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Disability and Development: Gathering Empirical Evidence. “Estadísticas sobre Personas con Discapacidad” Managua – Nicaragua 31 Agosto – 1 Septiembre 2004 Daniel Mont Disability and Development Unit The World Bank. G. Fujiura – HD Learning Days. Epidemiology of Disablement.

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disability and development gathering empirical evidence

Disability and Development: Gathering Empirical Evidence

“Estadísticas sobre Personas con Discapacidad”

Managua – Nicaragua

31 Agosto – 1 Septiembre 2004

Daniel Mont

Disability and Development Unit

The World Bank

slide2

G. Fujiura – HD Learning Days

Epidemiology of Disablement

Proportion of Lives Lived with Chronic Conditions

GBD Analysis suggests significantly higher rates of disablement and impact in underdeveloped regions of the world

Murray, C.J.L. & Lopez, A.D. (1996). The global burden of disease: A comprehensive assessment of mortality and disability from diseases, injuries, and risk factors in 1990 and projected to 2020. Cambridge, MA: Harvard University Press.

slide3

World Bank and disability – What is the link?

  • Successful implementation of the MDG’s results in the prevention of disability and increased productivity for disabled people
  • Two-way causality between disability and poverty
  • Disabled people are disproportionately poor, and poor people are disproportionately disabled
  • Doing a good job on poverty alleviation requires taking disabled people into account
slide4

Disability and Poverty – Research Concerns

  • The definition of disability is complex
  • Different definitions and different data collection methodologies yield different rates
  • Data on disability often not collected, or at least not given proper attention
slide5

Prevalence of Disability in Selected Countries

Percent of Population Disabled

Bangladesh 0.8

Niger 1.3

Egypt 4.4

Italy 5.0

Germany 8.4

United States 15.0

Australia 18.0

source of concepts for measurement icf model
Source of Concepts for Measurement: ICF Model

Health Condition

(disorder or disease)

Body Functions & Structure

Activity

Participation

Environmental Factors

Personal Factors

Source: ICIDH-2, 1999

slide7

G. Fujiura – HD Learning Days

Current Status and Technical Challenges in Disability Surveillance Statistics

Fujiura, G.T. & Rutkowski-Kmitta, V., (2001). Counting disability. In G. Albrecht, K. Seelman, & M. Bury (Eds). Handbook of disability studies, pp. 69-96. Thousand Oaks, CA: Sage.

what is the purpose of measurement
What is the purpose of measurement?
  • Directing resources towards inclusion
    • Prevalence Rates

We need to establish the prevalence rate of disability in developing countries in order to provide an idea of the scope of the impact of disability on people’s lives, but there are different prevalence rates for different conceptions of disability depending on the issue being addressed.

    • Relation to poverty, income, health, and education

Link with economic well-being measures and the MDGs to demonstrate the importance to development

purposes of measurement
Purposes of Measurement
  • Provision of Services
    • Identifying people in need of rehabilitation
    • Determining accommodations needed for inclusion
    • Highly variant across cultures
    • Needs a lot of detail – better suited for household surveys as opposed to censuses
purposes of measurement10
Purposes of Measurement
  • Monitoring the level of functioning in the population
    • Participation, Activities, or Impairment?
    • Answer influences extent of focus on environment
    • Implications for international comparability

US NHIS Survey – “Are you limited in the kind or amount of work you can do because of a physical, mental or emotional problem?”

purposes of measurement11
Purposes of Measurement
  • Assessing Equalization of Opportunity
    • Collect info on impairments and outcomes
    • Connection is made in analysis, not data collection
    • Negative correlation implies lack of opportunity, i.e. “disability”
purposes of measurement12
Purposes of Measurement
  • Monitoring and Evaluation
    • Baseline
      • Prevention – functioning
      • Inclusion – relation between functioning and participation
    • Outcome indicators

Relation between functioning and participation

data collection issues
Data Collection Issues
  • Survey design
    • Purpose of measurement
    • Quality of questions
  • Stigma
    • Willingness to respond
    • Willingness to ask
    • Interpretation of response
  • Cultural and environmental differences
  • Small sample size – especially by type of disability