  9. Extending Lifetime Coverage of Immunosuppressive Drugs Prolongs lives of Americans Reduces taxpayer costs Allows more dialysis patients to consider a transplant Preserves the number of available kidneys

  10. S. 323 / H.R. 1428 H.R. 1428 – Rep. Michael Burgess – R (TX) • 119 cosponsors (73D, 48R) • House Energy and Commerce • Health • House Ways and Means S. 323 – Sen. Richard Durbin – D (IL) • 17 cosponsors (13D, 3R, 1I) • Senate Finance

  11. Contact Information Michelle DavisChief Development Officer michelled@pkdcure.org 816.268.8477

More Related