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Enhancing Patient Care: Choosing the Right Tools for Survival and Quality of Life

Discover the essential tools to assess patient survival and quality of life effectively. Learn about outcome research, specific instruments, and alternative options to improve patient care and outcomes. Explore disease-specific measures and learn how to calculate QALYs to make informed decisions. Find the optimal tools for your practice and enhance patient quality of life.

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Enhancing Patient Care: Choosing the Right Tools for Survival and Quality of Life

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  1. Does it make a difference for the patient?Survival & Quality of life • Jan J. v. Busschbach, Ph.D. • Erasmus MC • Institute for Medical Psychology and Psychotherapy • Viersprong Institute for studies on Personality Disorders • Presentations can be found at: • www.xs4all.nl/~jannetvb/busschbach/

  2. Most simple recipe.. • Count the survival days • SF-36 • EuroQol EQ-5D

  3. Outcome research SF-36 EQ-5D

  4. Sensitivity • Generic instruments • Like SF-36 and EQ-5D • Not necessarily sensitive for intervention • Disease specific quality of life instruments • More sensitive • But comparisons with other disease difficult • Not sensible in outcome research and health economics

  5. Outcome research Specific SF-36 EQ-5D

  6. Specific instruments • Last option • Develop it your self…. • Desperate option • Find one on the internet, PubMed etc…. • To many, non at all or just not what you want… • THE way to do it: • Ask the opinion leaders • What is used most on congresses? • What would be a good translation of the effect for the clinicians?

  7. Examples • MMSE • The Mini Mental State Examination • IPSS • International Prostate Symptom Score • They have a horrible psychometric make up • But they communicate your messages • Clinicians ‘know’ the score by heart

  8. A full, but simple recipe... • Count the survival days • SF-36 • EuroQol EQ-5D • To calculate QALYs • A disease specific measure • Ask the physician

  9. Alternatives for SF-36 • Other ‘hot’ generic list • WHOQOL • Domain specific offspring of the SF-36 • EORTC C30 • FACT • Cancer, have additional disease specific modules • Can be expected to be more sensitive than generic lists • Reduces the need for specific measures

  10. Alternatives for EQ-5D • Must be able to generate QALYs • Health Utility Index • Own valuation of health states • Increase of sensitivity • Make sure that these are societal values… • Otherwise no QALY from societal perspective • Other instruments or adaptations • EQ-5D+cog • SF-6D (derived from SF-36) • AQoL

  11. A simple menu • Count the survival days • SF-36, WHOQOL • or domain specific instruments like EORTC C30 • EQ-5D, HUI, own validation • EQ-5D+, SF-6D, AQoL • A disease specific measure • Ask the physician

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