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Partners In Survival™ National Training Program U58/CCU323069-02. Marc Heyison, Principal Investigator, Men Against Breast Cancer Research Partners : James Zabora, ScD., Evaluation Director, CUA Matthew Loscalzo, MSW, Training Director, City of Hope

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Partners in survival national training program u58 ccu323069 02

Partners In Survival™ National Training ProgramU58/CCU323069-02

Marc Heyison, Principal Investigator,

Men Against Breast Cancer

Research Partners:

James Zabora, ScD., Evaluation Director, CUA

Matthew Loscalzo, MSW, Training Director, City of Hope

R. Clinton Crews, MPH, Program Director, EVMS


Collaborators
Collaborators

  • National Black Leadership Initiative on Cancer III: Network Project (Chicago, LA, Nashville, Memphis)

  • Mayo Clinic Comprehensive Cancer Center’s Spirit of Eagles Program (Rochester and Jacksonville)

  • Nueva Vida (New Life)

  • City of Hope(Training Developer)

  • Eastern Virginia Medical School (Program Coordinator)

  • The Catholic University of America (Project Evaluator)


Mission
Mission

Men Against Breast Cancer (MABC), co-founded

by Marc Heyison and Stephen Peck in 1999, is the

first and only national non-profit organization

designed to...

Provide targeted support services to educate and empower men to be effective caregivers when breast cancer strikes a female loved one

Target and mobilize men to be active participants in the fight to eradicate breast cancer as a life threatening disease


Partners in survival national training program funded via pa 03050
Partners In Survival™ National Training ProgramFunded via PA 03050

The Intervention: Partners in Survival™ (PIS) program is

designed to educate, train, and empower the male

spouses and partners of women with cancer, and

in particular, women with breast cancer; and

enhance support and improve quality of survivorship for

minority women with breast cancer.

Partners in Survival™ National Training Program (PIS) consists of:

  • 90 minute workshop for male caregivers

  • 2-6 hours train-the-trainer program


Process measures
Process Measures

  • Number of Men Reached by Strategy

  • Number of Minorities reached through the

  • Workshops Resource materials for male caregivers

Impact Measures

The following survey tools were used to measure distress

and quality of life of partners and survivors:

  • Brief Symptom Inventory-18

  • Social Problem-Solving Inventory

  • Satisfaction with Life Domains

  • Scale for Breast Cancer,

  • Family Caregiving Quality of Life Scale



Number of men reached by strategy
Number of Men Reached by Strategy

Men trained in 35 states


Impact outcomes pre workshop results
Impact Outcomes: Pre Workshop Results

32.1% of participants scored with a high level depression and 30.8% as with a high level of anxiety

In terms of distress, 25.6% of the respondents scored as being high distress

Overall, these men scored higher on the subscales that show poor problem-solving abilities

Correlations between the components of distress and negative problem-solving skills range from -.33 to -.45 with p<.01

This suggests that those men who are more distressed are more likely to utilize a negative problem orientation. Previous studies show that this type of outcome will have a detrimental effect on the person with cancer


Sustaining the program
Sustaining the Program

  • Partnership with Comprehensive Cancer Centers and the NCCCP’s

  • Partnerships with National Consortium of Breast Centers and Young Survivors Coalition to conduct Pre-Conference PIS Mini-Male Caregivers Conference and PIS Train the Trainer Workshop for Healthcare Providers in 2009 (potentially ongoing) in conjunction with their conferences

  • Implementation of the Partners In Survival™ Online Program

  • Partnership with AstraZeneca to support Male Caregiver’s Conference

  • Partnership with Novartis to support regional conferences with community based organizations

  • MABC’s PIS RFA program for Community-based organizations

  • Development of a Couples Partners In Survival™ Program

  • Couples Partners In Survival™ conference conducted in Spanish


National recognition resulting from cdc collaboration
National Recognition Resulting from CDC Collaboration

  • CBS Sunday Morning - aired Mother’s Day 2004

  • O Magazine October 2004 – Men Behaving Terrifically page 149

  • Guys Guide to Mammography – Endorsed by CDC

  • For The Women We Love: A breast cancer caregivers battle plan and action guide for men – Book published in 2007

  • National Male Caregiver’s Conference– 3rd to be held July ‘08


Lessons learned
Lessons Learned

Personal invitations from health care professionals increase the likelihood that men will participate

Men need to be recruited, not invited, to educational programs with clearly defined missions that are male-centric in nature

Men will actively and enthusiastically participate in educational programs that focus on them making a contribution to the women they love

Men express their own specific concerns and fears when in the company of men who share their commitment to supporting women with cancer