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Quality Cancer Data Saves Lives. The Vital Role of Cancer Registrars in the Fight against Cancer. 18 Million. 1.5 million. 67%. Cancer Registries. Statistics Treatment strategies Public health initiatives. Goal.

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Quality cancer data saves lives

Quality Cancer Data Saves Lives

The Vital Role of Cancer Registrars in the Fight against Cancer





Cancer registries
Cancer Registries

  • Statistics

  • Treatment strategies

  • Public health initiatives


Quality cancer data saves lives
Goal

The ultimate goal of collecting cancer information is to prevent and control cancer and improve patient care


Result
Result

Assist physicians in assessing the efficacy of diagnostic and therapeutic methods


Result1
Result

Aid in the decision making about unmet needs, physician recruitment, space needs, resource allocation, and health planning


Result2
Result

Respond to local needs through an assessment of referral patterns, cancer trends, and development opportunities


Quality cancer data saves lives

Cancer Registries collect a wide range of cancer-related information; including —

  • Demographics


Cancer related information

Medical history information; including —

Diagnosis and prognosis indicators

Treatment patterns

Cancer recurrence

Survival rates

Health care coverage

Patient eligibility

Cancer-related Information


Quality cancer data saves lives

Different Kinds of Cancer Registries information; including —


Quality cancer data saves lives

Health care providers record patient information and diagnosis

Hospital-based cancer registrar abstracts patient information into uniform data sets and checks for an existing record for each patient

Patient data is aggregated on a state level, and then sent to national registries (SEER or NPCR)




National center for health statistics
National Center for Health Statistics diagnosis

Cancer mortality comes from State Health Depts. to the CDC’s NCHS



National program of cancer registries
National Program diagnosisof Cancer Registries


Quality cancer data saves lives

Today, NPCR diagnosisand SEER registries work collaboratively to collect and report cancer statistics on the entire U.S. population.http://www.cdc.gov/cancer/npcr/uscs/


Npcr provides national leadership to cancer registries
NPCR provides national leadership to Cancer Registries diagnosis

NAACCR Certified State Registries 2011

Gold

Silver

Black- did not meet certification requirements


Npcr is expanding efforts to improve and use cancer data by
NPCR is expanding efforts to improve and use cancer data by: diagnosis

Providing technical assistance to registries to help ensure data completeness, timeliness, and quality


Quality cancer data saves lives

Coordinating and convening meetings of registry personnel for information sharing, problem solving, and training


Quality cancer data saves lives

Helping states and national organizations use cancer data to describe state and national disease burdens, evaluate cancer control activities, and identify populations at risk for certain cancers


Quality cancer data saves lives
Collaborating with federal, state, and private organizations to design and conduct research using data collected through state registries


Cdc national standards
CDC: National Standards to design and conduct research using data collected through state registries

  • CDC has established national standards to ensure the completeness, timeliness, and quality of Cancer Registry data


National cancer data base
National Cancer Data Base to design and conduct research using data collected through state registries

http://www.facs.org/cancer/ncdb/index.html


International association of cancer registries
International Association of Cancer Registries to design and conduct research using data collected through state registries


Quality cancer data saves lives

How Registries Collect Cancer Data to design and conduct research using data collected through state registries


Quality cancer data saves lives

The techniques used by Cancer Registrars allow for uniform data collection

http://www.naaccr.org/


Quality cancer data saves lives

Standard setting organizations provide guidance and direction to the Cancer Registrar



Quality cancer data saves lives

Abstracting sections and fields

Abstracting is converting a patient’s medical information to uniform cancer data


Quality cancer data saves lives

Electronic Medical Records sections and fields



Cancer registries exist within a national framework of health monitoring and data collection
Cancer Registries exist within a national framework of health monitoring and data collection


Quality cancer data saves lives

The Flow of health monitoring and data collectionCancer Information: A Case Study


Diagnosis to treatment
Diagnosis to treatment health monitoring and data collection

  • Jane Smith learns from her internist that she likely has breast cancer


Diagnosis to treatment1
Diagnosis to treatment health monitoring and data collection

  • Further tests are completed at the hospital


Diagnosis to treatment2
Diagnosis to treatment health monitoring and data collection

  • Jane’s doctor proposes a course of treatment


Diagnosis to treatment3
Diagnosis to treatment health monitoring and data collection

  • Follow-up tests show Jane to be cancer free


Diagnosis to treatment4
Diagnosis to treatment health monitoring and data collection

  • Jane’s data is added to other SEER and Michigan central Cancer Registry data, and the National Cancer Data Base, where it will go through more quality processes and refinement


Diagnosis to treatment5
Diagnosis to treatment health monitoring and data collection

  • The Cancer Registrar will regularly follow-up



Quality cancer data saves lives

Cancer information is used in thousands of ways, including

Evaluate patient outcome, quality of life, and satisfaction issues and implement procedures for improvement



Provide outcome information for cancer surveillance http www cdc gov cancer npcr uscs
Provide outcome information for cancer surveillance — http://www.cdc.gov/cancer/npcr/uscs/


Quality cancer data saves lives

Report cancer incidence as required by state and federal laws

http://www.ccrcal.org/pdf/Reports/Physicians.pdf


Calculate survival rates by various data items such as sex race and age

Trends in Five-Year Relative Survival Rates laws

Calculate survival rates by various data items, such as sex, race, and age

Estimated Numbers of US Cancer Survivors by Sex

and Time Since Diagnosis as of January 1, 2012

  • Note: Percentages may not sum to 100% due to rounding.

  • Source: Data Modeling Branch, Division of Cancer Control and Population Sciences, National Cancer Institute.






Quality cancer data saves lives

Cancer data patients, and the general publicform much of the body of knowledge used by medical professionals, epidemiologists, policymakers, and public health officials


Quality cancer data saves lives

Kentucky patients, and the general public

Thousands of lives were saved in Kentucky through early detection of breast cancer


Quality cancer data saves lives

Minnesota patients, and the general public

In Minnesota, a rare type cancer caused by asbestos exposure was identified, leading the state to look for increased state funding for occupational-related disease


Quality cancer data saves lives

New York patients, and the general public

Cancer registry data are now used to educate New Yorkers about cancer risk factors


Quality cancer data saves lives

Cancer Registrars Ensure Accuracy and Privacy patients, and the general public



National data is only as good as state and local data
National data is only as good as state and local data patients, and the general public

Health care providers record patient information and diagnosis

Hospital-based cancer registrar abstracts patient information into uniform data sets and checks for an existing record for each patient

Patient data is aggregated on a state level, and then sent to national registries (SEER or NPCR)


Privacy concerns are paramount to cancer registrars
Privacy concerns are paramount to Cancer Registrars patients, and the general public




Quality cancer data saves lives

The Cancer Registrar must interpret it

have comprehensive

knowledge about cancer

diagnoses, treatment, and

information management




Hospital based registrar s role goes beyond data collection
Hospital-based Registrar’s Role Goes Beyond Data Collection

  • Cancer Program Management

  • Cancer Committee Member

  • Monitor quality of Cancer Program Management

  • Provide benchmarks for quality comparison


Hospital based registrar s role goes beyond data collection1
Hospital-based Registrar’s Role Goes Beyond Data Collection

  • Data Analysis for Studies

  • Compiling Cancer Program Annual Report

  • Assess referral patterns


Hospital based registrar s role goes beyond data collection2
Hospital-based Registrar’s Role Goes Beyond Data Collection

  • Participate in cancer prevention

  • Present information to cancer committee, physicians, administration


Quality cancer data saves lives

Registrars in Central Cancer Registries are Key Players in CollectionInsuring Quality Health Care

  • Edit the data from all facilities

  • Query the database for data quality reports

  • Merge duplicate records

  • Audit healthcare facilities to insure accurate, timely, complete data


Quality cancer data saves lives

Registrars in Central Cancer Registries are Key Players in Ensuring Quality Health Care

  • Work with researchers

  • Contribute to data analysis for cancer program planning

  • Present data to the local community, schools, and others

  • Provide education and training for registrars


Quality cancer data saves lives

How Does One Become a Cancer Registrar? Ensuring Quality Health Care



Ctrs have pursued higher education
CTRs have pursued higher education Registrars

Some college, associates, bachelors


Quality cancer data saves lives

Cancer Registrars: RegistrarsA challenging career requires quality education, and certification



Certification ensures quality results
Certification ensures Registrarsquality results


Additional benefits certification
Additional benefits: certification Registrars

  • Establishing a standard of knowledge and competence

  • Measuring the requisite knowledge, skills and abilities of CTR® applicants

  • Promoting professional growth and individual study

  • Formally recognizing CTRs who meet recertification requirements


Quality cancer data saves lives

NCRA’s Certification Examination Registrars

In 1983, the National Tumor Registrars Association (now NCRA) administered the first certification examination for tumor registry professionals.




Ncra mission statement
NCRA Mission Statement Registrars

  • Serve as the premier education, credentialing and advocacy resource for cancer data professionals.


Ncra offers
NCRA offers: Registrars

  • Multiple educational and networking opportunities

  • Annual national conference to build knowledge and expertise

  • Promotion of professional standards and ethics


Ncra offers1
NCRA offers: Registrars

  • Management of the CTR process and NCRA’s Council on Certification

  • Publication of a peer-reviewed scientific journal and a quarterly newsletter


Ncra offers2
NCRA offers: Registrars

  • A Web site offering a wide range of publications and information about educational opportunities

  • http://www.ncra-usa.org*



Cancer registry is a dynamic profession
Cancer Registry is a dynamic profession Registrars

  • Registrars are dedicated, enthusiastic, and self motivated professionals

  • Registrars work closely with physicians and administrators


Cancer registry is a dynamic profession1
Cancer Registry is a dynamic profession Registrars

  • Registry data make a difference in patient care and cancer research

  • Registrars perform a wide variety of interesting tasks, including data analysis


Cancer registry is a dynamic profession2
Cancer Registry is a dynamic profession Registrars

  • The profession offers regular work day hours with holidays and vacations

  • There is minimal supervision required for self motivated registrars


Cancer registry careers are rewarding
Cancer Registry careers are rewarding Registrars

Masters Degree

$55,000

$39,000

Associates Degree


Cancer registrars have many career opportunities
Cancer Registrars Have Many Career Opportunities Registrars

  • Hospitals and Health Care Facilities

  • Software Vendors

  • Government Agencies

  • Pharmaceutical Companies

  • Outsourcing or Contract services


You and cancer registries
You and RegistrarsCancer Registries:

A Smart Choice for a Bright Future